Recruiting American Indian participants for a genetic epidemiologic study.
This analysis is based on recruitment of cases, controls, and prospective study participants. Approval for the study has been given by relevant Institutional Review Boards. Cases/controls are identified using the electronic records system at the local Indian Health Service hospital. Potential participants were given a brief description of the project and if agreeable, met for formal informed consent. Much effort has been made to publicize the project to the community.
To date, 76 cases, 90 controls, and 42 cohort participants have been recruited. During the past 28 months, 393 individuals have been identified and contact information was adequate for 309 (78.6%), 246 were given basic information, 212 have had full consent interviews, and of these 1.4% opted not to participate. Travel was required to recruit 75.3% of retrospective participants.
When recruiting potential participants in Indian Country, traveling to their homes appears more effective and efficient. Advertising efforts have been questionable in their effectiveness. Having local individuals as recruiters seems to be a very important component of the process.
Melanie A. Nadeau *, Lyle G. Best
Dept of Natural Sciences, Turtle Mountain Community College, Belcourt, ND 58316
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|Author:||Nadeau, Melanie A.; Best, Lyle G.|
|Publication:||Proceedings of the North Dakota Academy of Science|
|Date:||Apr 1, 2008|
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