Philippines : HAZUR exists to help hemophiliacs.
Quinalayo said HAZUR has programs and services to help people with hemophilia and their loved ones understand the illness, manage their lives through treatment and recovery, and find the emotional support they need.
HAZUR exists to help hemophiliacs
We formally introduce our association to you, Quinalayo announced during the hemophilia awareness campaign held recently in Pagadian City. Quinalayo said the treatment of the lifelong hereditary disorder is very expensive that is why they decided to form an association to help the hemophiliacs in the province. The HAZUR is now covering the following provinces- Zamboanga del Sur, Zambaonga del Norte and Misamis Occidental and we have accommodated already 15 hemophilia cases, the 25-year old hemophiliac said.
People with hemophilia bleed frequently
Dr. Catherine Aguisanda, the resource speaker from the Zamboanga del Sur Medical Center, said hemophilia is a life-threatening disease. Aguisanda said people with severe hemophilia usually bleed frequently into their muscles and joints. They bleed one or two times a week where bleeding is spontaneous. Those who suffer with moderate hemophilia bleed less frequently, about once a month.
Treatment for hemophilia is very effective, Aguisanda said saying that the missing clotting factor is injected into the bloodstream using a needle. Bleeding stops when there is enough clotting factor, she added. Bleeding should be treated as quickly as possible. Quick treatment will be induced to prevent damage to the joints, muscles nd organs, Aguisanda explained.
The doctor said that without treatment, most children with severe hemophilia will die at young age. An estimated 400,000 people worldwide are living with hemophilia and only 25% of them received adequate treatment.
Hemophilia among most expensive diseases
Meanwhile, Quinalayo said having hemophilia disorder is very difficult because a patient needs money to buy factor concentrates. People with hemophilia have low levels of either factor VIII (8) or factor IX (9). The lower the amount of the factor, the more likely that bleeding will occur which can lead to serious health problems.
To acquire the factor 8 or factor 9, the patient should buy at least four vials where each vial costs around P15, 000 to 20, 000, he said. Andresito Calunsag, Jr. of the municipality of Midsalip who is diagnosed with severe hemophilia (Hemophilia A) said every time he bleeds he feels sad.
Every time I experience bleeding, I am sad because I will be needing money to buy factor 8 concentrates to replace the missing blood clotting factor in my body, Calunsag said in the vernacular. His treatment has affected his time, energy, concentration on his work and ability to get around.
HAZUR saves lives
But with the existence of the HAZUR, he is now happy because the group provides them the needed factor 8 and 9 concentrates for free. He said a private organization in the United States of America donated the medicines to them. I am very happy that HAZUR was created to help save our lives, he concluded.
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|Date:||May 8, 2018|
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