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Family tribute to brave little girl who 'touched hearts of all she met'.

Byline: ANNA LEWIS Reporter anna.lewis@walesonline.co.uk

AHEARTBROKEN family have paid tribute to their "brave", "smiley" and "cheeky" fouryear-old daughter following her death. Scarlett Thomas died on Monday after suffering from a condition so rare it didn't even have a name.

As a baby, Scarlett spent months in hospital, where a genetics test meant she was diagnosed with an unbalanced translocation of chromosomes 7 and 10.

Following her death, there has been an outpouring of grief and love from Scarlett's family, charities and medical staff who helped care for her.

Scarlett's mum, Clair Patridge, wrote on Twitter on Tuesday: "With a broken heart I write this message. Sadly at 10.30pm last night [Monday] our little princess passed away.

"As you can all imagine we are devastated but so immensely proud of her for being so brave. We can't thank you all enough for helping us show her how much she was loved!" Paying tribute yesterday, Scarlett's father, Chris, said: "Scarlett's diagnosis doesn't give a true reflection of the character she was. They told us she would never hear or see, but she did both.

"They told us she would never smile or interact with us and she was the most happy, smiley child I've ever met.

"She went through a lot in such a short time. I signed more paperwork saying she might not make it out of an operation than I care to remember but she always smiled through it."

Chris, 36, said: "Scarlett was always cheeky and she was naughty - she would set the alarms off on her machines.

"She would love it when we took her swimming. There's a hydrotherapy pool at Ty Hafan and we would go there.

"I would take her to the aquarium in Bristol and she would just look at the fish and follow them. She enjoyed life. We would paint her hands and she would play with all the textures."

The daughter of two Cardiff Devils season ticket-holders, Scarlett was a regular visitor to watch the side in their Cardiff arena.

Chris, from Caerphilly, said: "Scarlett would love the social interaction of going to see the Cardiff Devils. The fans and players gave her so much attention. Some members of the team, including Joey Martin, Doug Clarkson and Andrew Lord, came to the house to see her when she was born."

Chris added: "The outpouring of grief and support we've had is amazing. For her funeral we want it to be a celebration of who she was and what she did." Children's charity Noah's Ark added: "Scarlett touched the hearts of everyone she met, both here at the charity and the hospital. We all feel honoured to have met her."

In the wake of Scarlett's death, ice hockey commentator Aaron Murphy shared a touching tribute to her.

Posting on Twitter, he said: "Life is far from fair. And sad things happen to good people. I recently was approached in Cardiff to take a picture with a flag.

"The flag was for Scarlett's Army - a flag that represented all the places the young Devils fan Scarlett Thomas' parents and friends knew she would have loved to be, and showed support and love in a tough time, so she could be a part of enjoying her beloved Cardiff Devils.

"Scarlett passed away on Monday and her parents are some of the kindest, most dedicated people in the hockey community. We send them condolences, hugs and prayers at this painful time."

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<B Scarlett loved visiting the hydrotherapy pool at Ty Hafan

Scarlett Thomas suffered from a rare genetic condition
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Publication:Western Mail (Cardiff, Wales)
Geographic Code:4EUUK
Date:Sep 27, 2018
Words:599
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