RESOURCES FROM THE ARROW SRHR KNOWLEDGE SHARING CENTRE.
WOMEN WITH DISABILITIES DISABLED, SEXUAL, AND REPRODUCTIVE
Frohmader, Carolyn and Stephanie Ortoleva. The Sexual and Reproductive Rights of Women and Girls with Disabilities. Issues paper. ICPD Beyond 2014--International Conference on Human Rights, July 1, 2013. http://wwda. 0rg.au/wp-content/uploads/2013/12/ issues_paper_srr_women_and_girls_ with_disabilities_final.pdf.
This paper examines the sexual and reproductive rights of women and girls with disabilities in the context of the future development agenda Beyond 2014 and Post 2015. It focuses on women and girls with disabilities, recognising that they are generally more likely to experience infringements of their sexual and reproductive rights. It examines some of the key sexual and reproductive rights violations experienced by women and girls with disabilities around the world.
Graduate Journal of Social Science (GJSS). Sexualities and Disabilities. GJSS, 12:1 (2016). Accessed August 21, 2017. http://gjss.org/sites/default/files/ issues/full/GJSS/020Vol%2012-1.pdf.
The special issue on "sexualities and disabilities" of this peer-reviewed interdisciplinary journal presents and addresses the under-represented and marginalised voices of people with disabilities and their sexuality. Papers in this special issue cover a wide range of topics including people disabled during war, mental disability, caregivers of soldiers disabled in war, representation of disability in art and culture, and juxtaposition of issues of people with disabilities with other marginalised communities such as people of diverse genders and sexualities.
Greenwood, Nechama W. and Joanne Wilkinson. "Sexual and Reproductive Health Care for Women with Intellectual Disabilities: A Primary Care Perspective." International Journal of Family Medicine, 2013:642472 (2013). doi:10.1155/2013/642472. https://www.hindawi.com/journals/ ijfm/2013/642472/.
This paper is based on a limited literature review related to six aspects of sexual healthcare of women with intellectual disabilities, including barriers to sexual healthcare, sexuality education, sexual abuse and consensual sexuality, contraception, screening for sexually transmitted infections and cervical cancer, and pregnancy and parenting. Besides providing background information on each of these topics, practice recommendations are made for primary care clinicians, using a rights-based framework.
Maurya, Abha Khetarpal. "Why it's vital for young people with disabilities to receive sex education." Blog post. Sexuality and Disability, July 25, 2017. Accessed July 25, 2017. http://blog. sexualityanddisability.org/2017/07/ sexed/.
As a counsellor for persons with disabilities and a disability rights activist, the author shares insights on the needs for young people with disabilities to receive sexuality education. She highlights that sexuality education would enhance the lives of young people with disabilities in terms of information, attitudes, values, relationships, and their interpersonal skills.
Naphtali, Kate and Edith Machattie. PleasureABLE: sexual device manual for persons with disabilities. Disabilities Health Research Network, 2009. http:// www.dhrn.ca/files/sexualhealthmanual_ lowres_2010_0208.pdf.
This manual is a practical resource for persons with disabilities and healthcare clinicians who work with these clients. It includes research, clinical expertise, and product information to aid with dialogue surrounding sexual and reproductive issues and disabilities. It provides examples and illustrations of potential options that can be introduced into the sexual practices of the individual.
Reproductive Health Matters (RHM).
Disability and sexuality: claiming sexual and reproductive rights. RHM, 25:50 (2017). http://explore.tandfonline. com/content/med/zrhm-disability-and-sexuality-special-issue.
This themed issue on disability and sexuality brings together a selection of articles that sheds light on the population of people with disabilities, focusing on their sexual and reproductive health and rights. Among the topics covered include access to family planning and sexual and reproductive health services, parenthood, sexual rights of the disabled, and female genital mutilation as sexual disability.
Sexual and Disability. Point of View (POV) Blogs, http://www. sexualityanddisability.org/.
sexualityanddisability.org is a website providing information to questions a woman with a disability might have--about her body, about the mechanics and dynamics of having sex, about the complexities of being in an intimate relationship or having children, about unvoiced fears or experiences of encountering abuse in some form.
Silvers, Anita PhD, Leslie Francis, JD, PhD, and Brittany Badesch.
"Reproductive Rights and Access to Reproductive Services for Women with Disabilities." American Medical Association Journal of Ethics, 18:4 (2016): 430-437. Accessed May 25, 2017. doi:io.iooi/journalofethics.2016.18.04. msoci-1604. http://journalofethics.amaassn.org/2016/04/msoc1-1604.html.
This article explores whether women with disabilities have equitable access to reproductive health services, including family planning, contraception, screening for sexually transmitted infections, maternal health services, and fertility services. It highlights that mistaken assumptions on women with disabilities with regard to SRHR can lead to misjudgements in the provision of reproductive care for women with disabilities.
TARSHI. "The Editorial: Disability and Sexuality." In Plainspeak, August 2017. http://www.tarshi.net/inplainspeak/ editorial-9/.
The key question of whether persons with disability can have or should have sex are rooted in the assumption that they lack the ability, competence, appropriateness etc., to do so. This is largely due to the perceptions of the world that are constructed to exclude them. However, efforts are made daily to build on valuing the diversity of experiences of persons with disability. Plainspeak's August issue articulates these complexities in realising the ideals of equal opportunity on the issues pertaining to accessibility and sexuality.
World Health Organisation (WHO) and United Nations Population Fund (UNFPA). Promoting sexual and reproductive health for persons with disabilities. WHO/UNFPA Guidance Note. WHO and UNFPA, 2009. https://www. unfpa.org/sites/default/files/pub-pdf/ srh_for_disabilities.pdf.
This guidance note addresses issues of sexual and reproductive health (SRH) programming for persons with disabilities. It is intended for SRH experts and advocates within UNFPA and WHO as well as those in other development organizations and partners. Those who address issues of family planning, maternal health, HIV and AIDS, adolescents, and gender-based violence (GBV) may find this information particularly helpful. SRH, in particular, deserves attention because these needs have been so widely and so deeply neglected. At the same time, the approaches discussed apply broadly to all aspects of health programming for persons with disabilities.
United Nations Economic and Social Commission for Asia and the Pacific (UNESCAP). Incheon Strategy to "Make the Right Real" for Persons with Disabilities in Asia and the Pacific. Bangkok: UN Publications, 2012. http:// www.unescap.org/sites/default/files/ Incheon%20Strategy%200%28English%29.pdf.
The Incheon Strategy builds on the Convention on the Rights of Persons with Disabilities and the Biwako Millennium Framework for Action and Biwako Plus Five towards an inclusive, barrier-free and rights-based society for persons with disabilities in Asia and the Pacific. This strategy will enable the Asia and Pacific region to track progress towards improving the quality of life, and the fulfilment of the rights, of the region's 650 million persons with disabilities, most of whom live in poverty. The ESCAP secretariat is mandated to report every three years until the end of the Decade in 2022, on progress in the implementation of the Ministerial Declaration and the Incheon Strategy.
LIST OF FILMS
ACCSEX is a 2013 film directed by Shweta Ghosh that explores notions of beauty, the "ideal body" and sexuality through four storytellers; four women who happen to be persons with disability. More on the film at http://www.filmsouthasia.org/ film/accsex/ and https://www.youtube. com/watch?v=nkh7gS9e7s8.
Dance Me to My Song, a 1998 Australian drama of a profoundly moving love triangle involving a woman with cerebral palsy, her abusive caretaker, and a young male companion. More on the film at https://en.wikipedia.org/wiki/Dance_ Me_to_My_Song and https://www. youtube.com/watch?v=tHILQNrhGxQ.
Margarita with a Straw, a 2014 film featuring a rebellious young woman with cerebral palsy, leaving her home in India to study in New York, who unexpectedly falls in love, and embarks on an exhilarating journey of self-discovery. More on the film at https://en.Wikipedia. org/wiki/Margarita_with_a_Straw and https://fmovies.is/film/margarita-with-astraw.kw7P9/wnwkj7.
Scarlet Road, a 2011 documentary follows the extraordinary work of an Australian sex worker, Rachel Wotton, who sells sex to clients with disability. More at https://en.wikipedia.org/wiki/ Scarlet_Road and https://www.youtube. com/watch?v=DMXjc_Ow4mg.
Sixth Happiness is a 1997 film about Brit, a boy born with brittle bones, who does not grow taller than four feet, and his sexual awakening as family life crumbles around him. More at https:// en.wikipedia.org/wiki/Sixth_Happiness and http://player.bfi.org.uk/film/watchsixth-happiness-1997/.
The Sessions, a 2012 film on a man on an iron lung who wishes to lose his virginity, and contacts a professional sex surrogate with the help of his therapist and priest. More at https://en.wikipedia.org/wiki/ The Sessions (film) and https://fmovies. is/film/the-sessions.v882/r4X790.
Bajracharya, Shreejana. "Women with Disability and SRHR." New Spotlight News Magazine, 107 (2016). Accessed May 23, 2017. http://www.spotlightnepal. com/News/Article/Women-withDisability-and-SRHR-Nepal.
Brindaalakshmi, K. "Right to Life: Has the sexual right of persons with psychosocial disabilities been forgotten?" Web article. Hidden Pockets, May 1, 2017. Accessed May 25, 2017. http://www.hiddenpockets.com/ right-to-life-has-the-sexualright-of-persons-with-psychosocialdisabilities-been-forgotten/.
Chandra, Prabha S. "The Bigger Picture: Love and Longing Inside the Bell Jar." In Plainspeak, 2 (2008). http://www.tarshi. net/index.asp?pid=103.
Dutch Coalition on Disability and Development (DCDD). Sexual and Reproductive Health and Rights and People with Disabilities in Low and Middle Income Countries. DCDD, 2016. http://www.dcdd.nl/wp-content/ uploads/2017/01/1611.SRHR_. DisabilityDCDD.pdf.
Garland-Thomson, Rosemarie. "Integrating Disability, Transforming Feminist Theory." NWSA Journal Feminist Disability Studies, 14:3 (2002): 1-32. https://www.english.upenn.edu/ sites/www.english.upenn.edu/files/ Garland-Thomson_Rosemarie_DisabilityFeminist-Theory.pdf.
Ghai, Anita. "The Bigger Picture: Sexuality and disability." In Plainspeak, 4 (2007). http://www.tarshi.net/index.asp?pid=125.
Human Rights Watch. Treated Worse than Animals. USA: Human Rights Watch, 2014. https://www.hrw.org/sites/ default/files/reports/indiaforUpload. pdf.
Li, Zhen and He Xiaopei. "Policy Audit: Sexuality and Disability in Policies Affecting Chinese People with Disabilities." Institute of Development Studies (IDS) Evidence Report 103. IDS, 2014. https:// opendocs.ids.ac.uk/opendocs/ bitstream/handle/123456789/5501/ ER103PolicyAuditSexualityand DisabilityinPolicies AffectingChinese People withDisabilities.pdf; jsessionid= BFD34A8E9E348BC398 FBE57811509E75? sequence=2.
McRuer, Robert. "As Good as it Gets: Queer Theory and Critical Disability." GLQ: A Journal of Lesbian and Gay Studies, 9:1-2 (2003): 79-105. http://cr.middlebury.edu/ amlit_civ/allen/2012%20backup/ scholarship/9.1 mcruer02.pdf.
Public Health Agency of Canada. Questions & Answers: Sexual Health Education For Youth With Physical Disabilities. Public Health Agency of Canada, 2013. http://sieccan.org/wp/wpcontent/uploads/2015/05/phac_sexualhealth-education-physical-disabilities.pdf.
Ryan, Frances. "Domestic Violence and Disabled Women: An Abuse of Power." The Guardian, November 19, 2012. https://www.theguardian.com/ society/2012/nov/19/domestic-violence-disabled-women-abuse.
Sexual Health and Family Planning Australia (SH&FPA). Improving Sexual and Reproductive Health for People with Disability. Report from the SH&FPA Disability Special Interest Group, 2013. https://www.shinesa.org.au/media/ product/2015/04/.
Spratt, Joanna M. A Deeper Silence:
The Unheard Experiences of Women with Disabilities and Their Sexual and Reproductive Health Experiences:
Kiribati, the Solomon Islands and Tonga. United Nations Population Fund Pacific Sub-Regional Office, 2012. http:// countryoffice.unfpa.org/pacific/drive/ ADEEPERSILENCE.pdf.
Talking About Reproductive and Sexual Health Issues (TARSHI). Sexuality and Disability in the Indian Context. Working Paper. TARSHI, 2010. http://www.tarshi. net/downloads/Sexuality_and_Disability_ in_theJndian_Context.pdf.
United Nations Population Fund (UNFPA). A Situational Analysis Of The Sexual and Reproductive Health of Women With Disabilities. UNFPA, 2009. http://milanoschool.org/wp-content/ uploads/2012/06/UNFPA-Report2.pdf.
World Health Organisation (WHO). World Report on Disability. WHO, 2011. http://www.who.int/disabilities/world_ report/2011/report.pdf.
All ARROW publications from 1993 to the present can be downloaded at http:// arrow, org.my/publications-overview/.
Compiled by Seow Kin Teong
Senior Programme Officer, ARROW
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|Author:||Teong, Seow Kin|
|Publication:||Arrows For Change|
|Date:||Dec 1, 2017|
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