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Addressing type 1 diabetes in West Virginia.

JDRF, formerly known as the Juvenile Diabetes Research Foundation, is the leading global organization funding type 1 diabetes (T1D) research. The goal of JDRF is to progressively remove the impact of T1D from people's lives and achieve a world without T1D. JDRF collaborates with a wide spectrum of partners and is the only organization with the scientific resources, regulatory influence and a working plan to better treat, prevent and eventually cure T1D.

JDRF is the largest charitable supporter of T1D research and is currently sponsoring $568 million in scientific research in 17 countries. In 2012 alone, JDRF provided more than $110 million to T1D research.

The West Virginia Branch of JDRF is an all-volunteer group supported by staff and leadership in Pittsburgh through the Western Pennsylvania Chapter. The West Virginia Branch holds several outreach and support group activities each year and works to connect and support families with T1D.

Volunteers with the West Virginia Branch of JDRF deliver a "Bag of Hope" to a child after he or she is newly diagnosed with T1D as well as a welcome kit for children that were diagnosed previously but have not received a Bag of Hope. There is also an adult version of the Bag of Hope for newly diagnosed adults and teenagers with T1D.

The West Virginia Branch of JDRF recently held their 3rd Annual Diabetes Family Symposium at Camp Virgil Tate near Charleston, West Virginia. The symposium provided an opportunity for families from around the state to come together. Educational sessions were offered for both adults and children concerning the latest research, school issues and helpful daily tips. There were also several pharmaceutical representatives on hand to demonstrate the latest trends in tools for managing T1D such as glucose meters and insulin pumps.

Privacy and HIPPA regulations impact outreach efforts to individuals newly diagnosed with type one diabetes. Outreach and education are very important to the West Virginia Branch of JDRF, making reaching these families a top priority.

Branch contacts are Lori Haapala, lorihaapala@yahoo.com, or Tammy Goodwin, tjo@goodwingoodwin.com.

By Lori Haapala, RN, BSN

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Title Annotation:West Virginia Bureau for Public Health: NEWS
Author:Haapala, Lori
Publication:West Virginia Medical Journal
Article Type:Conference news
Geographic Code:1U5WV
Date:Jan 1, 2015
Words:347
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