Ethical aspect of quality of life of palliative care patients.
The term "value of life" appeared in the literature during the second half of the 20th century. Initially, it was connected with the economic dimension of life and was identified as the quantity of manufactured goods. Over time, its meaning has been extended to variables related to the human environment, the sphere of mental and spiritual needs of people, their life goals, and satisfaction with health status .
The World Health Organization defines quality of life as "Individuals' perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals and expectations" [2, 3]. Quality of life includes the following elements:
* Physical functioning
* Mental state
* Social relationships
* Religions, beliefs, convictions, and opinions .
In medicine, the concept Health-related quality of life (HRQL) is used. Introduced by Schipper in 1990, the term is multi-dimensional and comprises the relationships between patients, their disease, and the natural and social environments in which they live. HRQL is determined by health, occurring diseases, and the natural aging process. It analyzes subjective and objective determinants pertaining to the degree of fulfilling patients' needs [1-4]. Standardized questionnaires (for example:
WHO, EORTC, SF-36 and others) are used to
assess patient quality of life.
A clear definition of "quality of life" has yet to be determined and accepted. This term is used in both its narrow and broader sense. An example of its broader sense is the "quality of life doctrine," associated with ethical issues of the patient's life, suffering, and death.
Currently, investigating and monitoring quality of life plays an important role in evaluating the health and life status of seriously ill people, particularly those facing impending death. Thus, it is of great importance and usefulness in palliative medicine, whose aim is to increase patient quality of life. As an essential element of describing and assessing quality of life, in clinical practice, it allows to:
* "Catalogue" a patient's particular states and conditions during treatment
* Select the best and most effective therapeutic methods in particular situations
* Compare the effects of work of different palliative centers
* Create guidelines and standards of palliative care [1, 4].
In the 21st century, along with great achievements in prolonging survival of people with serious diseases and rapid development of bioethics, a link has been made between burdensome symptoms and patient quality of life analysis. Some have argued that the life of suffering patients may be a wrongdoing. Such opinions can be found in English-language publications where the expressions "wrongful life" and "wrongful birth"-if serious developmental anomalies are found-have appeared. It seems these new terms are in line with an earlier one: "life not worth living" (Lebensunwertes Leben) used by K. Binding (1920), which was later improperly utilized by totalitarian systems, particularly by the Nazis, to legalize euthanasia . Both concepts, quality of life and value of life, have created serious ethical dilemmas related to the beginning and the end of human life-various dilemmas if we consider the assumptions of different ethical models, of which the personalistic and-much different-utilitarian ethic views are worth mentioning .
Contrary to personalistic ethics where human life-also a poor-quality one-is of the highest value, utilitarian ethics tries to connect the value of human life with its quality, arguing that a poor-quality life may be wrongful for a patient, so he or she should have the right to euthanasia or supported suicide. It seems these postulates are included in the "life quality doctrine," a rather new auto-construction of relative values connected with the arduous life circumstances of an ill person. It is easy to see that this attitude may serve as a strategy aimed at eliminating weak, seriously ill people allowing only the strong to survive, particularly when there are insufficient funds for the treatment and care of seriously ill people [3,5-7].
However, there is a general belief that the value of life cannot be quantified, so it should not be determined by quality of life. Life itself is an absolute value.
Consideration of quality of life is connected with sanctity of life, which may be understood in different ways and is not necessarily associated with any religion. It seems sanctity of life is primarily a result of "natural law" (lex naturalis)-a phenomenon closely related to human nature. The above statement is supported by our age-long search for transcendence. Examples of this are: various religions that exist from the very beginning of humankind, objects found in graves of our ancient ancestors, or the opinions of ancient philosophers (Socrates, Plato, Sophocles, and others).
Lex naturalis, neither a Christian nor other religion's idea, is mainly based on synderese, which is the innate ability of the human brain to learn the first principles of ethics: "do good, avoid evil."
The following are main attributes of lex naturalis:
* Applicable to all people
* Superior to statutory laws
* Superior to religious laws [1,3,5,7]
At the end of this discussion on the value and sanctity of life, it is worth remembering that all actions against human nature and natural law my lead to degeneration and dangerous consequences, as those we witnessed in the 20th century (Nazism, Communism, new Left Wing, etc.).
It is extremely important to save each human life, because it is an indispensable condition of existence of good and other values experienced by an individual. Also, it allows the individual to fulfill his/her duties-even a person burdened with major health problems.
Death or non-existence-as a remedy to suffering and poor quality of life-must not be compared with life, including the life of a person with disability or serious illness, since these phenomena are the opposites [3, 7].
Quality of life assessment plays an important role in all branches of medicine. It is of particular importance in the case of diseases we cannot cure and can only ameliorate suffering and other somatic complaints. Palliative medicine is a specialization in which quality of life is of particular importance; its main aim is not to cure the disease but to improve patient quality of life. The terminally ill patients are most at risk of death, therefore their doctors should be well acquainted with the ethical dilemmas of the end of life. We believe that understanding the difference between the meanings of basic and key terms, such as: quality of life, value of life, sanctity of life, is of great importance [4, 8-13].
We wish to emphasize that quality of life is not a synonym for the value of life. The value of life cannot be dependent on its quality since it is unquantifiable, an absolute value in itself [3, 7]. Value of life is anchored in sanctity of life, which is an eternal, beyond religion, natural right of a human being. History of mankind teaches us that attempts to change human nature are not effective and actions contrary to human nature degenerate people and bring them confusion, tragedies and calamities, as was experienced by people under totalitarian systems of the 20th century [1, 12].
Evaluation of the quality of life, which is a subjective assessment, can be differently determined in the same person at the same time. Furthermore, the patient cannot always be a judge in his/her own matters; sometimes he/she may be incompetent to do so. That is why we believe the "quality of life doctrine" is a new auto-construction of relative values contrary to human nature, it is a philosophy derived from utilitarian ethics which attempts to decrease the value of life and opens the door to the legalization of abortion and euthanasia. This philosophy is detached from the medical practice and simplifies problems of life, suffering, treatment, and death. It may also be a function of substitute activities when there is insufficient funding of health care institutions treating terminally ill patients. Additionally, it may serve as a means of agitation for euthanasia or supported suicide of patients with poor quality of life, and as such, it may be a source of discrimination in the future-also those patients who want to live as long as possible notwithstanding their suffering and consciousness of approaching death [3, 12].
[1.] Steuden S, Okla W. Life quality in sickness. KUL Lublin 2006; 5-11. (Polish)
[2.] Daszkowska J, Rewera M. Problems of quality of life of contemporary people. Petrus, Krakow 2012; 27-32. (Polish)
[3.] The World Health Organization Quality of Life assessment (WHOQOL): Position paper from the W.H.O. Soc. Sci. Med. 1995; 41: 1403-9.
[4.] de Walden-Galuszko K. Problemy jakosci opieki paliatywnej (Issues of quality of palliative care): de Walden-Galuszko K. (red.): Podstawy Opieki Paliatwynej. PZWL, Warszawa, 2007; pp 287-9. (Polish)
[5.] Bindig K. Die freigabe der Verichtung lebensunwerten Lebens. Leipzig. Mainer 1920.
[6.] Szawarski Z. Wisdom and art of cure. Wydawnictwo Slowo/Obraz terytoria. Gdansk 2006; pp 202-3. (Polish)
[7.] Fletcher J. Indicators of humanhood a tenative profile of man. Hastings Cent. Rep. 1972; 2:1-4
[8.] John Paul II: "Evangelium vite". Krakow 1995, p 57. (Polish)
[9.] Iwaszczyszyn J. Philosophy of dialogue and meeting in palliative care. Miniatura. Krakow 2012; pp 11-25 (Polish)
[10.] Chanska W. Fatal gift of life. Philosophy and ethics of life quality in contemporary medicine. Wroclaw 2009; 13-20: 49-88: 224-54. (Polish)
[11.] Dworkin R. Life's Dominion. An Argument about Abortion and Euthanasia. Harper Collins Publisher. London 1995;pp 67-78.
[12.] Biesaga T. Elements of ethics of a physician. Medycyna Praktyczna. Krakow 2006; 108-14. (Polish)
Iwaszczyszyn J. (1), Klis-Kalinowska A. (1,2)*, Kwiecinska A. (3), Lis M. (1), Czekaj J. (1,4)
(1) Care and Treatment Center, Cracow, Poland
(2) Jagiellonian University, Collegium Medicum, Faculty of Health Sciences, Institute of Nursing and Midwifery, Cracow, Poland
(3) St. Lazarius Hospice of Cracow, Cracow, Poland
(4) Jagiellonian University, Collegium Medicum, Faculty of Health Sciences, Emergency Institute, Cracow, Poland
* Corresponding author:
Jagiellonian University, Collegium Medicum
Faculty of Health Sciences
Institute of Nursing and Midwifery, Cracow, Poland
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|Author:||Iwaszczyszyn, J.; Klis-Kalinowska, A.; Kwiecinska, A.; Lis, M.; Czekaj, J.|
|Publication:||Progress in Health Sciences|
|Article Type:||Clinical report|
|Date:||Jun 1, 2013|
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