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Caregiving; Questions to Ask.

Review the following 'Questions To Ask' about caregiving so you're prepared to discuss this important health issue with your health care professional.

My mother seems more confused than usual. Could some of the confusion be related to the medication she is taking?

What medications are available to help slow the progress of my father's mental deterioration or to reduce his agitation? What are the side effects?

My sister has MS, and I'm taking care of her. How do I help her maintain her independence?

My adult daughter is in the final stages of cancer. Can you recommend a hospice?

I prepare all of my father's meals. What do I need to know about his nutritional requirements?

Can you recommend some support groups?

My father seems to be losing some of his motor control. Would occupational or physical therapy help? If so, can you provide a referral?

Do you have some simple exercises my mother can do to help maintain her muscle strength and balance?

Do you accept Medicare patients?

My brain-damaged brother will need a convalescent home soon, but he's only in his 40s. Can you recommend facilities that have programs geared to younger residents?

References

"Key Findings from `Caregiving in the U.S. National Alliance for Caregiving and AARP' Survey." April 2004. National Alliance for Caregiving. http://www.caregiving.org. Accessed February 8, 2005.

"Housing Choices." American Association of Retired Persons. http://www.aarp.org. Accessed February 8, 2005.

"What Is Hospice?" Hospice Foundation of America. http://www.hospicefoundation.org. Accessed February 8, 2005.

National Association of Professional Geriatric Care Managers. http://www.caremanager.org. Accessed August 11, 2004.

ABA Commission on Law and Aging http://w3.abanet.org.at Accessed August 11, 2004. Sabatino, C. "10 Legal Myths About Advance Medical Directives."

American Association of Retired Persons. http://www.aarp.org. Accessed August 11, 2004. "Health Professionals, Patients and Caregivers," AARP. 1995-2001.

American Association of Retired Persons. http://www.aarp.org. Accessed August 10, 2004. "Caregiving: Involving the Whole Family in Caregiving," AARP. 1995-2001.

The Alzheimer's Association. http://www.alz.org. Accessed August 10, 2004. "Caregiver Stress," The Alzheimer's Association.

The Alzheimer's Association. http://www.alz.org. Accessed August10, 2004. "Glossary," Alzheimer's Association 2004.

Family Caregiver Alliance. http://www.caregiver.org. Accessed August 10, 2004. Fact Sheets: "End-of-Life Decision-Making," "Legal Planning for Incapacity," "Durable Powers of Attorney and Revocable Living Trusts," "Out-of-Home Care Options," "Behavior Management Strategies (Dementia)".

"Family Caregivers of Dementia Patients May Be More Vulnerable to Illness," summary of study conducted at Ohio State University; November/December 2000 issue of Psychosomatic Medicine.

Federal Deposit Insurance Corporation. http://www.fdic.gov. Accessed August 10, 2004. "Financial Caregiving: a Survival Guide," published by Federal Deposit Insurance Corporation.

The Federal Trade Commission and the American Association of Retired Persons. http://www.ftc.gov. Accessed August 10, 2004. Aging Parents and Adult Children Together A/PACT (series of articles).

Harrington, Charlene, et al. "Does Investor Ownership of Nursing Homes Compromise the Quality of Care?" American Journal of Public Health. Sept. 2001; 91:1452-1455. http://www.ajph.org.

Katz, Steven, et al. "Gender Disparities in the Receipt of Home Care for Elderly People With Disability in the United States." Journal of the American Medical Association 2000;284:3022-3027. http://jama.ama-assn.org. Accessed August 10, 2004.

The Mayo Clinic. http://www.mayoclinic.com. Accessed August 11, 2004. "Caregiving: The Importance of Maintaining a Support Network." Mayo Clinic, Rochester NY.

The Milbank Memorial Fund. http://www.milbank.org. Accessed August 11, 2004. Stone, Robyn I. "Long-Term Care for the Disabled Elderly: Current Policy, Emerging Trends and Implications for the 21st Century." Date created: January 2000.

National Alliance for Caregiving. http://www.caregiving.org. "Caregiving Tips". Accessed August 11, 2004.

National Family Caregivers Association. http://www.nfcacares.org. Accessed August 11, 2004. NFCA home page.

National Association for Home Care. http://www.nahc.org. Accessed August 11, 2004. "How to choose a home care provider," published by National Association for Home Care.

National Women's Health Resource Center. http://healthywomen.org. Accessed August 11, 2004. "Incontinence/Overactive Bladder," published by National Women's Health Resource Center.

National Women's Health Resource Center. http://healthywomen.org. Accessed August 11, 2004. "Multiple Sclerosis," published by National Women's Health Resource Center.

Public Broadcasting Service/Channel 13. http://www.thirteen.org. Accessed August 11, 2004. "End-of-life tools," Web site accompanying "On Our Own Terms," a Bill Moyers/PBS series.

Rosalynn Carter Institute for Human Development. http://www.rosalynncarter.org. Accessed August 11, 2004.

University of Puget Sound. http://otpt.ups.edu. Accessed August 11, 2004. Stone, Ronald G., ed. "Gerontology Manual," 1996: University of Puget Sound: School of Occupational Therapy and Physical Therapy, (1996).

National Mental Health Association. http://www.nmha.org. 1997. Accessed August 11, 2004. "Stress - Coping with Everyday Problems."

National Women's Health Resource Center. http://healthywomen.org. Accessed August 11, 2004. "Stress". Published by the National Women's Health Resource Center.

Yale University School of Medicine. Study on falls (summary) reported in Medical Care 2000;38:1174-1183.

U.S. Department of Health and Human Services. http://aspe.hhs.gov. Accessed August 11, 2004. Cohen, M.A., Weinrobe, M., and Miller, J. "Informal Caregivers of Disabled Elders with Long-Term Care Insurance," report submitted to the Robert Wood Foundation and the U.S. Department of Health and Human Services. January 2000.

U.S. Department of Health and Human Services Health Care Financing Administration. http://consumerlawpage.com. Accessed August 11, 2004. "Medicare and Advance Directives," Publication No. HCFA 02175.

Keywords: caregiving, medication
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Publication:NWHRC Health Center - Caregiving
Geographic Code:1USA
Date:Jul 29, 2005
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