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Sharmila urges haemophilia prevention programme on urgent basis.

KARACHI, April 16, 2010 (Balochistan Times): Realizing the fact that 17,000 people are suffering from dreadful blood disorder haemophilia in Pakistan and 1500 of them belonging to Karachi, there is an urgent need to develop a haemophilia prevention programme in the country to make people aware of the disease. This was stated by Advisor to the Chief Minister Sindh and Provincial Coordinator Peoples Primary Health Initiatives (PPHl) Project, Sharmila Faruqui on the occasion of World Haemophilia Day while talking to a delegation of Newports Institute of Communication and Economics (NICE) at her Friday. The delegation led by its Vice Chairperson, Huma Bukhari who offered her assistance to hold Haemophilia awareness seminars, conferences, workshops at the NICE Campus. Sharmila revealed that out of total number of cases, less than 50% were being provided treatment and the reason for this could be non-availability of proper diagnostic centres at the state level and expensiveness of the treatment. She underlined the importance of establishing blood development centres in various districts of the country, so that the patients can be benefitted. She said due to sub-optional treatment, most of the haemophilia patients, by the age of 8 years, develop severe crippling joint destruction, 80% of them also suffer from Hepatitis C and 50% from Hepatitis B. The Advisor said around 1200 patients are registered with Fatimid Foundation in Karachi out of which 60% are in the age group of 1-12 years. She stated that Bait-ul-Maal should take responsibility of haemophilia affected patients to save the children/youth from the deadly disorder. She called upon the philanthropists/NGOs to come forward and assist government to bring appropriate measures for treatment of blood disorders. She also appealed the media to start various awareness reports about the importance of treatment. Huma Bukhari said that world over the Haemophilia patients are leading a normal life since the state sponsors their treatment and they are provided medicines However , she said, in Pakistan, patients face the worst health condition due to non-availability of state-sponsored treatment as the cure remains very expensive for affectees.

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Publication:Balochistan Times (Baluchistan Province, Pakistan)
Date:Apr 16, 2010
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