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RSA regional head injury centers: a resource list.

Four of the RSA funded TBI regional centers have already developed or are in the process of developing various types of resources which the public would find helpful and of interest. The two new centers have not developed any resources to date but want the public to know their plans for resource development and distribution. The six centers and their specific resources are listed below.

Comprehensive Regional Traumatic Brain Injury Rehabilitation and Prevention Center (TBI-NET) Mt. Sinai Medical Center, 1 Gustave New York, Ny 10029 Telephone: (212) 241-7917

1. All the King's House and All the King's Men.

A 16 minute video on prevention of TBI especially among the pediatric/young adult population, a manual with handouts available for general audiences; includes information for trainers on TBI. This video is available in English and Spanish. Video: $30.00. Video and manual: $40.00. Order directly from: Diana Twist, Ph.D., Section of Physical Medicine and Rehabilitation, Norwalk Hospital, Norwalk, CT 06856.

2. Head Injury: What Educators Need to Know-A Guide for Educators/Special Educators.

The information in this guide for educators/special educators follows Head Injury: What Educators Need to Know--An Overview Guide and is intended for classroom teachers. After reviewing, the training resource manual, classroom teachers will gain an increased awareness and understanding of students with TBI and the role of teachers in the education process. $10.00 (includes shipping and handling).

3. Head Injury: What Educator's Need to Know--A guide for School Nurses.

The information in this guide follows the overview of traumatic brain injury (TBI) and is intended for school nurses. After reviewing this training resource manual, school nurses will gain an increased awareness and understanding of students with TBI and the role of nurses in the education process. $10.00 (includes shipping and handling).

4. Head Injury: What Educator's Need to Know--A Guide For Social Workers, Educational Consultants, Psychologists, and Speech/Language Pathologists.

This resource manual is a companion to the Overview Guide. While the companion overview guide provides background information on traumatic brain injury, the training resource manual is devoted specifically to family issues, school reentry,, assessment, program planning, implementation, and Individual Education Plan (IEP) development for the above mentioned personnel. $10.00 (includes shipping and handling).

5. Head Injury: What Educators's Need to Know--An Overview Guide.

A resource manual designed to provide an overview of TBI to psychologists, social workers, educational consultants, speech language pathologists, and special education and regular education teachers. $10.00 (includes shipping and handling).

6. Head Injury: What Educators Need to Know--A Trainer's Guide

Since the early 1980's, students who have suffered traumatic brain injury are surviving in greater numbers due to progress in medical technology. These children eventually return to some educational placement which may necessitate special accommodations because of their cognitive, communicative, social, emotional, and/or motor deficits. To best meet all of their needs, educators must be knowledgeable about assessments, placements, and teaching strategies that will enable these students to become successful learners. This manual could be a valuable tool for presenters when training school personnel. The manual is divided into three sections: overview, assessment, and strategies. It is complete with overheads and slides (for those who prefer this medium). This manual can be borrowed from New Jersey Head Injury Association on a time limited basis.

7. Head Injury: What Families Need to Know.

The information in this guide will be a resource of families when reentering their child back into school after a TBI. $10.00 (includes shipping and handling).

8. HELPS: An Acronym for Head Injury Assessment.

A 5-1/2 [inches] X 11 [inches] card with a screening device on side one and directions for administrations on side two; useful to screen for TBI in a variety of settings. You can receive two cards free of charge. After that, $50.00 will be charged for every 12 ordered (includes postage and handling).

9. HELPS: Spanish Translation.

Same fee as for English version.

10. National Council of State Legislatures. "What State Legislators Need to Know About Traumatic Brain Injury," By Barbara Wright.

11. TBI-NET Newsletter Vol. 1, #1.

An overview of TBI-NET projects.

12. TBI-NET Newsletter Vol. 1, #2.

* Vocational Rehabilitation Caseload Analysis.

* Clients with TBI (an analysis of VR Caseloads in the states of NY, NJ, CT)

* Results of Substance Abuse Conference (highlights of presentations by Drs. Sporadeo, Kruetzer, Geller, and Ulrich)

13. TBI-NET Newsletter Vol. 2, #1.

* Education on HIV and Aids for TBI Survivors

* The Needs of College Students with Brain Injuries (an analysis of a survey of college students who have experienced a TBI; includes demographic data and recommendations)

14. TBI-NET Newsletter Vol. 2, #2.

* Social Security Work Incentives (work incentives explained in relation to TBI)

* Natural Setting Behavior Management (snynopsis of NSBM project with case studies completed to date)

* HELPS: An Acronym for Head Injury Assessment (explanation of the development of the HELPS screening tool to identify individuals for further TBI assessment; HELPS screening device included)

15. TBI-NET Newsletter Vol. 3, #1.

* Findings of the TBI Model Systems of Care

* The Development of a Comprehensive Inpatient Rehabilitation System

* Some A B C's of the HIA-ILC Linkage Project: The Independent Living Movement and the Rehabilitation Act

* Housing Options for Individuals with TBI

* TOOLS for Community Living: A Handbook for Survivors of Traumatic Brain Injury

* National Head Injury Foundation Announces Availability of "The 1993 National Directory of Head Injury Rehabilitation Services"

16. Tools for Community Living.

A handbook for survivors in a question and answer format; outlines process for applying for benefit programs.

17. Traumatic Brain Injury and Substance Abuse; A Reference and Resource Guide.

Compendium with overview of the literature as well as resources on chemical dependency for TBI professionals and consumers. $30.00 (includes shipping and handling).

The following resources will be available soon.

18. How--To.

Manual on behavior management for rehabilitation professionals. Assessment and treatment of behaviors; challenges in the home and/or other appropriate natural settings.

19. How to Include Persons with TBI into Employment and the Community.

To provide a better understanding by VR counselors of neuropsychological assessment and vocational implications, to reassess and redefine the traditional model and demonstrate the importance of the VR linkage with community resources.

20. Substance Abuse and TBI: Information for Families.

Series of brief information sheets on substance abuse and TBI designed for family members.

21. To Your Health: A wellness Workbook for Individuals with Traumatic Brain Injury.

A manual for survivors which stresses wellness concepts and whole health in relation to community living and substance abuse. Materials to be made available at the cost of reproduction, shipping, and handling.

The following will be available in 1994.

22. A Case Load Analysis of Vocational Rehabilitation Consumers with TBI.

This publication will discuss the results of several studies that were conducted on vocational rehabilitation consumers with TBI. Several years of descriptive data using information obtained from the federal I-90 form are presented for New York and Connecticut. In addition, the results of followup interviews with former vocational rehabilitation consumers with TBI are presented.

23. A Family Guide to Behavioral Management.

Teaching the caregivers behavior management principles and techniques in a practical fashion.

24. A Manual for Vocational Mentoring Programs for TBI Survivors.

How to select, train, and use mentors on the job, on training sites, or in educational settings.

25. Analysis of case studies based on cases reviewed by VR Systems in Grand Rounds.

Review of interventions and strategies utilized to advance the VR process for people with TBI towards eventual employment.

26. Community Options.

Case examples of approaches to cost effective community living.

27. Journal of Head Trauma Rehabilitation.

Public Policy. To be published in May 1994 issue.

28. Public Policy Papers.

* The Development of a Comprehensive Service and Support System for Individuals with TBI.

* Developing Regional Networks for Individuals with TBI.

* Developing Housing Alternatives for Individuals with TBI.

* Increasing the Effectiveness of the Vocational Rehabilitation System for Individuals with TBI.

29. The Needs of College Students With TBI: Handbook For College Counselors.

This handbook will describe the needs of college students with TBI. In addition, it will discuss how college personnel can assist students with TBI to successfully negotiate their college experience.

Midwest Regional Head Injury Center for Rehabilitation and Prevention (MRHICRP) 448 East Ontario Chicago, IL 60611 Telephone: 1-800-252-8247

1. Alcohol and Drug Abuse Prevention for People with Traumatic Brain and Spinal Cord Injuries.

This manual, designed for use by rehabilitation professionals and people who sustained traumatic injuries and their families, presents several prevention strategies, including information and life skills. Separate resources for staff and survivors and their families are included. (The manual is provided at cost of reproduction--$50.00.)

2. Directory of Centers for Independent Living--Services for Persons with TBI.

As a result of the mail and telephone survey, this directory provides a comprehensive listing of Region V Centers for Independent Living (CIL's) and identifies existing independent living services. (Materials to be available at cost of production--$15.00.)

3. Results--Mail and Telephone Surveys of Services for Persons with Traumatic Brain Injury, provided by Regional Centers for Independent Living.

The Center conducted a mail and telephone survey of all centers for independent living (CIL's) in Region V. This report examines the types of services offered by CIL's for people with TBI. (Report is available at cost of reproduction--$50.00.)

4. Self-Study Guide for Vocational Rehabilitation Counselors--Part I: Traumatic Brain Injury: Fundamentals for the Future Part II: Traumatic Brain Injury: Practical Solutions for Functional Problems.

Resource manuals developed by the Midwest Center for state vocational rehabilitation counselor training in Region V revised into a self-directed study guide for rehabilitation counselors. Guide addresses medical aspects, family issues, substance use, functional assessment, job development, and many other topics related to successful employment outcomes. Includes objectives, pre/post tests, glossary, and bibliography of selected readings. Target date for diistribution is early 1994. (Materials to be available at cost of reproduction.)

5. Who Are They Now?

Video of five individuals with brain injuries who share their stories of recovery from trauma. Moving descriptions are given by these individuals on the impact of the injury, where they are now, and their hopes annd expectations for the future. Emphasis on the psychological and vocational adjustment and their experiences in progressing towards community reintegration. For rehabilitation professionals, families, and persons with head injuries. $75.00.

The following projects are under development.

6. Catalog of Selected Traumatic Brain Injury Education Materials and Resources for Rehabilitation Counseling Educators, Their Students and Vocational Rehabilitation Professionals.

an annotated guide for journal articles essential information for the vocational rehabilitation student or practitioner with an interest in TBI. Target distribution date: August 1993. (Materials to be available at cost of production: approximately $10.00.)

7. Computer-Based Training.

Three information modules addressing traumatic brain injury have been developed. Modules address neuroanatomy, medical aspects, functional assessment, and vocational implications and include information specific to family issues and supported employment. Each module is reviewed by an advisory panel and a consumer review panel and field tested. For rehabilitation and health care professionals and paraprofessionals. Target distribution date:1994. (Materials to be available at cost of production.)

8. Guide for Educating Employers About Traumatic Brain Injury.

A guide for job coaches and placement specialists which includes information on ADA for persons with TBI and business management practices. Content will be drawn from the results of extensive survey of expert job coaches and placement specialists. Feedback from employers and consumers is integrated throughout the guide. Target distribution date: fall 1993. (Materials to be available at cost of production.)

9. In Contact.

National consumer-targeted newsletter distributed by the Midwest Center. Addresses topics related to the rehabilitation and community integration of persons with TBI. No charge. Call center to request addition to mailing list.)

10. Job Coach Training Manual.

A collaborative effort between Midwest Center and the Rocky Mountain Regional Brain Injury Center that models a problem solving approach to job coaching with persons with TBI. Target distribution date: 1993 (Materials to be available at cost of production.)

11. Personal Care Assistants (PCA) Training Materials.

Instructional materials to train PCA's about TBI, and ways to effectively work with people with TBI. Additionally, instructional materials will be available to teach PCA management skills to consumers and family members. (Materials to be available at cost of production.)

12. Proceedings of Neuropsychological Rehabilitation Consensus Conference of May 1993.

This monograph contains the proceedings of a conference conducted to facilitate discussion of the definition, purposes, and goals of neuropsychological rehabilitation. Attendees included neuropsychologists, physicians, vocational rehabilitation specialists, survivors of TBI and their families, insurance industry representatives, and community service providers. Invited position papers, discussion, consensus statements and recommendations for future directions are included. This document will be published as a monograph in a sceintific journal in 1994.

13. Regional Action Plan--Community Living Issues in TBI Planning.

Results-oriented action plan for achieving increased independence and consumer choice for individuals with TBI in Region V. Includes summary of regional consensus conference and information obtained from consumers, state agencies, and numerous social service providers.

14. Region V Directory of Injury Prevention Programs.

This directory, which will be available in early autumn 1993, will include a comprehensive listing of injury prevention programs in Region V. (Materials to be available at cost of production.)

15. Region V Facility Directory.

A comprehensive database which lists by state facilities providing services for people with TBI. Includes a listing of services, number of people served in the past year, and funding sources accepted. (Materials to be available at cost of production.)

16. Vocational Assessment Protocol (VAP).

The University of Wisconsin-Stout in conjunction with the Midwest Center is currently developing a protocol to be used in the vocational evaluation of clients with TBI. The protocol has been designed to be used in conjunction with other rudiments of what is needed for a comprehensive vocational assessment. Still in an experimental form and being refined, final revisions of the VAP will be available during the end of 1994 from the University of Wisconsin-Stout. (Materials to be available at cost of production.)

Ohio Valley Center for Head Injury Prevention and Rehabilitation (OVCHIPR) 1335 Dublin Road, Suite 50-A Columbus, OH 43215-1000 Telephone: (614) 481-0611

As one of the two newly funded regional head injury centers, the Ohio Valley Center began operation in December 1992. While materials and resources are only at an initial stage of development, the following materials are expected to be available in 1994:

1. Case Management Manual.

This publication will address assessment, planning, and monitoring of services for persons after TBI.

2. Leadership Manual for Survivor Councils.

This will assist state associations in the formations and ongoing development of their survivor councils.

3. Model Program of Community-based Substance Abuse Treatment after TBI.

This technical manual will be available for facilities wanting to establish such a program.

4. The Resource Bank.

For use by state associations, this will be a compilation of various projects for and by survivors. This resource will be updated annually.

5. The Relationship Between Traumatic Brain Injury and Substance Abuse.

This phamplet will be written for consumers and will identify additional risks and recommend preventive measures.

The following projects are scheduled for release in 1995 and 1996.

6. Group Leadership Training for TBI Support Groups.

This training will be available to local support groups and state associations.

7. Programmatic Approach for Addressing Substance Abuse.

This will be developed for use by rehabilitation hospitals, vocational rehabilitation counselors, and out-patient rehabilitation clinics.

8. Substance Abuse and TBI Prevention Campaign Kit.

Kits will be available to state associations.

9. A Support Group Leadership Training Curriculum.

This curriculum will also be developed for support group leaders.

Rocky Mountain Regional Brain Injury Center (RMRBIC) 1990 Grant Street, Suite 830 Denver, CO 90203 Telephone: (303) 894-7556

1. A Conceptual Comprehensive System of Service Delivery for Persons with TBI in Region VIII.

This document was developed to describe a continuum of service delivery to individuals with TBI. For use as a comprehensive model system to identify gaps in each state's service delivery system and to develop and implement those programs or services that do not currently exist. This document is available through the Rocky Mountain Center for $2.00 (includes shipping and handling).

2. American Congress of Rehabilitation Medicine (ACRM) Curriculum.

This is a series of 13 video (not close captioned) and audio cassettes which cover the TBI educational curriculum developed by ACRM. The series covers: Epidemiology and the Economics Scope of TBI: Prevention and Sports Concussions; The Brain Injury Assessment Team; Neurobehavioral Consequencies of TBI; Pharmacological Management; Medical Interventions and Diagnositic Tools; Post Traumatic Headache; Impact on the Family and Persons with TBI; Rehabilitation; Societal Re-entry; and Legislation, Ethics, and the Economics of Care.

Continuing education units can be awarded for checking out and listening to these tapes. The tapes can also be purchased through the Centennial Area Health Education Center: (303) 351-0755.

3. "Best Practices" Manual for Job Coaches.

A manual to aid service providers in understanding the special types of employment-related supports required by survivors of TBI. In collaboration with the Midwest Regional Center, the Rocky Mountain Center will primarily prepare the text and the centers will jointly field test the manual with working supported employment specialists. The first draft is scheduled for completion by fall 1993. After field testing, a final version will be prepared and published. We tentatively plan to distribute any profits to the regional state head injury associations. No cost has been established yet.

4. Brain Scan.

This publication is the Rocky Mountain Center's newsletter, which is published tri-annually. There is no charge.

5. Guidelines for Establishing State TBI Task Forces.

Outline of steps to establishing a state TBI task force. Cites experiences of several states and provides general guidelines and considerations for developing task forces responsive to TBI. Available through the Rocky Mountain Center at no cost.

6. Functional Outcome Rating Scale.

Developed by the center's Independent Living and Long-Term Supports Advisory Committee, this scale is an objective functional measurement to monitor progress in acquisition of independent living skills. Helps individuals with TBI and their significant others in assessing the functional implications of clinical theory. Available at no cost.

7. Legislative Resource File.

Listing of TBI relevant legislation across the United States. Cross references major topic with state of origin. The table of contents listing is currently available and is being used with state TBI task forces and policy makers who wish to review other states' efforts in TBI and mode their legislation. The table of contents listing is available at no cost.

8. Legislative Response Network.

This document was developed for the State Head Injury Foundation (SHIF) directors in the Rocky Mountain Center's region to provide a tool for understanding the legislative process, how to approach and work with legislators, how to organize their communities to advocate for change, etc. Available through the Rocky Mountain Center for $3.00 (includes shipping and handling).

9. Local Support Group Model.

This document was developed for the SHIF directors in the Rocky Mountain Center's region to provide a tool for directors and support group leaders to use in evaluating and developing support groups. Available through the center for $3.00 (includes shipping and handling).

10. Marketing Plan and Budget Model.

Developed for the SHIF directors in the Rocky Mountain Center's region to provide a model marketing plan and accompanying budget for use in educating the public about TBI and their resource center, this document is available through the center for $2.00 (includes shipping and handling).

11. Model System of Case Management.

This position paper--a joint project of the RSA centes --outlines a philosopical basis and theoretical model for providing and funding of case management to individuals with TBI.

12. Peace Officer Training Curriculum.

This curriculum was developed to educate law enforcement personnel about TBI. It includes a series of "hands on" activitiesd entitled the "Empathy Experience," developed by therapists at Mapleton Rehabilitation Center in Boulder, Colorado. It helps participants to better understand brain injury and its complications--from swallowing difficulties to cognitive overload. The curriculum also includes peace of officer's risks for sustaining a TBI, mechanisms of injury, and the importance of aggressive enforcement of seatbelt, child safety restraint, drunk driving laws, etc. A "Jeopardy" game is also included. Available through the center free of charge.

13. Rehabilitation Services Dataset.

This survey instrument was developed through the collaboration of original four RSA funded regional traumatic brain injury centers to gather data on people with TBI who are being served by the programs of these centers. The intent is to design and establish a national database consisting of comprehensive information on demographics, history of injury, services received, and current post-injury status of respondents. Availablel through this center and the other three original centers at no cost.

14. Regional Family Guide.

This guide, developed by the Colorado Head Injury Foundation and funded by the Rocky Mountain Center and the Colorado Trust, consists of articles written by survivors, family members, and professionals and is an excellent information and resource tool for newly injured survivors, their family members, and other interested parties. Available through the Colorado Head Injury Foundation (303-730-7112) for $5.00 (includes shipping and handling).

15. Regional Survey of TBI Policy and Legislation.

This document was developed to identify existing state public policies and/or legislation pertaining to TBI in the seven states (Colorado, Montana, New Mexico, North Dakota, South Dakota, Utah, and Wyoming) in Region VIII. This information was gathered to assist the states and the Rocky Mountain Center to identify, develop, implement, and evaluate TBI public policy and/or legislation is the region. Available from the center at no cost.

16. Self Advocacy for Independent Living (S.A.I.L.) Manual.

Developed by contract with the Colorado Head Injury Foundation (CHIF) Case Management Subcommittee, this manual was designed to train individuals with TBI, family members, and other surrogate decision makers to become their won advocates and advocate for needed TBI programs and services and improve the availbility, accessibility, and affordability of these programs and services. Available thruogh CHIF at $28.50 for survivors and family members in the Rocky Mountain Center's region and $48.50 for everyone else. An Operatonis Manual has been developed to accompany the training provided through this manual.

17. "Think Twice" Video.

This video is used as part of the Rocky Mountain Center's curriculum for educating peace officers about traumatic brain injury. It encourages them to stop and think before assuming that a person is initoxicated if his/her speech and/or gait is different. Available through the center or the National Head Injury Foundation for $30.00.

18. Training Curriculum for Case Managers/Training Curriculum for Peer Service Coordinators.

A model training curriculum for case managers is under devleopment. This packet will include specific modules and materials related to TBI case management issues with a community-based focus. The outline utilized for training the peer service coordinators includes a description of the format for internship training and class-room instruction and is available at no charge.

Southeastern Comprehensive Head Injury Center (SCHIC) 1521 11th Avenue South Birmingham, AL 35294-4551 Telephone: (205) 934-2442

The Southeastern Comprehensive Head Injury Center (SCHIC), based at the University of Alabama at Birmingham, serves a region of high need and previously inadequate service availability. The Southeastern Center will act to describe, refine, and disseminate successful programmatic components and related materials throughout Region IV. The components of this center include prevention, trauma/acute care, medical rehabilitation, prevocational and vocational rehabilitation, and survivor and family support, each of which will be surveying needs, compiling currently existing services and information, developing new resource materials, and disseminating both programs and materials.

1. Medical Rehabilitation.

The TBI Model Technical Assistance Center will be established to produce a computer data base, cross-referenced by profession, area of expertise, and geographic location, with service available in Alabama by January 1994 and regionally by January 1996. Using a recently developed software program, data will be gathered and compiled in a TBI registry with initial pilot program to monitor quality assurance. Later, technical assistance in programs and materials will be used to support Region IV TBI registry development.

2. Prevention.

A prevention data base will be established with programs for collection, inventory, and assessment of primary, secondary, and tertiary head injury prevention. Region-wide identification of existing materials will be conducted, including information of resource agencies, programs, and persons with assessment conducted to evaluate the effectiveness of the content, quality, psychosocial impact, and behavior change potential for target audiences. Materials will be revised, refined, or adapted with semi-annual computer directory updates and disseminated through a Regional Head Injury Prevention Workshop in 1996. The end product of secondary prevention resources will be a compendium for the first responder and acute case, triae, and transport protocols for persons with suspected or confirmed TBI. These materials will be disseminated to taruma and acute care personnel, with special emphasis on rural and medically underserved areas. The tertiary project will utilize the existing materials and curricula from the RSA-sponsored Comprehensive Head Injury Rehabilitation and Prevention Centers in Chicago and New York in acquiring and adapting materials addressing substance abuse, particularly in culturally distinct high risk populations. End products will include 1) a media-oriented, TBI prevention public awareness package and briefing book; 2) an overview of effective primary, secondary, and tertiary prevention programs; 3) guidelines on the use of materials in conducting programs for the public and for persons who will become instructors (i.e., training future trainers); and 4) specialized training on trageting decision makers and effecting policy change as important elements in broad-based prevention-driven educational programs.

3. Pre-Vocational Services and Vocational Rehabilitation.

The Interactive Community Based Model (ICBM) of effective and efficient vocational rehabilitation service delivery addresses needs of employability, independence, and community integration for people with TBI. A designated traiing and information specialist will meet with each state training coordinator to conduct and review needs assessment and support materials. Working with the Regional Rehabilitation Continuing Education Programs (RRCEPS) at allied universities, a resource materials clearinghouse will be established as a conduit to disseminate materials to vocational rehabilitation personnel throughout the region through regular mailings, in response to assistance requests, and in conjunction with workshops and other training.

4. Survivor and Family Support.

The purpose of this component is to strengthen the capabilities of head injury consumer groups, family support groups, and advocacy organizations in addressing nonprofessinal TBI support needs and fostering positive community change throughout the region. An Information and Family Support Linkage Program will be used to provide timely and accurate information to TBI survivors and family members on everday problems and practical solutions associated with community reentry after TBI with a model information and referral service (1-800-433-8002) providing information on specific types of problems and a family support volunteer training program. Working with the RSA-supported Regional Independet Living LongTerm Training Project at Auburn University in Alabama, curriculum will be developed and then disseminated in conjunction with the promotion of empowerment of persons with TBI and family members. Activities will be further coordinated with IDRR-funded Region IV Americans with Disabilities Act programs, Barrier-Free Environments in Raleigh, North Carolina, and regional RSA-funded Client Assistance Programs as well as with selected experts on law and public policy. Mailings and newsletters are expected by January 1995, with a conference on empowerment scheduled for 1996.

5. Trauma and Acute Care.

Although substantial informational resources are available for the health professional, these are not always widely accessed in an efficient or effective manner. Therefore, a directory and compendium of professionally focused readings, journals, and texts will be established and huosed at a Southeastern Center library. Bi-monthly bulletins will be sent to Region IV healtchare professionals providing relevant information on educational opportunities and professional development. TBI publications awards of $500.00 each in three publication categories will serve as a mechanism for promoting and recognizing contributions to the literature by practicing professionals in the region.

1. Advocacy Manual.

A manual on advocacy information, resources and techniques. Specific topics include: how to communicate with doctors, how to selet primary issues, how to affect legislation, and how to utilize the media. Cost: $15.00.

2. Alcohol, Drugs, and TBI.

A training module addressing the problem of substance abuse in the TBI population and guides to effective intervention and treatment. MMultmedia: illustrations suitable for preparing, slides or transparencies, handouts, and script. Suggested audiences: substance abuse counselors and health professionals working with persons with TBI. Approximate training time: 1 hour: $8.00.

3. Brain Injury Glossary.

A glossary of terms and definitions of interest to family members and survivors of brain injury, case managers, attorneys, insurance representatives, staffs of healthcare facilities and governmental agencies, and representatives of local, state, regional, and national head injury organizations. Includes general anatomical, behavioral, medical, and pathological terms and definitions, those related to interpretation of the ADA, those related to insurance policies, and listing of medications commonly used by the person with brain injury. Softcover, 42 pages. $9.50.

4. Changing Attitudes: Addressing the Greatest Barrier to Independent Living for Persons with TBI.

A multimedia training module addressing attitudinal barriers encountered by persons with TBI, this module includes articles, illustrations for making slides or transparencies, and handout materials. Target audiences: service providers, employers, community agencies, and survivors and family members. Approximate training time: 1 hour. $3.50.

5. Checklist for Writing Neuropsychological Reports in Functional Terms for Vocational Rehabilitation.

A checklist and training manual to be used by psychologists/neu-ropsychogists in providing vocational rehabilitation counselors with functional data on clients with traumatic brain injury. 20 pages. $2.50.

6. Comprehensive Bicycle Helmet Campaign Guide.

A step-by-step guide to assist Parents and Teachers Associations in developing a bicycle helmet campaign for young children. Includes tips on bicycle safety and an explanation of the need to protect bicycle riders from traumatic brain injuries. 50 pages. No change.

7. Directory of Agencies and Organizations with Brain Injury Prevention Programs and Resources.

A directory of agencies and organizations with resources available to other organizations and individuals wanting to develop a brain injury prevention program. Lists national organizations and selected local programs or agencies that could provide technical assistance or materials, such as videos, curriculum, handouts, posters, etc. Includes addresses, phone numbers, and a brief description of the type of resources or programs available. 30 pages. No charge.

8. Employment of Persons with TBI: Reasonable Accommodations.

A booklet addressing the Americans with Disabilities Act, Title I-Employment, and "reasonable accommodations" for persons with TBI. Contains descriptions of various congnitive and behavioral deficits and appropriate vocational interventions which allow for competitive employment. 10 pages. No charge.

9. Guide Booklet on Traumatic Brain Injury in Children and Adolescents.

Specific topics/issues related to children and adolescents compiled in booklet form and suitable for distribution by state and local head injury chapters. Target audience is educational professionals, but the booklet also addresses simple "how to" lists for parents (e.g., how to access special education services in your shcool). 25 pages. $6.00.

10. Guidelines for Choosing Community-Based Programs for Persons with Traumatic Brain Injury.

This booklet provides information on types of community-based programs and resources available to persons with TBI. Also included are standards for community-based programs/resources, evaluating these programs/resources, and advocacy strategies for services and funding. Suggested audience: case managers, advocates, families, survivors. 10 pages. No charge.

11. Instructional Institute on Brain Injury.

Videotapes (VHS, 1/2 [inches]) on the effects of traumatic brain injury and the implications of such injury for those providing rehabilitation services to the survivor and members of the family. A training module devleoped for use with vocational rehabilitation counselors, special education faculty, case managers, independent living counselors, professionals from community service agencies, survivors of TBI and their family, medical professionals, policy makers, and rehabilitation administrators. Designed to prepare service providers to work more effectively with the recipients of their services and to promote the involvement of consumers in the design and implementation of service delivery systems. Specific topics include: overview of TBI, treatment and recovery; medical aspects, pharmacological issues, compensatory mechanisms; transition to school; vocational evaluation, principles of training; and psychosocial issues. Includes manual of course outlines and supplementary information. Approximate training time: 8 hours. $100.00.

12. Social Security Benefits for Persons with Traumatic Brain Injury.

Booklet designed for persons assisting the survivor of TBI in accessing Social Security Administration benefits. Describes SSI, SSDI, and Work Incentive programs as well as Medicare and Medicaid benefits available to persons with TBI. Also addresses functional evaluations needed to obtain eligibility, the appeals process, and current SSI guidelines. 58 pages. $6.00.

The following resources will be available soon.

13. Resource Guide for Information and Referral.

A loose-leaf resource directory for consumers, family members, and professionals to supplement existing information and referral systems throughout RSA Region VI. Each section of the guide covers issues and information relevant to children, adolescents, and adults. The guide contains an overview of traumatic brain injury, rights/advocacy information, SSI/SSDI and Medicaid Waiver materials, and information on independent/community living supports. 200 pages. Available in fall 1993. Cost is yet to be determined.

14. State Guidelines Manual on Traumatic Brain Injury (TBI).

State guidelines manual, prepared by the Southwest Regional Center and the Texas Education Agency, to help educators meet the challenge presented by the unique and diverse programming needs of students with traumatic brain injury. This booklet will be available for distribution in late August 1993. 150 pages. Cost is yet to be determined.
COPYRIGHT 1993 U.S. Rehabilitation Services Administration
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 1993, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

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Title Annotation:Rehabilitation Services Administration
Author:Mikrut, Sharon L.
Publication:American Rehabilitation
Article Type:Directory
Date:Jun 22, 1993
Previous Article:Outreach from the regional centers to improve services for brain injury survivors in the community.
Next Article:Preventable Brain Damage: Brain Vulnerability and Brain Health.

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