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Running thanks for Georgia's care.

Byline: Mark Smith Health Corresponsent mark.smith@walesonline.co.uk

WHEN Helen Davies was told her tiny baby daughter Georgia was unlikely to reach her first birthday her world crumbled from underneath her.

Doctors gave the poorly child just months to live after being diagnosed with rare genetic condition Kabuki Syndrome, which affects around one in every 32,000 newborns.

But 13 years on inspirational Georgia Neilson has defied medical professionals to become a bright, bubbly teenager.

To repay the faith shown by leading charity Ty Hafan, who cared for Georgia until the age of two, mum-of-three Helen is now set to run the Cardiff Half Marathon this Sunday.

"Hospital consultants told me she wouldn't live until she was one so I got a second opinion from my GP who gave me exactly the same news," said Helen, 49.

"But I didn't believe them. I believed she would survive for longer and I was proved right.

"She has reached all of the milestones they said she wouldn't.

"She attends a special school, is walking and talking, and is learning to read. She is so determined and doesn't ever give up."

Georgia was born in Withybush Hopstial in August 2001 following an emergency caesarean and was transferred to the neonatal unit at the University Hospital of Wales, Cardiff.

She was then diagnosed with Kabuki Syndrome by her consultant, which can cause varying degrees of developmental delay and intellectual disability.

"Everything happened so quickly. I didn't get 'Congratulations' cards like most new mums," said police officer Helen.

"But now I can look back and see how well she's done.

"She's full of fun and is a really chatty, outgoing person who mothers all the kids in her school."

Georgia's condition means she has a number of health issues including scoliosis, a heart defect and development problems.

Helen added: "When her health dramatically improved and we no longer needed Ty Hafan's services we had mixed emotions as the support we received was phenomenal.

"I have done 10k runs before but never a half marathon - but I'm excited."

Helen will be joined on the run by her son Ryan, 20, and daughter Loren, 24.

CAPTION(S):

Helen Davies with her daughter Georgia Neilson who was given just 12 months to live when she was a baby after being diagnosed with Kabuki Syndrome

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Publication:South Wales Echo (Cardiff, Wales)
Date:Oct 2, 2014
Words:388
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