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'Cheeky boy who touched hearts' loses his fight for life.

A "CHEEKY" and "charming" six-yearold boy has died two weeks before his family could give him the perfect Christmas.

Heartbreaking tributes have been paid to huge rugby fan Callum Sainsbury, who died after a battle against a rare form of epilepsy on Tuesday.

Callum, from Brynmawr, Blaeanau Gwent, was diagnosed with Ohtahara syndrome as a baby after he began having up to 19 seizures a day. Those with the condition are particularly susceptible to repeated chest infections.

His family have described how he defied the odds, and was supported by his sisters Katelyn and Kelcea.

Callum's mum Aime said: "Callum was so cheeky, he had me wrapped around his little finger if he wanted something, "He was just so charming - there's so much to say about him. He loved rugby and he loved Jurassic World, his favourite was the raptor Blue."

Throughout this year, friends and family had been raising money for Callum to have the perfect Christmas after he had spent December 25 in hospital for the last three years.

In November, family friend Sasha Wilks also organised for the Pen-Y-Cwm pupil to meet the Wales rugby squad during their autumn campaign.

Since Callum's death, fundraising has now begun to support his family with the cost of his funeral.

In a video thanking friends for their support, Amie added: "Our boy is really going to be missed. Callum touched everyone's heart. We will never ever forget him, we will talk of him every day and we love him to bits."

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Publication:Western Mail (Cardiff, Wales)
Date:Dec 17, 2018
Words:256
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