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Family-to-family health information centers.

What are F2F HICs?

Family-to-Family Health Information Centers (F2F HICs) are family-staffed organizations that assist families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. F2F HICs provide support, information, resources, and training around health issues.

F2F HICs are uniquely able to help families because they are staffed by family members who have first-hand experience navigating the maze of health care services and programs for CYSHCN. This intimate under-standing of the issues that families face when accessing care makes F2F staff exceptionally qualified to help families navigate health systems and make informed decisions. Some F2F HICs are independent nonprofits; others are part of collaborative nonprofit organizations or state agencies. All F2F HICs have a strong commitment to and expertise about CYSHCN.

How are F2F HICs funded?

The Health Resources and Services Administration (HRSA), Maternal Child Health Bureau (MCHB) provides the primary funding support for F2F HICs, currently authorized under the Affordable Care Act (ACA) through FY 2012. Unless a remedy is found, funding for competitive grants to the F2F HICs in each state and the District of Columbia will end on May 31, 2013.

How do F2F HICs help?

Each F2F HIC is unique, reflecting the needs and character of the community and state that it serves. Organizational structure, locations, partnerships, and specific initiatives may vary. However, all F2F HICs provide:

* Assistance to families and professionals in navigating health care systems

* Information, education, training, support and referral services

* Outreach to underserved/underrepresented populations

* Guidance on health programs and policy

* Collaboration with other F2F HICs, family groups, and professionals in efforts to improve services for CYSHCN

* Evaluation and outcome assessment

What are some of the typical questions that a parent or professional might ask an F2F HIC?

* Is there a health insurance program that will pay for my child's medical needs? How do I enroll?

* How will the Affordable Care Act affect me?

* Medicaid has denied payment of some of my child's services. What do I do now?

* My child is very medically complicated. How can I best work with her doctors?

* Where can I find a support group for families of children with my child's disability?

* How can you help us to develop a Family Advisory Committee at our hospital?

* Do you have materials appropriate for our growing immigrant community?

* We'd like to set up a family-faculty training program. Can you help?

How Does Family Voices help?

Funded by the Health Resources Service Administration (HRSA), Maternal and Child Health Bureau (MCHB) through a cooperative agreement, the National Center for Family Professional Partnerships (NCFPP) at Family Voices, Inc. provides multiple sources of technical assistance, training and support to F2F HICs, and facilitates connections among F2F HICs and partnering organizations. For more information about the NCFPP, resources about family professional partnerships and to find the F2F HIC in your state, please visit http://www.fv-ncfpp.org/

About Family Voices

The mission of Family Voices is to ensure family-centered care for all children with special health care needs and disabilities. Family Voices provides families with resources to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care. There are Family Voices representatives in each state and territory across the country ready to assist you with issues related to the health care of a child or youth with a special need or disability. More information is available www.familyvoices.org, or by calling 1-888-835-5669.

Materials

These materials and others created by the NCFPP may be found at http://www.fv-ncfpp.org/tools-and-resources/ncfpp-materialstools-and-materials/.

1. Family-to-Family Health Information Centers Brochure (pdf): A brochure that provides general information about Family-to-Family Health Information Centers and state-specific contact information.

2. Empowering Parents in a Time of Change: Discovering the Leader Within, 2012 Activities Sharing Notebook: This notebook provides highlighted activities from all 51 F2F HICs along with data on families served, charts of F2F reported measures: involvement in specific initiatives, partnership ratings, and methods used to reach families and professionals, and sources of funding to support F2F efforts.

3. 2010-2011 Data Report of Family-to-Family Health Information Centers--Keeping Families at the Center of Children's Health Care (pdf): A two-page report that provides highlights of data reported by F2F HICs in 2010-2011 demonstrating the value and impact in helping families of CSHCN. Family stories are included as well as highlights of the 2009/10 National Survey-Children with Special Health Care Needs.

4. About Family-to-Family Health Information Centers (video): A brief video presentation that highlights the work of the F2Fs in helping families of CSHCN.

5. About the National Center for Family/Professional Partnerships (video): A short video about the work of the NCFPP in helping families of CSHCN. Includes quotes from families and professionals.

6. Innovative Strategies for Strengthening Family to Family Health Information and Education Centers (pdf): A 35-page report prepared for CMS by Thomson Medstat, Research and Policy Division, that provides a brief overview of the F2F HICs and examples of grantees' strategies focused on such areas as developing partnerships, enhancing communication with families, serving culturally diverse populations, facilitating the transition to adulthood and ensuring sustainability.

7. Activities and Accomplishments of the Family to Family Health Care Information and Education Center Grantees (pdf and html) A 55-page paper prepared for CMS that describes the activities of the 19 Grantees funded in fiscal year 03 and 04 from CMS and six Grantees funded in fiscal year 02 by the Maternal and Child Health Bureau (MCHB), providing information about grant activities, implementation challenges, and accomplishments of the F2F HICs.

This directory is current as of September 2012.

ALABAMA

FAMILY VOICES OF ALABAMA

1050 Government Street

Mobile, Alabama 36604

(877) 771-3862 (PHONE/FAX)

Primary Contacts: Dr. Gerald G. Oveson, Susan M. Colburn

oveson@bellsouth.net

ALASKA

STONE SOUP GROUP

301 East Northern Lights Boulevard Suite 100

Anchorage, Alaska 99503

(907) 561-3701

(877) 786-7327

(907) 561-3702 (FAX)

Primary Contacts: Amy Westfall

amyw@stonesoupgroup.org

www.stonesoupgroup.org

ARIZONA

RAISING SPECIAL KIDS, INC.

5025 East Washington Ste. 204 * Phoenix, Arizona 85034-2005

(602) 242-4366

(800) 237-3007 (Toll free in AZ)

(602) 242-4306 (FAX)

Primary Contact: Joyce Millard Hoie

ARKANSAS

ARKANSAS DISABILITY COALITION

1123 South University Suite 225

Little Rock, AR 72204

(501) 614-7020

(800) 223-1330

(501) 614-9082 (FAX)

Primary Contact: Wanda Stovalladcw

wanda.horton@adcpti.org

www.adcpti.org

CALIFORNIA

SUPPORT FOR FAMILIES OF CHILDREN WITH DISABILITES

1663 Mission Street, 7th Floor

San Francisco, CA 94110-3111

(415) 282-7494

(415) 282-1226 (FAX)

Primary Contact: Juno Duenas

COLORADO

FAMILY VOICES COLORADO

450 Lincoln Street Suite 100

Denver, CO 80203

(303) 733-3000

(800) 882-8272 Toll free

(303) 733-3344 (FAX)

Primary Contact: Christy Blakely

Christy957@comcast.net

CONNECTICUT

PATH PARENT TO PARENT/FAMILY VOICES OF CT

POBox 117

Northford, CT 06472-0117

((203) 234-9554

(800) 399-7284

(203) 234-1876 (FAX)

Primary Contacts: Nanfi Lubogo

DELAWARE

DELAWARE FAMILY VOICES

61 Corporate Circle

New Castle, DE 19720-2439

(302) 221-5360

(877) 235-3588 Toll free

(302) 324-4441 (FAX)

Primary Contact: Ann Phillips

DISTRICT OF COLUMBIA

Advocates for Justice and Education CPRC

1012 Pennsylvania Ave, SE

Washington, DC 20003

(202) 265-1432

(888) 327-8060

(202) 678-8062 (FAX)

www.AJE-DC.org

FLORIDA

FLORIDA INSTITUTE FOR FAMILY INVOLVEMENT (FIFI)

2196 Main Street Suite K Dunedin, FL 34698-5694

(727) 523-1130

(800) 825-5736

(727) 523-8687 (FAX)

Primary Contacts: Lori Fahey

GEORGIA

PARENT TO PARENT OF GEORGIA, INC.

3805 Presidential Parkway Suite 207

Atlanta, GA 30340

(770) 451-5484

(800) 229-2038

Primary Contact: Sitara Nayak sitara@p2pga.org

HAWAII

HILOPA'A FAMILY TO FAMILY HEALTH INFORMATION CENTER

1319 Punahou Street Room 742

Honolulu, HI 96826

(808) 282-6348

(808) 791-3467

(808) 531-3595 (FAX)

Primary Contact: LeoLinda Parlin

leolinda@resqconsultants.com

ILLINOIS

THE ARC OF ILLINOIS

20901 South LaGrange Road Frankfort, IL 60423

(815) 464-8247

(866) 931-1110 (TOLL FREE IN IL)

Primary Contacts: Faye Manaster, (866) 931-1110

(708) 560-6703

(815) 464-5292 (FAX)

familytofamily@thearcofil.org

INDIANA

FAMILY VOICES INDIANA

4060 W 400 South

Lebanon, IN 46052

(317) 944-8982

(317) 944-9760 (FAX)

Primary Contact: Jennifer Akers

IOWA

FAMILY VOICES OF IOWA AT ASK RESOURCE CENTER

5665 Greendale Road, Suite D Johnston IA 50131-1592

(515) 243-1713

KANSAS

FAMILIES TOGETHER, INC.

313 N Seneca Sreet, Suite 114

Wichita, KA 67203

(316) 945-7747

(888) 815-6364

(316) 263-0031 (FAX)

Primary Contacts: Connie Zienkewicz, Merlin Lockett

connie@familiestogetherinc.org

KENTUCKY

COMMISSION FOR CHILDREN WITH SPECIAL HEALTH CARE NEEDS

310 Whittington Parkway Suite 200

Louisville, KY 40222

(502) 429-4430 x279

(800) 232-1160

(502) 429-7161 (FAX)

Primary Contacts: Debbie Gilbert, Sondra Gilbert

DebbieA.Gilbert@ky.gov

LOUISIANA

BAYOU LAND FAMILIES HELPING FAMILIES

PO Box 1345

Thibodaux, LA 70302-1345

(985) 447-4461

Primary Contact: Kim Detillier

blfhf@bellsouth.net

MAINE

MAINE PARENT FEDERATION

PO Box 2067

Augusta, ME 04338

(207) 588-1933

(800) 870-7746 (TOLL FREE IN ME)

(207) 623-2144 (FAX)

Primary Contact: JANICE LACHANCE

MARYLAND

PARENTS PLACE OF MARYLAND

801 Cromwell Park Drive Suite 103

Glen Burnie, MD 21061

(410) 768-9100 Ext. 106

(800) 394-5694 (TOLL FREE)

(410) 768-0830 (FAX)

Primary Contacts: Josie Thomas, Mary Baskar

josie@ppmd.org

MASSACHUSETTS

MASS FAMILY VOICES @ FEDERATION FOR CHILDREN WITH SPECIAL NEEDS

529 Main Street, Suite 1102

Boston, MA 02129

(800) 331-0688 x210 (TOLL FREE IN MA)

(617) 236-7210 (MESSAGES ONLY)

(617) 572-2094 (FAX)

Primary Contacts: Beth Dworetzky, massfv@fcsn.org

MICHIGAN

MICHIGAN F2FHIEC

3560 W Grand Boulevard Suite 3-350

Detroit, MI 48202

(313) 456-4387

(800) 359-3722

(313) 456-4379 (FAX)

Primary Contact: Lisa Cook-Gordon, cook-gordonl@michigan.gov

MINNESOTA

PARENT ADVOCACY COALITION FOR EDUCATIONAL RIGHTS (PACER)

8161 Normandale Boulevard Minneapolis, MN 55437-1044

(952) 838-9000

(888) 248-0822 (TOLL FREE)

(952) 838-0199 (FAX)

Primary Contact: Wendy Ringer

wendy.ringer@pacer.org

MISSISSIPPI

UNIVERSITY OF SOUTHERN MISSISSIPPI

118 College Drive

Hattiesburg, MS 39406-0001

(601) 432-6261

Primary Contacts: Roy Hart, Royal Walker

rwalker@ihl.state.ms.us

MISSOURI

MISSOURI DEVELOPMENTAL DISABILITIES RESOURCE CENTER AT UMKC-IHD

215 S. Pershing, 6th Floor

Kansas, MO 64108

(816) 235-1763

(800) 444-0821

(816) 235-1759 (FAX)

Primary Contacts: Sheli Reynolds

reynoldsmc@umkc.edu

MONTANA

PARENTS, LET'S UNITE FOR KIDS (PLUK)

516 N 32nd Street

Billings, MT 59101

(406) 255-0540

(800) 222-7585 (MT ONLY)

(406) 255-0523

Primary Contacts: Roger Holt, Sheryl Shockley

rholt@pluk.org

NEBRASKA

PTI NEBRASKA

6805 Grover

Omaha, NE 68106

(402) 346-9233

(888) 490-9233

(402) 934-1479 (FAX)

Primary Contact: Glenda Davis

NEVADA

FAMILY TIES OF NEVADA, INC.

3100 Mill Street Suite #117 Reno, NV 89502

(775) 823-9500

(866) 326-8437 (TOLL FREE)

(775) 323-2205 (FAX)

Primary Contact: Marcia O'Malley

NEW HAMPSHIRE

NH FAMILY VOICES AT PARENT INFO CENTER (PIC)

129 Pleasant Street

Thayer Building

Concord, NH 03301

(603) 271-4525

(800) 852-3345 Ext. 4525 NH only

(603) 271-4902 (FAX)

nhfv@yahoo.com

Primary Contact: Martha-Jean

Madison, Terry Ohlson-Martin

NEW JERSEY

STATEWIDE PARENT ADVOCACY NETWORK (SPAN)

35 Halsey Street

4th Floor

Newark, NJ 07102

(973) 642-8100 Ext. 110

(800) 654-SPAN (7726) (TOLL FREE)

(973) 642-8080 (FAX)

Primary Contacts: Diana Autin, Mercedes Rosa

NEW MEXICO

PARENTS REACHING OUT

1920-B Columbia Drive SE

Albuquerque, NM 87106

(505) 247-0192

(800) 524-5176 (TOLL FREE in NM)

(505) 247-1345 (FAX)

Primary Contact: Chris Lehman

cmurchio@parentsreaching out.org

NEW YORK

PARENT TO PARENT OF NYS

500 Balltown Road

Schenectady, NY 12304

(518) 359-3006

(800) 305-8817 (TOLL FREE)

Primary Contacts: Michele Juda, Janice Fitzgerald

f2fhealthtools@verizon.net

NORTH CAROLINA

THE EXCEPTIONAL CHILDREN'S ASSISTANCE CENTER (ECAC)

907 Barra Row

Suite 102/103

Davidson, NC 28036

(704) 892-1321 Ext. 35

(800) 962-6817 (TOLL FREE)

(704) 892-5028 (FAX)

Primary Contacts: Wendy Ward Grace Sisco, (704) 892-1321 x.11

HIC@ecacmail.org

NORTH DAKOTA

FAMILY VOICES OF NORTH DAKOTA, INC

PO Box 163

312 2nd Avenue W Edgeley, ND 58433

(701) 493-2634

(888) 522-9654 (TOLL FREE in ND)

(701) 493-2635 (FAX)

Primary Contact: Donene Feist

fvnd@drtel.net

OHIO

FAMILY VOICES OF OHIO

6555 Busch Blvd Suite 112

Columbus, OH 43229

(419) 251-8190

(877) 322-2200

Primary Contacts: Carol Keltner, Diane Frazee

chkeltner@mvh.org

OKLAHOMA

OKLAHOMA FAMILY NETWORK

PO Box 21072

Oklahoma City, OK 73156-1072

(405) 271-5072

(877) 871-5072

Primary Contacts: Joni Bruce, Heather Pike

jbruceofn@sbcglobal.net

OREGON

OREGON HEALTH AND

SCIENCE UNIVERSITY

3181 SW Sam Jackson Park Road CDRC

Portland, OR 97239-3011

(503) 494-6961

(855) 323-6744

(503) 697-6932 (FAX)

Primary Contact: Marilyn Hartzell

shelljoyce@comcast.net

PENNSYLVANIA

PARENT EDUCATION & ADVOCACY LEADERSHIP CENTER

1119 Penn Avenue

Pittsburg, PA 15222

(412) 281-4404

(866) 950-1040 (TOLL FREE)

Primary Contacts: Joan Badger, Liz Healey

jbadger@pealcenter.org

RHODE ISLAND

RHODE ISLAND PARENT INFORMATION NETWORK (RIPIN)

1210 Pontiac Avenue

Cranston, RI 02920

(401) 270-0101

(800) 464-3399

(401) 270-7049 (FAX)

Primary Contact: Linda McMullen

familyvoices@ripin.org

SOUTH CAROLINA

FAMILY CONNECTION OF SOUTH CAROLINA, INC.

2712 Middlesburg Drive, Suite 103-B

Columbia, SC 29204

(803) 252-0914

(800) 578-8750 (TOLL FREE in SC)

(803) 799-8017 (FAX)

Primary Contact: W.C. Hoecke, Jackie Richards

wchoecke@familyconnection sc.org

SOUTH DAKOTA

SOUTH DAKOTA PARENT CONNECTION

3701 W. 49th Street Suite 102

Sioux Falls, SD 57106

(605) 361-3171

(800) 640-4553 (TOLL FREE in SD)

(605) 361-2928 (FAX)

Primary Contacts: Lisa Sanderson, Elaine Roberts

lsanderson@sdparent.org

TENNESSEE

TENNESSEE DISABILITY COALITION

955 Woodland Street

Nashville, TN 37206

(615) 383-9442 Ext. 13

(888) 643-7811(TOLL FREE in TN)

(615) 383-1176 (FAX)

Primary Contact: Donna Graham

donna_d@tndisability.org

TEXAS

TEXAS PARENT-TO-PARENT

3710 Cedar Street, Box 12

Suite 229 & 230 * Austin, TX 78705-1449

(512) 458-8600

(866) 896-6001(TOLL FREE in TX)

(512) 451-3110 (FAX)

Primary Contact: Laura Warren

Laura@txp2p.org

UTAH (CMS)

UTAH FAMILY VOICES HEALTH INFORMATION CENTER

230 West 200 South

Suite 1101

Salt Lake City, UT 84101

(801) 808-4420

(800) 468-1160

(801) 446-7738 (FAX)

Primary Contact: Gina Pola-Money

utahfamilyvoices@juno.com

VERMONT

VERMONT FAMILY NETWORK

600 Blair Park Road, Suite 240

Williston, VT 05495-7549

(802) 876-5315

(800) 800-4005

(802) 876-6291 (FAX)

Primary Contact: Carol Devlin

VIRGINIA

FAMILY TO FAMILY NETWORK OF VIRGINIA - PARTNERSHIP FOR PEOPLE WITH DISABILITIES

700 E. Franklin Street, 10th Floor

Richmond, VA 23284

(804) 828-8593

(877) 567-1122

(804) 828-0042 (FAX)

Primary Contacts: Bernice Allen, Eileen Hamma

ballen@vcu.edu

WASHINGTON

WASHINGTON PAVE

6316 S. 12th Street

Tacoma, WA 98465

(800) 572-7368

(253) 565-2266 (FAX)

Primary Contact: Julie Finholm

Jfinholm@wapave.org

WEST VIRGINIA

WV PARENT TRAINING AND INFORMATION, INC.

1701 Hamill Avenue

Clarksburg, WV 26301

(304) 624-1436

(800) 281-1436 (TOLL FREE in STATE)

(800) 281-1438 (FAX)

Primary Contacts:

Pat Haberbosch, Margie Marion

wvf2fhi@gmail.com

WISCONSIN

FAMILY VOICES OF WISCONSIN

PO Box 55029

Madison, WI 53705

(608) 220-9598

(608) 233-3726

Primary Contacts: Liz Hecht, Barbara Katz, barb@fvofwi.org

WYOMING

PARENTS HELPING PARENTS OF WYOMING, INC.

500 W. Lott Street

Suite A

Buffalo, WY 82834

(307) 684-2277

(307) 635-3536

(307) 684-5314 (FAX)

Primary Contacts: Stephanie Harris

sharris@wpic.org
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Publication:The Exceptional Parent
Article Type:Directory
Geographic Code:1USA
Date:Jan 1, 2013
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