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We need to raise PS250k in a month to save our beautiful girl's life; RACE AGAINST TIME FOR AMERICA TREATMENT PARENTS PLEAD FOR HELP.

Byline: GARY PORTER

A MUM fears her "beautiful baby girl" could have as little as a month to live unless she gets lifesaving cancer treatment in America.

An emotional Angela Davies, speaking from the bedside of her two-year-old daughter Amelia-Mae, described the situation as "desperate" as she and her family frantically try to find the PS250,000 needed to fund the treatment.

NEUROBLASTOMA: THE FACTS ... The 41-year-old says her brave daughter - who is battling stage four high-risk neuroblastoma - has suffered a major setback after an MRI scan revealed an inoperable tumour on the back of her brain as well as several lesions.

? Fewer than 100 children diagnosed each year ? It is a cancer of specialised called neural crest cells. involved in the development nervous system and. Most children who younger than five years ? It's the second most tumour in childhood, of the total number. It most commonly of the two adrenal glands or nerve tissue that spinal cord in the neck, or pelvis.

The cause Angela, her husband Stewart, also 41, and their 19-year-old son Carl are pleading with the public and businesses for help in getting Amelia-Mae over to America for potentially lifesaving immunotherapy - treatment that is not available in the UK and won't be funded by the NHS.

"It's desperate measures now," said Angela, who was told she was unlikely to have any more children before Amelia-Mae was born after two ectopic pregnancies.

"Within a month or so we need to get out there. If left here she won't make it - she's very seriously ill.

Angela, from Garden City in Deeside, added: "I appeal to businesses, anybody really, to help us.

...

in the UK are I'd sell my soul to get her over there so that my beautiful baby girl makes it. I want to see her go to school, to see her walk down the aisle.

nerve cells These are of the tissues get this cancer are old common solid and it makes up 8% children''s cancers occurs in either one in the abdomen alongside the chest, abdomen unknown "This is to save her life. She is the happiest, loveliest, most gentle little girl you could wish to meet."

Amelia-Mae has already had five operations and several weeks of intense chemotherapy to remove tumours in her abdomen, liver, glands and bones - including her skull and bone marrow.

She had recently been suffering headaches which was why she underwent an MRI scan.

The immunotherapy treatment, which would require Amelia-Mae to have a needle put into her brain, would help stimulate her immune system so her body attacks the cancer. She would then also undergo radiotherapy direct to the tumour and lesions in the brain.

Amelia-Mae will undergo further scans at Alder Hey Hospital next week to check there have been no relapses elsewhere in the body.

"We virtually live here," said Angela at the Liverpool hospital yesterday. "We've got our own room which I suppose is what we need at the moment, but it feels like a prison cell sometimes.

"The staff have been great though, we couldn't ask for any better. But there is only a certain amount they can do. It's just sad we can't get the treatment we need here."

Stewart, who works at Hanson Cement in Buckley, believes his daughter may have had neuroblastoma for 12 months prior to diagnosis.

He said: "There should be a facility in place for early screening - it's the biggest childhood cancer killer. Even if I'd have had to pay for it I would. What's important with neuroblastoma is early diagnosis."

? To make a donation visit www.justgiving.

com/The-Amelia-Mae-Appeal, or donate by texting AMMA99 and the amount, for example PS2 or PS10, to 70070.

gary.porter@dailypost.co.uk NEUROBLASTOMA: THE FACTS ...

? Fewer than 100 children in the UK are diagnosed each year ? It is a cancer of specialised nerve cells called neural crest cells.

These are involved in the development of the nervous system and other tissues ? Most children who get this cancer are younger than five years old ? It's the second most common solid tumour in childhood, and it makes up 8% of the total number of children''s cancers ? It most commonly occurs in either one of the two adrenal glands in the abdomen or nerve tissue that runs alongside the spinal cord in the neck, chest, abdomen or pelvis.

The cause is unknown

CAPTION(S):

Brave: Two-year-old Amelia-Mae in hospital with parents Angela and Stewart

Pictures: STACEY OLIVER
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Publication:Daily Post (Conwy, Wales)
Date:Apr 12, 2013
Words:743
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