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CLOSE TO HOME: How big data is helping us to understand how socioeconomic disparities are affecting the provision of eye care services.

A project that has shone a spotlight on socioeconomic disparities in glaucoma presentation started off with a hunch. Trawling through visual field records as part of an audit of glaucoma management in secondary care, City, University of London's Professor David Crabb began wondering what other uses the large quantities of electronically recorded information could be put to. "It struck me at the time that we have these huge repositories of data that are sitting in the hospital and they might tell us a story," he shared.

Professor Crabb's research lab retrospectively gathered information on more than 50,000 patients attending NHS glaucoma clinics in four regions in England.

Anonymised patient data was analysed according to a range of factors, including age, a measure of visual field loss (mean deviation) in the worst eye at first visit to the glaucoma clinic and partial postcode data.

Mapping late presentations

After correcting for age, researchers found that patients in areas with lower socioeconomic status according to the index of multiple deprivation generally had more extensive visual field loss at first presentation than those from higher socioeconomic areas.

"There was a relationship between where a patient lived and how advanced their disease was the first time they presented in the hospital eye service," Professor Crabb highlighted. Maps displaying visual field loss revealed 'hot spots' for late presentation with glaucoma. Professor Crabb emphasised that the association between partial postcode data and visual field loss is one factor among many that influences people receiving a late glaucoma diagnosis. Interactive mapping tools were used by the research team to illustrate and illuminate their results.

Towards a solution

Professor Crabb is quick to point out that the connection between late presentation of eye disease and their socioeconomic status in terms of where they live is well-established. However, he shared his view that, to date, there has been an absence of a deliberate strategy to tackle the issue.

"What we are trying to do with the data is put a spotlight on this, which might make people think more about how we incentivise people in certain areas to go to the optometrist," Professor Crabb said.

"We know from a research perspective that for eye diseases, such as age-related macular degeneration and glaucoma, one of the big factors that influences whether someone is going to be visually impaired is often to do with the way in which people access treatment," he added.

There are various reasons why people do not visit an optometrist regularly, he shared.

"It might be purely because people are fearful of an eye examination or their vision has been fine throughout their lifetime," Professor Crabb observed. Some people would be hesitant about going to the optometrist because of the cost of spectacles.

"There are other things like social isolation and language barriers. A lot of older people assume that your vision deteriorates with age, so there is an acceptance of deteriorating vision," he shared.

Work to make existing technology more accessible could help to ensure that people are diagnosed with eye conditions at the earliest opportunity. Professor Crabb emphasised that lack of technology is seldom the reason for a late diagnosis. "We have the technology--it's all out there. We just don't think carefully enough about those people who do not use it," he said. "It is often the most marginalised people who are going to be the ones who don't access those resources."

A single factor

Professor Crabb emphasised that where a patient lives is only one factor among a large number that influence a patient's presentation with disease. He highlighted the asymptomatic nature of glaucoma as a key determinant. "The main reason why people present with the condition in its moderate or severe form is that they just don't know that they have it. When symptoms do appear, that is typically in the advanced stages of the disease," Professor Crabb said. One of the patterns that he noticed during the research related to the placement of optometry practices. The mapping work revealed that optometrists were less evenly dispersed than GP practices.

"There are different drivers associated with where an optometrist will be placed within communities. When you look at the maps, you wonder, 'Why are there six optometrists here but over here there are none?'" For example, there is a high concentration of optometry practices in East London close to the City of London but the practices peter out towards Tower Hamlets.

"Some of that part of London includes the most deprived areas. It seems quite striking," he highlighted.

A key shift that Professor Crabb would like to see is enhanced links between primary and secondary care.

He noted that good work is being done in this area, with ophthalmology and optometry "much more connected" than they were a decade ago.

"I think things are turning in the right direction. We need to stress the fact that when you go to your optometrist it is not about correcting your vision with glasses, it is about looking at the back of the eye and working out if someone is at risk of developing an eye condition."

CREATING THE CRABB LAB

At City, University of London, Professor David Crabb leads the "Crabb Lab,' where clinicians, mathematicians and computer scientists come together to focus on the measurement of vision

David Crabb is Professor of Statistics and Vision Research in the School of Health Sciences at City University London. He gained a BEd in Mathematics from the University of Oxford and an MSc in Statistics at the University of Sheffield, before completing a PhD in Statistics and Visual Science at City, University of London in 1996. Professor Crabb returned to the university in 2005 to teach on the optometry programme and was made Professor in 2010.

The Crabb Lab relates stages of chronic eye disease and subsequent visual disability to everyday life.

Find out more online: www.staff.city. ac.uk/crabblab, Twitter @crabblab
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Title Annotation:THE VULNERABLE GROUPS ISSUE
Publication:Optometry Today
Date:Sep 1, 2018
Words:985
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