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Rare Diseases Act is approved by Senate Committee-more work to be done! (Legislative Update).

The Rare Diseases Act of 2001 (S. 1379), introduced by Senators Edward Kennedy (D-MA) and Orrin Hatch (R-UT) on August 3, was unanimously approved by the Senate Committee on Health, Education, Labor, and Pensions in an executive session on October 16, 2001. The legislation would give statutory authority to the existing Office of Rare Diseases at NIH and increase federal funding for the ORD and for the FDA's Orphan Product Research Grants program. The bill must now be marked up and put before the full senate for a vote. It is urgent to write to your senators to advocate the passage of this important bill! For contact information, please visit the senate Web Site:
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Publication:The Exceptional Parent
Article Type:Brief Article
Geographic Code:1USA
Date:Dec 1, 2001
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