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He had 12-hr op to save his life... brave Thomas is rewriting medical rule book; BACK AT SCHOOL AFTER 17 OPERATIONS.


A BRAVE child is back at school after recovering from a 12-hour operation to save his life.

Four-year-old Thomas Pearce, from Llanfairfechan, lives with the rare Pfeiffer Syndrome, a genetic condition that means his skull does not grow fast enough to fit his brain.

Late last year, Thomas underwent surgery for the 17th time, in a life or death operation that would expand his skull to help him breathe easier, by relieving a pressure build up in his head.

Dad Andy Pearce said: "He was born with Pfeiffer Syndrome. Usually sufferers don't survive more than two years, but Thomas is a rare example. He is rewriting the medical rule book.

"He has just got on with it, he's amazing," he said. "A lot of children deal with things much better than parents, Thomas knows it's part of his life."

Now, the toddler, who turned four in January, is back to school at Ysgol Babanod Llanfairfechan. But despite recovering from the operation he still has to use a tracheotomy tube to help him breathe and undergoes regular check ups at Alder Hey Hospital in Liverpool.

Thomas is popular in the town and around 70 people crammed into the Beach Pavilion Cafe last month to hold a bravery party for him. In excess of pounds 225 was raised for the Ronald Macdonald House at Alder Hey which provides home from home care for families affected by illness.

"It was brilliant," said Andy. "Thomas has been off school for such a long time so we thought we'd do something special," "We didn't want to be inundated by people buying gifts for Thomas, so we said we wanted to do something for the Alder Hey Children's Hospital. Sometimes we've been there for eight weeks at a time while Thomas has had surgery. They've been brilliant.

"We want to thank our friends at the Beach Pavilion Cafe and all our friends and family who've helped us to raise money, they've helped us so much."

. TO learn more about the Ronald McDonald House visit


Thomas Pearce has undergone 17 operations for the rare Pfeiffer Syndrome. He is pictured here at home with dad, Andy, and mum, Nicola.
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Title Annotation:Sport
Publication:Daily Post (Liverpool, England)
Date:Feb 11, 2011
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