National Fibromyalgia & Chronic Pain Association on the Move.
Jan Chambers, NFMCPA Founder and President stated that, “During the past few years significant advertising campaigns have raised some public awareness about fibromyalgia but most people outside of those who have it, and their families and friends, still do not know what it is and how it affects people. Unlike knowledge of arthritis and other chronic pain conditions the general public only knows that fibromyalgia causes some kind of pain but they have no idea the intenseness of the pain or severity of other symptoms that are part of the fibromyalgia spectrum. The NFMCPA is confident that the CARE & Make Fibromyalgia Visible Campaign will help garner national support for more research, more medical education and better fibromyalgia treatments.”
In conjunction with launching the CARE & Make Fibromyalgia Visible campaign the NFMCPA held a successful Leaders Against Pain (LAP) training meeting last November in Washington, DC, where twenty new LAP were educated in creating a fibromyalgia event and how to promote it to local, state and national media. LAP were also taught how to create legislative talking points and visited with national congressional offices to promote FM scientific research funding. With more than 140 trained LAP the advocacy scholarship program is poised to expand to include at least 2 representatives in all 50 states over the next two years. According to NFMCPA President, Jan Chambers, “The intent of LAP is to allow for an organized, consistent grass roots advocacy program that is knowledgeable about the negative and positive local, state and national fibromyalgia policies regarding patient care, scientific research and funding to cover the growing costs of chronic pain. The LAP will be in constant contact with NFMCPA and the LAP Coalition, which will be able to create quick, powerful responses to fibromyalgia proposed legislation, FDA restrictions, and other concerns including adequate pain treatment protocols and medication step programs.”
During the following months, especially May, Ms. Chambers encourages the public to watch for local fibromyalgia educational opportunities including Community Picnics; Table Top Information exhibits in shopping malls, health fairs, and other public gatherings; Fibromyalgia Walks, and legislative support initiatives.
The National Fibromyalgia & Chronic Pain Association provides support, education, advocacy, and research of fibromyalgia and chronic pain illnesses. The Utah based nonprofit is a 501(c)3 charitable organization. Website: www.fmcpaware.org
National Fibromyalgia & Chronic Pain Association
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Read the full story here: http://www.pr.com/press-release/484506
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|Publication:||PR.com (Press Releases)|
|Date:||Apr 11, 2013|
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