Understanding Hemophilia for All Ages.
The books, created in collaboration with the National Hemophilia Foundation (NHF), break down a variety of topics, including what clotting factors are and how to successfully manage the condition on a daily basis. As with all Jumo Health titles, the books are evidence-based, peer reviewed by leading physician specialists, and based on real patient stories to ensure authenticity.
"At NHF we recognize the need for people with bleeding disorders to be educated about their condition in age-appropriate ways. These books demystify the science behind bleeding disorders while acknowledging the emotional component of living with a chronic illness," stated Kate Nammacher, Senior Director of Education at the National Hemophilia Foundation.
Each of the four comic books targets a different age cohort including a toddler, adolescent, teenager, and adult caregivers as they navigate through the diagnosis of, and subsequently living with, hemophilia. The books are written in a complementary style appropriate to each target age group, making this collection of books a comprehensive resource for those affected by hemophilia.
"For decades we've watched as statistics surrounding reading comprehension, health literacy, and medication compliance remain fundamentally unchanged," shared Kevin Aniskovich, President and Chief Executive Officer of Jumo Health. "With only 20% of patients receiving information when initially diagnosed, it's no surprise that many patients don't have the tools to succeed. We are delighted to work with NHF to reverse this trend and to ensure these resources get into the hands of patients, caregivers, and health care professionals."
The importance of having age-appropriate resources such as these is echoed by Jason, whose family and son Ben are featured in Understanding Hemophilia for Families. "Sharing through an easy read -like a comic book- is perfect; it ties a real story into what would otherwise be a complicated disorder to understand. We are honored to have been asked to share our story and Ben's walk with hemophilia."
Families can contact NHF directly to request resources. The books are also available for purchase online at the Jumo Health store.
About The National Hemophilia Foundation
The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. Established in 1948, the National Hemophilia Foundation has chapters throughout the country. Its programs and initiatives are made possible through the generosity of individuals, corporations and foundations as well as through a cooperative agreement with the Centers for Disease Control and Prevention.
Visit the National Hemophilia Foundation.
About Jumo Health
Jumo Health develops age-appropriate, educational resources for patients and caregivers for use throughout their medical journey. By working with providers, manufacturers, and advocacy groups, we ensure our resources are available at the moment of diagnosis, during a treatment regimen, or while participating in a clinical trial. With the belief that an informed patient is a capable patient, Jumo Health designs its solutions for outcomes. With experience providing resources in more than 60 countries, 50 languages, and covering more than 200 topics, our mixed media solutions range from comic books to animated videos, are evidence based and peer reviewed, and pay careful attention to health literacy and educational attainment to ensure patients can understand and take the prescribed actions.
To learn more about Jumo Health, please visit JumoHealth.com.
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Read the full story here: https://www.pr.com/press-release/780950
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|Publication:||PR.com (Press Releases)|
|Date:||Mar 28, 2019|
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