Rare Diseases Act is approved by Senate Committee-more work to be done! (Legislative Update).
The Rare Diseases Act of 2001 (S. 1379), introduced by Senators
Edward Kennedy (D-MA) and Orrin Hatch (R-UT) on August 3, was
unanimously approved by the Senate Committee on Health, Education,
Labor, and Pensions in an executive session on October 16, 2001. The
legislation would give statutory authority to the existing Office of
Rare Diseases at NIH and increase federal funding for the ORD and for
the FDA's Orphan Product Research Grants program. The bill must now
be marked up and put before the full senate for a vote. It is urgent to
write to your senators to advocate the passage of this important bill!
For contact information, please visit the senate Web Site: