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Woman spends 20 hours a day lying in agony - and sitting up could kill her; Erin Meegan, originally from East Molesey, Surrey, needs life-changing surgery after being diagnosed with crippling Ehlers Danlos Syndrome (EDS), Craniocervical Instability (CCI), and Postural Orthostatic Tachycardia Syndrome (POTS).

Byline: mirror

A Brit who spends more than 20 hours a day lying down in constantpainsays sometimes she would rather be shot.

Erin Meegan, 34, is bedridden and thousands of miles away from family.

She needs life-changingsurgeryhaving been diagnosed with Ehlers Danlos Syndrome (EDS), Craniocervical Instability (CCI), and Postural Orthostatic Tachycardia Syndrome (POTS). These conditions affect her mobility, sight, memory, speech, heart rate and neck stability.

Erin, who is originally from East Molesley, Surrey, but now lives in Perth, Australia, "I get a lot of pins and needles and get very fatigued very quickly. Sometimes I feel like it would be more humane to take me out the back and shoot me."

Surrey Livesays Erin, who was an extremely active young person, began feeling unwell in 2016 and has since had multiple diagnoses.

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"With the CCI that means that my skull is sliding downwards on my neck, which causes brain stem compression, and this affects your breathing, heart rate and temperature control," she said.

"One of my biggest problems is my inability to be upright because as soon as I get up my heart rate increases and all the blood flows in the lower extremities of my body.

"Now I am pretty much bedridden. My husband is working full time and my family is in Surrey, so I am desperately trying to get back home.

"I have terribly blurry vision, and there are days when I cannot look at a screen, or speak, so for the past week I have been blindfolded.

"I just take the neck brace off when I eat. I can get around by myself, it's just slow and steady like a tortoise."

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Erin travelled to Perth after recovering from open brain surgery at just 24. She met her husband Isaac in the city and enjoyed a four-month honeymoon throughout southeast Asia and the east coast of Australia in 2015, shortly before her first shocking diagnosis.

Erin says she feels "terribly guilty" about the impact her conditions have had on Isaac, 30, and her family.

Isaac, who is an engineer, said: "I work full time and I am also acting as a carer, so I do not have a lot of time to look after myself.

"I have been deteriorating with my own physical health, and my own mental health, to the point where it is now very difficult to maintain.

"It's been particularly difficult with the fundraising and being separated from Erin's support network in the UK."

A woman Ehlers Danlos Syndrome (EDS), from Greater Manchester, recentlytook her first steps after complex surgery.

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But Erin must raise [pounds sterling]55,000 for the surgeries herself.

The procedures would happen at a special clinic in Barcelona, Spain.

"You run a million marathons to get the correct diagnosis, only to find out that there are no other surgeons other than in America and Barcelona," she said.

"With me being so incapacitated, we have not got the ability to campaign as much as we need to, but we're trying to raise as much money as we can.

"We could never repay them enough if they did choose to donate. It is probably the biggest gift that anyone could give."

To donate or to find out more, please visit Erin's fundraising page here.


Credit: SurreyLive/ WS

Erin Meegan, 34, currently lives in Perth, Australia, but is originally from East Molesey

Credit: SurreyLive/ WS

The wife used to be an extremely active young person but is now bedridden

Credit: SurreyLive/ WS

Erin married Isaac, 30, at a ceremony in 2015 before her devastating diagnosis
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Title Annotation:News,World news
Publication:Daily Mirror (London, England)
Geographic Code:4EUUK
Date:Sep 9, 2019
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