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A WOMAN with a rare killer disease has had her life transformed by the world's most expensive drug.

Lesley Loeliger, from Glasgow, was given 10 years to live after being diagnosed with bone marrow disease paroxysmal nocturnal haemoglobinuria.

The condition left her unable to walk upstairs, dress herself, or even turn over in bed. But it emerged last night Lesley has been given a new lease of life by "orphan drug" Soliris, at a cost of PS250,000 a year.

The term "orphan drug" refers to medicines developed at a very high cost to treat a small number of people.

Lesley and eight others are getting Soliris because the Scottish Government accept there is no other suitable treatment.


TREATMENT J Lesley Loeliger
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Publication:Daily Record (Glasgow, Scotland)
Date:Jan 17, 2013
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