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Boy saved by mouse test drug.

Byline: Martyn Halle

A BABY given a year to live has reached the age of five after his parents gave him an experimental drug from the US tested only on mice and a handful of humans.

Maxwell Smith has a rare muscle-weakening DNA disorder that leads to respiratory failure.

NHS docs said there was nothing they could do, but parents Emma and Peter found deoxynucleotide monophosphate online.

It had worked on mice and a few children in the US with the same illness.

The NHS refused to buy the drug, so Peter, 43, did it himself. He said: "I found I could import it under licence with the regulator's approval. They said yes."

Now Maxwell, on a ventilator, has started school in Thakeham, West Sussex.

Emma, 37, said: "We don't know how long he has, but this has made him stronger." The treatment has cost the Smiths more than PS13,000 so far.



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Publication:The People (London, England)
Date:Apr 16, 2017
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