Printer Friendly

Working toward a balance in our lives: a booklet for families of children with disabilities and special health care needs.

Prepared by Project School Care, Children's Hospital, Boston, MA, (C)1992. To order: Project School Care, Children's Hospital, 300 Longwood Ave., Boston, MA 02115, (617) 735-6714, (61 7)735-7940 (fax), $10.

The following excerpt from Chapter 5: Equipment has been reprinted with permission from the publisher.

Many children with specific health care needs use special equipment for many months or years. Families can usually learn to manage this equipment, even though the idea may seem overwhelming at first. After discharge, your child's equipment needs may be taken care of by the home care agency or a separate equipment vendor. As you go along, other parents and professionals may give you advice or suggestions about other systems or a particular product or brand. You should feel free to discuss these questions and any other concerns with your equipment supplier or a member of your child's health care team.

How do I learn about my child's equipment?

Learning about the equipment should begin early on in your child's hospital stay. As soon as your child has a discharge date, the appropriate equipment will be determined and should be ordered and set up before your child leaves the hospital. You and your child's discharge planner should set up home training dates; usually the home care agency or equipment vendor will do the actual training. Training should be done on the same type of equipment that you will be using.

By the time your child leaves the hospital, all the equipment should be in proper working order and you should be comfortable with how it works. It is helpful to ask that your child be discharged from the hospital early in the day so that you have plenty of time to get your child and his/her equipment settled upon returning home.

What are my responsibilities regarding my child's equipment?. What are the equipment supplier's responsibilities? Parent:

* checks each equipment delivery for proper product, size and amount

* keeps a list of all supplies with item or order number

* checks supply levels weekly and orders supplies in advance

* does basic, routine cleaning and informs the supplier of any maintenance problems, whether the equipment is rented or purchased

* sends in the warranty information if you own your equipment

* if lives in a rural area, requests backup equipment for emergencies

Equipment supplier:

* delivers, installs and checks the operation of any new equipment

* demonstrates and teaches proper care, maintenance and operation

* leaves instructions for care and cleaning

* has a staffed 24-hour service number

* provides backup equipment while the regular equipment is being repaired

* services rental equipment to factory standards

* may have professional staff available for training, information and questions

Who will pay for my child's equipment at home?

Possible sources for payment are:

* private insurance companies, including HMOs

* Medicaid and other public programs

* parent's co-payment

* community, civic and religious groups

* disability organizations

What are the advantages ... of renting versus owning equipment?.

Advantages of renting:

* equipment supplier will maintain, repair and perform major cleaning of equipment, though there

may be a charge for these services

* easier to change to the most up-to-date equipment

* your child's need for the equipment may only be short-term or it may be something s/he will quickly outgrow

Advantages of purchasing:

* can be less expensive over time

* you may be able to purchase used equipment

Sometimes, the advantages of one method over the other are not so clear. For example, in some cases, insurance companies may pay for the repair of equipment, even when it has been purchased.

More importantly, the decision to own or rent equipment may be made by your insurance provider. In some instances, you may be able to convince your insurance provider about the merits of one method over the other. Your doctor can write a letter to your insurance provider to advocate rental or purchase of certain pieces of equipment. In other cases, insurance companies may have certain guidelines they must follow.
COPYRIGHT 1993 EP Global Communications, Inc.
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 1993 Gale, Cengage Learning. All rights reserved.

Article Details
Printer friendly Cite/link Email Feedback
Title Annotation:excerpt
Publication:The Exceptional Parent
Date:Mar 1, 1993
Previous Article:When your child goes to school after an injury.
Next Article:Multiculturalism and disability.

Related Articles
1990 school mainstreaming contest winners.
Parental attitudes toward mainstreaming young children with disabilities.
Parents who have a child with a disability.
Child care: who cares for the children with chronic illness and disability?
Pediatricians make house calls.
Managed care: standards and criteria for children with special health care needs.
Self-care for caregivers.
The role of physical, occupational, and speech therapy in the overall care of children with special health care needs.
Considerations for the military child with special needs transitioning to adulthood.

Terms of use | Copyright © 2016 Farlex, Inc. | Feedback | For webmasters