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About 600,000 Tunisians suffer from rare disease.

27/02/2019 18:56, TUNIS/Tunisia

(TAP) - About 600,000 Tunisians suffer from a rare disease, i.e. one in twenty, Hela Boudabous, president of the Tunisian Association of Lysosomal Diseases (ATML) said on Wednesday.

Rare diseases are often chronic, progressive and generally serious. Their expression is extremely diverse: neuromuscular, metabolic, infectious, immune and cancerous.

More than 400 rare diseases are recorded in Tunisia, she said at a press conference held in Tunis on the Rare Disease Day observed on the last day of February each year.

She added that 70% of the medical researches in Tunisia relate to rare diseases.

Among the rare diseases, the president of the ATML spoke about lysosomal diseases that are generally genetic and affect both adults and children.

According to Hela Boudabous, rare diseases remain unknown in Tunisia, which explains the error and the delay of diagnosis.

"Diseases and their families often face several problems related to diagnostic error, lack of care and lack of information on the part of health and medico-social professionals.

Since 2008, the Rare Disease Day has been observed in nearly 50 countries.

The purpose of this day is to raise awareness among the general public and decision-makers about rare diseases and their impact on the lives of those affected.

A rare disease is any disease that affects a small percentage of the population.

According to Sanofi, 350 million patients have rare diseases worldwide.

There are more than 7,000 rare diseases worldwide and 30% of affected children die before the age of five.

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Publication:Agency Tunis Afrique Press
Geographic Code:6TUNI
Date:Feb 27, 2019
Words:265
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