Printer Friendly
The Free Library
14,506,802 articles and books
Member login
User name  
Password 
 
Join us Forgot password?

Working with Autism and Other Social-Communication Disorders.


Since the introduction of supported employment, and the implementation of legislation such as the Rehabilitation Act Amendments of 1986 and the Developmental Disability developmental disability
n.
A cognitive, emotional, or physical impairment, especially one related to abnormal sensory or motor development, that appears in infancy or childhood and involves a failure or delay in progressing through the normal
 Assistance and Bill of Rights Act (1984), rehabilitation counselors have been increasingly responsible for serving a diverse pool of clients. The mandate to support individuals with the most significant disabilities is further strengthened in the 1998 amendments to the Rehabilitation Act. The language of legislation and policy infer high expectations for the vocational success of such individuals, many of whom were previously deemed unemployable un·em·ploy·a·ble  
adj.
Not able to find or hold a job: unemployable people.



un
.

Graduate programs in Rehabilitation Counseling rehabilitation counseling,
n counseling started in the United States in 1920 to assist individuals disabled by industrial accidents; originally included physical, psychologic, and occupational training; expanded over the next 70 years and laid the
 tend to stress psychosocial adjustment to disabilities, counseling methods, and functional limitations. Problems associated specifically with developmental disabilities developmental disabilities (DD),
n.pl the pathologic conditions that have their origin in the embryology and growth and development of an individual. DDs usually appear clinically before 18 years of age.
 such as communication disorders, behavior issues, and adaptive deficits receive less attention in curricula (Bolton & Cook, 1997). As a consequence, counselors may be inadequately prepared to serve individuals with the most severe disabilities in community contexts. The aim of this article is to provide rehabilitation professionals with (1) detailed definitions and descriptions of autism autism (ô`tĭzəm), developmental disability resulting from a neurological disorder that affects the normal functioning of the brain. It is characterized by the abnormal development of communication skills, social skills, and reasoning. , (2) a theoretical overview of the literature on autism and related disabilities, (3) effective approaches and strategies based on primary sources, and (4) specific recommendations. The purpose of the article is to help the rehabilitation counselor maximize the success of individuals with autism and related disabilities. The paper is organized in three sections. First, definitions of autism including various models and theories of autism are provided. Next, an analysis of first-hand accounts provides insights into how individuals with autism experience the world. The article concludes with a series of recommendations to improve rehabilitation counselor interactions with individuals who have autism and other social-communication disorders.

The Nature of Autism

Autism is one of a family of developmental disorders that influences social, communication, and vocational abilities. Specific labels included under the broader heading of Pervasive Developmental Disability include: Asperger's syndrome As·per·ger's syndrome
n.
A pervasive developmental disorder, usually of childhood, characterized by impairments in social interactions and repetitive behavior patterns.
, autism, Rett's disorder Rett's disorder Pediatrics An X-R condition affecting ♀, characterized by mental retardation and delayed developmental milestones beginning from 6 months to 2 yrs the child's condition deteriorates. , and Childhood Disintegrative Disorder Childhood disintegrative disorder (CDD), also known as Heller's syndrome and disintegrative psychosis, is a rare condition characterized by late onset (>3 years of age) of developmental delays in language, social function, and motor skills.  (American Psychiatric Association The American Psychiatric Association (APA) is the main professional organization of psychiatrists and trainee psychiatrists in the United States, and the most influential world-wide. Its some 148,000 members are mainly American but some are international. , 1994). Other neurological disabilities, including left hemisphere traumatic brain injury Traumatic brain injury (TBI), traumatic injuries to the brain, also called intracranial injury, or simply head injury, occurs when a sudden trauma causes brain damage. TBI can result from a closed head injury or a penetrating head injury and is one of two subsets of acquired brain , severe learning disability, language disorders, attention deficit disorder attention deficit (hyperactivity) disorder (ADD or ADHD)
 formerly hyperactivity

Behavioral syndrome in children, whose major symptoms are inattention and distractibility, restlessness, inability to sit still, and difficulty concentrating on one thing for any
, and Tourette's syndrome Tou·rette's syndrome or Tou·rette syndrome
n.
A severe neurological disorder characterized by multiple facial and other body tics, usually beginning in childhood or adolescence and often accompanied by grunts and compulsive utterances, as of
, share many features with autism (Frith frith  
n. Scots
A firth.



[Alteration of firth.]

Frith woods or wooded country collectively. See also forest.
, 1991, Tsai, 1992; Yeung-Courchesne & Courchesne, 1997). People who have autism and related disabilities sometimes experience secondary problems such as obsessive-compulsive disorder obsessive-compulsive disorder

Mental disorder in which an individual experiences obsessions or compulsions, either singly or together. An obsession is a persistent disturbing preoccupation with an unreasonable idea or feeling (such as of being contaminated through shaking
, language difficulties, and attention deficit disorder (Frith, 1991; Tsai, 1992). Many individuals with milder forms of autism are first diagnosed as learning disabled or emotionally disturbed (Tsai, 1992). Although not precisely accurate, `autism' is used as an umbrella term A term used to cover a broad category of functions rather than one specific item. In many cases, a term is so catchy that it tends to be used for technologies that are a stretch from the original concept. See middleware and virtualization.  meaning `severe social-communication disorder of developmental origin' throughout this article.

Autism Defined

Autism is a relatively low-incidence developmental disability that, according to according to
prep.
1. As stated or indicated by; on the authority of: according to historians.

2. In keeping with: according to instructions.

3.
 Frith (1991), results in impairments of socialization socialization /so·cial·iza·tion/ (so?shal-i-za´shun) the process by which society integrates the individual and the individual learns to behave in socially acceptable ways.

so·cial·i·za·tion
n.
, communication, and imagination. In an article describing her experiences, Donna Williams Donna Williams may refer to:
  • Donna Williams (author), Autism advocate
  • Donna Williams (web designer), Neopets cofounder
 (1994a), a person with autism, defined the disability as a pervasive developmental disability affecting recognition and comprehension including proprioception proprioception

Perception of stimuli relating to position, posture, equilibrium, or internal condition. Receptors (nerve endings) in skeletal muscles and on tendons provide constant information on limb position and muscle action for coordination of limb movements.
, kinesthetic sense kinesthetic sense
n.
See myesthesia.
, sense of self and other, visualization, sequencing, synthesis, analysis, and retrieval. People with autism often exhibit significant language problems such as delayed or absent speech, perseveration perseveration /per·sev·er·a·tion/ (per-sev?er-a´shun) persistent repetition of the same verbal or motor response to varied stimuli; continuance of activity after cessation of the causative stimulus. , and echolalia echolalia /echo·la·lia/ (ek?o-la´le-ah) stereotyped repetition of another person's words and phrases.

ech·o·la·li·a
n.
1.
. Solitary, repetitious rep·e·ti·tious  
adj.
Filled with repetition, especially needless or tedious repetition.



repe·ti
, patterned behaviors are often favored from infancy, sometimes to the exclusion of explorative and social behaviors (Wing, 1991). The majority of people with autism are thought to have severe intellectual disabilities (Yeung-Courchesne & Courchesne, 1997). Most people who are so labeled require supervision, support, and assistance throughout their lives.

The nature and severity of autism has profound implications for the potential success of the individual in the workplace. Responses and behaviors of people with autism can be mystifying mys·ti·fy  
tr.v. mys·ti·fied, mys·ti·fy·ing, mys·ti·fies
1. To confuse or puzzle mentally. See Synonyms at puzzle.

2. To make obscure or mysterious.
. For example, strong emotional reactions to touch, sound, or unanticipated change may appear disproportional dis·pro·por·tion·al  
adj.
Disproportionate.



dispro·por
 to the problem. Patterned or ritualized behaviors may seem odd, and speech may be monotonic monotonic - In domain theory, a function f : D -> C is monotonic (or monotone) if

for all x,y in D, x <= y => f(x) <= f(y).

("<=" is written in LaTeX as \sqsubseteq).
, formal, or unusual in content or delivery. Although there are no simple answers as to why individuals respond and interact as they do, various models have been proposed.

Historical and Theoretical Models

Our understanding of autism has evolved significantly over the past 50 years. In the early 1940s Leo Kanner Leo Kanner (June 13, 1894 – April 3, 1981) was an Austrian-American psychiatrist and physician known for his work related to autism.

Kanner was born in Klekotow, Austria.
 and Hans Asperger Hans Asperger (February 18 1906 – October 21 1980) was the Austrian pediatrician after whom Asperger syndrome is named. Life
Born on a farm outside Vienna, Asperger displayed an early talent for languages. He was a member in the youth movements of the 1920s.
 independently used the term "autistic autistic /au·tis·tic/ (aw-tis´tik) characterized by or pertaining to autism. " to describe children who appeared to have unusual reactions to sensory stimuli, exhibit stereotyped and repetitive behavior, lack imitative im·i·ta·tive  
adj.
1. Of or involving imitation.

2. Not original; derivative.

3. Tending to imitate.

4. Onomatopoeic.
 responses, desire sameness, and develop strong attachments to objects rather than people (Wing, 1991). Although both Kanner and Asperger believed autism to be an inborn inborn /in·born/ (in´born?)
1. genetically determined, and present at birth.

2. congenital.


in·born
adj.
1. Possessed by an organism at birth.

2.
 biological disorder, Bruno Bettleheim reinterpreted autism as a psychiatric disability resulting from parent-child pathology (Yeung-Courchesne & Courchesne, 1997). Neuropsychological neu·ro·psy·chol·o·gy  
n.
The branch of psychology that deals with the relationship between the nervous system, especially the brain, and cerebral or mental functions such as language, memory, and perception.
 research has confirmed Kanner's theory that the cause of autism is primarily biological, and that differences in perception and behavior can be attributed to neurological differences (Frith, 1991; Yeung-Courchesne & Courchesne, 1997). Unfortunately, Bettleheim's ideas seem to have persisted in the minds of many professionals and lay persons, causing parents of children with autism to feel inadequate or stigmatized (Wing, 1991).

Neurobiological neu·ro·bi·ol·o·gy  
n.
The biological study of the nervous system or any part of it.



neuro·bi
 Model

Recent theories of autism have evolved from clinical observation and biological studies. Researchers agree that problems associated with autism, such as the inability to plan, shift attention, or respond to novel situations result from impaired structure and function of the brain. Different theories attribute autistic perception and behavior to a variety of root causes such as: problems adjusting spatial attention; difficulties modulating arousal and attention; stimulus selectivity; inability to engage in joint attention; faulty executive function; and poor working memory (Yeung-Courchesne & Courchesne, 1997). Researchers suggest that difficulties with communication, social interaction, organization, and attention are symptomatic of damage to specific areas of the central nervous system. However they disagree on the exact site of the damage (Cox & Mesibov, 1995; Hughes, Russell & Robbins, 1994; Shea & Mesibov, 1985).

Clinical-Behavioral Model

Although researchers who examine autism from clinical and behavioral perspectives do not reject neurobiological theories, they interpret autism differently. For example, Duchan and Palermo (1982) conceptualized autism as a thematization disorder. Thematization is the cognitive ability to think representationally; thematization gives meaning to images, movement and speech. When this ability is impaired, the individual has a difficult time understanding events, sequencing, or perceiving order.

Duchan and Palermo (1982) speculated that individuals with autism create meaning in ways that differ from those without autism. For example, rhythmic, self-stimulatory behaviors may have a temporal regulatory function, literally helping people keep time. Likewise, perseveration could indicate difficulty changing themes. Unusual use of language such as pronoun reversal Pronoun reversal is a language abnormality common in the speech of autistic children. Children refer to themselves as "he", "she", or "you", or by their own proper names. Pronoun reversal is closely linked to echolalia.  and metaphorical speech (e.g., referring to five crayon crayon, any drawing material available in stick form. The term includes charcoal, conte crayon, chalk, pastel, grease crayon, litho crayon, and children's wax colors.  colors by the names of the Dion quintuplets (see Wing, 1991)) could indicate atypical patterns of thought. Within this frame, contextually inappropriate speech and actions, as well as repeated words and movements, are explained as problems in creating and terminating "themes" (Duchan & Palermo, 1982).

Proponents of theory of mind posit that people with autism lack the ability to comprehend thoughts and experiences that occur outside of themselves (Baltaxe & Simmons, 1992; Happe, 1991; Russell & Jarrold, 1998). Difficulties understanding what is salient to another person can result in communication that appears irrelevant or bizarre to a communication partner (Duchan & Palermo, 1982). Further, problems recognizing the mental states of other people appear to interfere with the ability to identify with others or to understand another person's point of view. These problems may prevent the development of a concept of agency (Hughes, Russell & Robbins, 1994). In other words Adv. 1. in other words - otherwise stated; "in other words, we are broke"
put differently
, a person with autism might have a difficult time determining who is responsible for a given action.

Dyspraxia dyspraxia /dys·prax·ia/ (dis-prak´se-ah) partial loss of ability to perform coordinated acts.

dys·prax·i·a
n.
Impairment of the ability to execute purposeful, voluntary movement.
 Model

The introduction of facilitated communication This article or section reads like a and may need a .
Please help [ to improve this article] to make it in tone and meet Wikipedia's .
 (FC) in the early 1990s prompted a re-examination of autism. FC, a method whereby individuals with significant communication disorders are physically supported by a facilitator to type or point to letters, numbers, or symbols, yielded circumscribed circumscribed /cir·cum·scribed/ (serk´um-skribd) bounded or limited; confined to a limited space.

cir·cum·scribed
adj.
Bounded by a line; limited or confined.
 evidence that people with autism and other severe developmental disabilities might be able to communicate at a more sophisticated level than previously thought (Biklen, 1990; Biklen & Cardinal, 1997). Although the claims of authentic communication through FC have been strongly contested (Green & Shane, 1994), renewed interest in this population has resulted in a fresh examination of autism.

Venter venter /ven·ter/ (ven´ter) pl. ven´tres   [L.]
1. a fleshy contractile part of a muscle.

2. abdomen.

3. a hollowed part or cavity.


ven·ter
n.
, Lord and Schopler (1992) noted that professionals tend to equate the inability of people with autism to respond in predictable ways with deficits in comprehension. Biklen (1993) and Donnellan, Sabin Sa·bin , Albert Bruce 1906-1993.

American microbiologist and physician who developed a live-virus vaccine against polio (1957), replacing the killed-virus vaccine invented by Jonas Salk.
 & Majure (1992) reconceptualized autism as a disorder of praxis (i.e., voluntary movement) rather than thought. In brief, dyspraxia theory explains problems associated with autism as difficulties in carrying out one's intentions. The dyspraxia model of autism provides an explanation for the acute frustration and disparate performance seen in people with autism (Barron & Barron, 1992, Park, 1982).

Social Model

More than other developmental disabilities, autism has been medicalized. Life with autism begins with a diagnosis that has a poor prognosis for recovery. The behaviors of individuals with the label are called symptoms. These powerful concepts propel helping systems that, in turn, crank out favored treatments of the day. Thus, autism is reified as a disease. Yet it is possible to conceptualize con·cep·tu·al·ize  
v. con·cep·tu·al·ized, con·cep·tu·al·iz·ing, con·cep·tu·al·iz·es

v.tr.
To form a concept or concepts of, and especially to interpret in a conceptual way:
 autism as difference rather than as dysfunction. Jim Sinclair Jim Sinclair is an autism rights activist who, together with fellow autistics, Kathy Lissner Grant and Donna Williams, formed Autism Network International after spending three days together in 1992[1].  (1992), a person with autism, compared interactions between individuals with and without autism to a cross-cultural interaction. Although autism does not meet the strict definition of culture (e.g., it is not generally passed from one generation to the next), sensory, experiential, and cognitive differences may provide a "design for living" much as sensory and experiential differences define Deaf culture This article describes aspects of Deaf cultures. See also deafness and Models of deafness. For a discussion of the medical condition, see hearing impairment.

Deaf community and Deaf culture
 (Shapiro, 1994).

Each of the models described above contributes to our understanding of autism. Yet, as Courchesne, Townsend and Chase (1995) point out, it is important not to look at the end products of autism for development of an overarching theory in the same way that it makes no sense to look at cold symptoms to understand the cause and nature of colds. Further, researchers agree that any one perspective cannot alone describe the challenges faced by people with autism (Yeung-Courchesne & Courchesne, 1997; Shea & Mesibov, 1985).

The Autism Experience

Although theories of autism are useful, none accurately describes the lived experience of autism. Autobiographies and first hand accounts by and about individuals with autism provide a unique window into their experiences.

Method

The initial phase of a larger study, the research presented here was conducted to establish an "insider's" perspective of the experience of autism and related disabilities. First-hand and autobiographical accounts by 13 authors, comprising approximately 1700 pages were examined. Five of the authors were individuals with autism; four were parents of children and adults with autism. One autobiography was written by a mother and her autistic son. The remaining three texts include an analysis of the autobiographical writing of three adults with Asperger Syndrome Asperger syndrome
Children who have autistic behavior but no problems with language.

Mentioned in: Autism
, an interview, and a book review.

Initially, three autobiographies (Grandin, 1995; Park, 1982; Williams, 1994b) were carefully read and key themes were identified. Themes were continuously compared to phenomena described in the remaining texts in order to identify commonalities as well as disagreements. All of the autobiographers discussed their difficulties and experiences with sensation, attention, affect, communication, and social interaction. Many individuals with autism and all parents suggested strategies for coping with these difficulties.

Findings

People labeled autistic describe an unusual relationship with the world around them. From an early age, autobiographers distinguished the "real world" from how they personally experienced the world (Barron & Barron, 1992; Grandin, 1995; Sellin, 1995; Williams, 1992). Donna Williams (1992) characterized her relationship to others as mutually incomprehensible. Just as family members could not interpret the meeting of her solitary play, she could not understand their words or actions.

Sensation. Differences in neurological development can result in altered sensitivity to sound, touch, visual input, and movement. Sensation may be fragmented, altered, variable, increased, or decreased. For example, Sean Barron described his early memories of people as fragmented: "Even when I saw them they were still in pieces" (Barron & Barron, 1992, p. 21). Autobiographers reported a limited capacity to both filter stimuli and to experience more than one sensation at any given time (Grandin & Scariano, 1986, Williams, 1994b).

Sensitivity to touch, sight and sound can result in a widely reported experience of what Williams (1992) has termed "shut down." In his autobiographical book of poetry, Birger Sellin Birger Sellin (born 1973, Berlin) was the first functionally non-verbal person with autism to become a published author in Germany. His first published work, largely poetry, was entitled I Don't Want to Be Inside Me Anymore: Messages from Autistic Mind  (1995) described "shut down" as an acute panic attack panic attack
n.
The sudden onset of intense anxiety, characterized by feelings of intense fear and apprehension and accompanied by palpitations, shortness of breath, sweating, and trembling. Also called anxiety attack.
 that is brought about by sensory and emotional bombardment. The shut down experience appears to be worsened by intrusions that cannot be avoided or are of uncertain duration.

Attention. Donna Williams (1994a) observed that she, as well as others with autism, seemed to have a significantly limited ability to attend to more than one sensation at a time. This observation is confirmed by Courchesne and his colleagues who noted both a dissociation between auditory and visual attention, and an inability to rapidly shift attention in individuals with autism. They stated that deficient attention contributed to the social and cognitive delays in autism (Courchesne et al., 1994), perhaps due to the forfeiture of attention to one sensory mode for another (e.g., touch over vision). Although attentional limitations interfere with learning, the ability to focus acutely on one skill or activity to the exclusion of other stimuli can also lead to proficiency. Individuals with autism often have strong interests and some develop extraordinary talents. Examples were numerous in the autobiographical literature: Jesse Park (Park, 1992) became a respected artist; Temple Grandin Temple Grandin, (born August 29, 1947 in Boston, Massachusetts) is a professor at Colorado State University and a professional designer of humane livestock facilities. Early life and education  (1995) gained international recognition as a designer of livestock equipment; and Donna Williams (1992) taught herself to play piano, developing her own notation system. Others exhibited skill in poetry, music, and mathematics (Akerley, 1992; Sellin, 1995; Sullivan, 1992).

Emotion. Distress and anxiety are common emotional states for people who have a difficult time interpreting events and filtering stimuli. Parents of people with autism have noted that their children experience tremendous distress over seemingly minor problems such as an unexpected event or minor error (Park, 1992; Sullivan, 1992).

Certainly, not all emotions experienced by people with autism are negative. Donna Williams described the intense pleasure she received from reflected light patterns, stable fluctuations of sound, jumping, playing music, or watching a fire (Blakely, 1992, Williams, 1994a; Williams, 1994b). Likewise, Temple Grandin reported experiencing acute pleasure when interacting with animals or while involved in complex perceptual-spatial tasks (Grandin & Scariano, 1986; Grandin, 1995).

Communication. Even for individuals with autism who are very capable, problems with communication are often quite fundamental. Individuals with autism may misinterpret mis·in·ter·pret  
tr.v. mis·in·ter·pret·ed, mis·in·ter·pret·ing, mis·in·ter·prets
1. To interpret inaccurately.

2. To explain inaccurately.
 situational nuances, fail to consider context, and have difficulty distinguishing the essential from the trivial (Dewey, 1991; Happe, 1991). Temple Grandin (1992) wrote that, as a child, verbal communication was extremely difficult. She screamed when she could find no other way to communicate. Donna Williams (1994b) reported that she was often able to understand words, sentences, even contexts, without grasping the significance of a spoken message. Difficulty initiating conversations, use of idiosyncratic id·i·o·syn·cra·sy  
n. pl. id·i·o·syn·cra·sies
1. A structural or behavioral characteristic peculiar to an individual or group.

2. A physiological or temperamental peculiarity.

3.
 language, failure to listen to or follow-through on requests, and specific problems with receptive and/or expressive communication are commonly reported in literature on autism and related disabilities (Cox & Mesibov, 1995; Frith, 1991; Townsend & Courchesne, 1994).

Although several authors reported that they did not feel loneliness, sexual desire, or need for friendship in the same way that nonautistic individuals do, they sometimes desired relationships and friendship (Blakely, 1992; Grandin, 1995; Sinclair, 1992). Making friends is complicated by social deficits. The subtleties of body language, facial expressions, tone of voice, and physical proximity can be difficult for people with autism to interpret or produce (Grandin, 1995). Even the intentions and motivations of others are often difficult to comprehend (Sellin, 1995; Sinclair, 1992).

Effective Strategies and Approaches

Venter, Lord and Schopler (1992) noted that capable individuals with autism were more likely to develop good coping strategies than others. Nonetheless, even the most significantly disabled individuals can acquire useful strategies when approached consistently and respectfully. Below, the coping strategies reported by individuals with autism are delineated. Effective approaches to supporting and assisting people with autism, gleaned from first hand accounts by parents and individuals with autism, are also provided.

Rituals, Repetition, and Rhythm. Rituals seem almost universal among individuals with autism (Dewey, 1991; Tsai, 1992). The use of rhythmic movements, humming and rocking were reported by autobiographers (Barron & Barron, 1992; Sellin, 1995; Williams, 1992). Authors used repetition as both a soothing activity and as a self-protective strategy to better cope with sensory hypersensitivity hypersensitivity, heightened response in a body tissue to an antigen or foreign substance. The body normally responds to an antigen by producing specific antibodies against it. The antibodies impart immunity for any later exposure to that antigen. . Donna Williams (1994a) found that rhythm of walking while talking helped her to structure her thoughts. Although within medical and clinical models repetitive behaviors are considered pathological, individuals with autism appear to find them useful. In addition to benefits such as skill development, these activities were reported to be calming and enjoyable.

Compulsions also appear to be common among people with autism. This may be due to the fact that people with autism do not experience time and place in exactly the same way that people without autism do. Courchesne, Townsend, Akshoomoff and their colleagues (1994) asserted that interactions often lack context or temporal continuity for individuals with autism. Temple Grandin (1995) and Birger Sellin (1995) described a driving need to keep to a schedule. Knowing what to expect kept them calm. Donna Williams (1992a) found ordering objects by color or pattern soothing. Changes of plans, transitions between activities, waiting, and other time-related events can cause extreme anxiety in an individual for whom passage of time seems discontinuous discontinuous /dis·con·tin·u·ous/ (dis?kon-tin´u-us)
1. interrupted; intermittent; marked by breaks.

2. discrete; separate.

3. lacking logical order or coherence.
. Birger Sellin (1995) used time markers such as meals, rising, and retiring to help control his anxiety.

Sensory Manipulation. Autobiographers used a wide range of strategies to deal with sensory overload. Donna Williams controlled visual overload by using peripheral vision peripheral vision
n.
Vision produced by light rays falling on areas of the retina beyond the macula. Also called indirect vision.


Peripheral vision 
 to view a stimulating object (Blakely, 1992). Temple Grandin (1995) wore tinted glasses to reduce visual stimulation. She also used what she called a squeeze machine. The squeeze machine, designed by Grandin, provided firm, controlled pressure to the entire body, resulting in a sense of calmness and reintegration reintegration /re·in·te·gra·tion/ (-in-te-gra´shun)
1. biological integration after a state of disruption.

2. restoration of harmonious mental function after disintegration of the personality in mental illness.
 (Grandin & Scariano, 1986).

Both Temple Grandin (1995) and Donna Williams (Blakely, 1992) reported using their sense of touch to better understand things. Because her visual sense was unreliable, Williams used touch to establish a boundary between herself and objects. She did this by pounding, slapping, or tracing. Grandin found touch to be helpful in establishing her sense of physical location, but noted that touch could also be troublesome due to her tactile defensiveness.

Recommendations for the Rehabilitation Professional

When interacting with an individual with autism, it is important that the rehabilitation counselor understand the person first as a unique individual. However, specific approaches and strategies that other people with autism have found helpful can be quite useful. Following are five specific recommendations that may be valuable to rehabilitation counselors as they plan for and with individuals who have autism.

Work with, rather than against, interests and abilities. Many individuals with autism have unique strengths and strong interests. Accommodating an individual's interests and abilities in creative ways produces better outcomes than trying to fit the individual to certain jobs or environments. For example, a person with autism might excel at tasks involved in stock work such as ordering and organizing items. If the job also requires waiting on customers, the individual may have difficulties. A person with an excellent memory may be very well suited for employment that requires command of many discrete pieces of information. Such abilities are in demand in settings as diverse as business offices, bookstores, and warehouses. An individual with artistic or musical abilities might enjoy working for a theater or school of music. Someone with a fixation on a specific topic such as horses might find satisfaction working for a riding stable.

Introduce changes gradually and thoughtfully. When assisting individuals with autism toward their vocational goals, it is important to choose ones battles wisely. First, the counselor must take time to assure that the person with autism shares his or her understanding of problems and goals before change is explored. Second, changes should be considered carefully. Dewey (1991) remarks that small victories gained through great effort may not be worth the struggle. Even with successful learning, generalization of knowledge to new settings can be difficult (Frith, 1991). Third, the counselor needs to understand the function of various behaviors. Some changes may not be beneficial to the person. For example, rocking, finger flicking and humming may have important self-regulatory functions. Such behaviors should be accommodated rather than extinguished (Williams, 1994a).

Communicate clearly and directly. The effectiveness of the counselor's interventions depends as much on approach as on content. People with autism may not understand indirect communication such as figures of speech, body language, tone of voice, and facial expressions. They tend to take words literally. This could be due less to naivete na·ive·té or na·ïve·té  
n.
1. The state or quality of being inexperienced or unsophisticated, especially in being artless, credulous, or uncritical.

2. An artless, credulous, or uncritical statement or act.
 than to unique perceptions and language processes. In order to avoid misunderstandings, one should be clear and specific, avoiding euphemisms and figures of speech. Not only do people with autism have a difficult time interpreting nonverbal messages, they may also send faulty social cues. For instance, during a job interview, lack of appropriate eye-contact might inaccurately convey a lack of interest to a potential employer.

Interacting with a person with autism through e-mail or notes may result in better understanding than face-to-face conversations. Temple Grandin (1995) states that, for her, reading is easier than listening, and observing easier than reading. Donna Williams (1994a) suggests interacting through shared activities or typing rather than conversation to avoid sensory bombardment.

People with autism may become upset unexpectedly. Strong expectations, anticipation, and the emotional reactions of others can be overwhelming for a person with autism, as can sensory input such as light, sound, breath, smells, touch, and texture (Williams, 1994a). A calm voice and a firm, persistent, and confident manner is helpful in these situations (Torski, 1992). Minimizing eye contact and using prompts sparingly are also helpful approaches (Happe, 1991; Williams, 1994a).

Provide appropriate feedback. Like others, individuals with autism may be sensitive to criticism. However, they may also feel responsible for information and situations that are beyond their knowledge or control. They may not be able to detect when something is done right, requiring others to tell them (Dewey, 1991). Genuine compliments and feedback are effective. Akerley (1992) suggests that one explicitly distinguish directives from advice, pointing out to the person that it is sometimes necessary to correct their errors as a short cut to success. Gentle encouragement may allow the individual to incorporate new skills and activities in an atmosphere of trust (Williams, 1994a).

Plan for relaxation and physical activity. People with autism appear to experience a great deal of anxiety just performing ordinary activities. Interactions, transitions, unexpected changes, demands, and sensory stimuli can all be extraordinarily stressful for persons with autism. For many, exercise and movement create a sense of calm (Grandin, 1995; Sellin 1995). When possible, physical activity, such as walking, should be scheduled into the workday. Task such as delivering mail, running errands, or unloading a truck can provide relief from stress and anxiety.

Conclusion

Children are generally on their way to mastering the developmental tasks of communicating effectively, controlling impulses, and participating in social groups by the time they enter school. Nonverbal communication nonverbal communication 'Body language', see there  such as "reading" facial expressions and body language, and interpreting emotions seem to come naturally to most children. However, children with developmental disabilities by definition do not develop along the same paths as nondisabled children (Goldberg, 1981). According to Courchesne, Townsend and Chase (1995) pervasive developmental disabilities affect the individual from infancy. Individuals with autism may discover methods of interaction and personal organization that differ radically from those that are easily learned by children who do not have impairments.

Donna Williams (1994a) warns us not to view people with autism as slow or broken versions of nonautistic individuals. The experience of autism must be understood as unique. Some people with autism even object to person-first language. Jim Sinclair (personal communication) states that "person with autism" suggests that the autism can be separated from the person. As he put it, "I am autistic because I cannot be separated from how my brain works." People with autism experience the world differently and should be approached with openness and respect. In order to understand autism, strengths must be considered as well as deficits (Happe', 1991; Yeung-Courchesne & Courchesne, 1997).

Yeung-Courchesne and Courchesne (1997) suggest that professionals not put too much stock in formal assessments of persons with autism. They note that IQ measures are part and parcel with neurological differences: a product of neurobiology Neurobiology

Study of the development and function of the nervous system, with emphasis on how nerve cells generate and control behavior. The major goal of neurobiology is to explain at the molecular level how nerve cells differentiate and develop their
, not a cause. As Duchan (1986) remarked, the expression of knowledge may not be equal to what that person actually knows. Therefore, multiple methods for teaching as well as for assessing understanding are advisable.

References

Akerley, M. S. (1992). The last bird. In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 266-275). New York New York, state, United States
New York, Middle Atlantic state of the United States. It is bordered by Vermont, Massachusetts, Connecticut, and the Atlantic Ocean (E), New Jersey and Pennsylvania (S), Lakes Erie and Ontario and the Canadian province of
: Plenum Press.

American Psychiatric Association (1994). Diagnostic and statistical manual of mental disorders Diagnostic and Statistical Manual of Mental Disorders /Di·ag·nos·tic and Sta·tis·ti·cal Man·u·al of Men·tal Dis·or·ders/ (DSM) a categorical system of classification of mental disorders, published by the American Psychiatric Association, that delineates objective , fourth edition. Washington DC: American Psychiatric Association.

Baltaxe, C. A. M., and Simmons, J. Q. (1992). A comparison of language issues in high functioning autism and related disorders with onset in childhood and adolescence. In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 210-225). New York: Plenum Press.

Barron, J., and Barron, S. (1992). There's a boy in here. New York: Simon & Schuster Simon & Schuster

U.S. publishing company. It was founded in 1924 by Richard L. Simon (1899–1960) and M. Lincoln Schuster (1897–1970), whose initial project, the original crossword-puzzle book, was a best-seller.
.

Biklen, D. (1990). Communication unbound unbound

said of electrolytes, e.g. iron and calcium, and other substances which are circulating in the bloodstream and are not bound to plasma proteins so that they are available immediately for metabolic processes. See also calcium, iron.
: Autism and praxis. Harvard Educational Review The Harvard Educational Review is an interdisciplinary scholarly journal of opinion and research dealing with education, published by the Harvard Education Publishing Group. The journal was founded in 1930 with circulation to policymakers, researchers, administrators, and teachers. , 60, 291-314.

Biklen, D. (1993). Communication unbound. New York: Teachers College Press.

Biklen, D., and Cardinal, D. N. (1997). Contested words, contested science. New York: Teachers College Press.

Biklen, D., and Duchan, J. F. (1994). "I am intelligent": the social construction of mental retardation mental retardation, below average level of intellectual functioning, usually defined by an IQ of below 70 to 75, combined with limitations in the skills necessary for daily living. . Journal of the Association for Persons with Severe Handicaps, 19(3), 173-184.

Blakely, M. K. (1992, October). Voyage to a small planet. Mirabella, 78-82.

Bolton, B., and Cook, D. (1997). Master's degree curriculum in rehabilitation counseling. [Special issue]. Rehabilitation Counselor Education, 11(3), 151-271.

Courchesne, E., Townsend, J., Akshoomoff, N. A., Saitoh, O. Yeung-Courchesne, R., Lincoln, A. J., James, H. E., Hass, R. H., Schreibman, L., and Lau, L. (1994). Impairment in shifting attention in autistic and cerebellar cerebellar /cer·e·bel·lar/ (ser?e-bel´ar) pertaining to the cerebellum.
Cerebellar
Involving the part of the brain (cerebellum), which controls walking, balance, and coordination.
 patients. Behavioral Neuroscience, 108(5), 848-865.

Courchesne, E., Townsend, J., and Chase, C. (1995). Neurodevelopmental principles guide research on developmental psychopathologies. In D. Cicchetti and D. J. Cohen cohen
 or kohen

(Hebrew: “priest”) Jewish priest descended from Zadok (a descendant of Aaron), priest at the First Temple of Jerusalem. The biblical priesthood was hereditary and male.
 (Eds.) Developmental psychopathology, Vol. I (pp. 195-226). New York: John Wiley & Sons.

Cox, R. D., and Mesibov, G. (1995). Relationship between autism and learning disabilities. In E. Schopler and G. B. Mesibov (Eds.), Learning and cognition in autism: Current issues in autism (pp. 57-70). New York: Plenum Press.

Developmental Disabilities Assistance and Bill of Rights Act of 1984, PL 98-527. (October 19, 1984). Title 42, U. S. C. 6000 et seq et seq. (et seek) n. abbreviation for the Latin phrase et sequentes meaning "and the following." It is commonly used by lawyers to include numbered lists, pages or sections after the first number is stated, as in "the rules of the road are found in Vehicle Code : U.S. Statutes at Large An official compilation of the acts and resolutions of each session of Congress published by the Office of the Federal Register in the National Archives and Record Service. , 98, 2662-2685.

Dewey, M. (1991). Living with Asperger syndrome. In U. Frith (Ed.). Autism and Asperger Syndrome, 184-206. Cambridge, UK: Cambridge University Press Cambridge University Press (known colloquially as CUP) is a publisher given a Royal Charter by Henry VIII in 1534, and one of the two privileged presses (the other being Oxford University Press). .

Donnellan, A. M., Sabin, L. A., and Majure, L. A. (1992). Facilitated communication: Beyond the quandary to the question. Topics in Language Disorders, 12(4), 69-82.

Duchan, J. (1986). Learning to describe events. Topics in Language Disorders, 6(4), 27-36.

Duchan, J. and Palermo, J. (1982). How autistic children view the world. Topics in Language Disorders, 83, 11-15.

Frith, U. (1991). Autism and Asperger syndrome. Cambridge, UK: Cambridge University Press

Goldberg R. T. (1981). Toward an understanding of the rehabilitation of the disabled adolescent. Rehabilitation Literature, 42, 66-74.

Grandin, T. (1992). An inside out view of autism. In E. Schopler & G. B. Mesibov (eds.), High functioning individuals with autism (pp. 105-126). New York: Plenum Press.

Grandin, T. (1995). Thinking in pictures. New York: Bantam Books

Grandin, T., and Scariano, M. M. (1986). Emergence: Labeled autistic. Novato, CA: Arena.

Green, G., and Shane, H. (1994). Science, reason, and facilitated communication. Journal of the Association for Persons with Severe Handicaps, 19(3), 151-172.

Happe' (1991). The autobiographical writings of three Asperger syndrome adults: problems with interpretation and implications for theory. In U. Frith (Ed.). Autism and Asperger Syndrome, 207-242. Cambridge, UK: Cambridge University Press.

Hughes, C., Russell, J., Robbins, T.W. (1994). Evidence for executive dysfunction in autism. Neuropsychologia, 32(4), 447-492.

Park, C. (1982). The siege. Boston: Little Brown and Company.

Park, C. (1992). Autism into art: A handicap transfigured. In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 250-259). New York: Plenum Press.

Rehabilitation Act Amendments of 1986, PL 99-506. Title 29, U.S.C. 701 et seq: U. S. Statues at Large, 100, 1807-1846.

Rehabilitation Act Amendments of 1998. S. 1579.

Russell, J., and Jarrold, C. (1998). Error-correction problems in autism: Evidence for a monitoring impairment? Journal of Autism and Developmental Disorders, 28(3), 177-188.

Sellin, B. (1995). I don't want to be inside me anymore. New York: Basic Books.

Shapiro, J. P. (1994). No pity: People with disabilities forging a new civil rights movement. New York: Times Books.

Shea, V. & Mesibov, E. (1985). The relationship of learning disabilities and higher-level autism. Journal of Autism and Developmental Disabilities, 15(4), 425-435.

Sinclair, J. (1992). Bridging the gaps: An inside out view of autism (or, do you know what I don't know Don't know (DK, DKed)

"Don't know the trade." A Street expression used whenever one party lacks knowledge of a trade or receives conflicting instructions from the other party.
?). In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 294-302). New York: Plenum Press.

Sullivan, R. C. (1992). Rain man and Joseph. In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 243-250). New York, NY: Plenum Press.

Torski, C. V. (1992). Criticism and the autistic person. In E. Schopler and G. B. Mesibov (eds.), High functioning individuals with autism (pp. 259-266). New York: Plenum Press.

Townsend, J. & Courchesne, E. (1994). Parietal parietal /pa·ri·e·tal/ (pah-ri´e-t'l)
1. of or pertaining to the walls of a cavity.

2. pertaining to or located near the parietal bone.


pa·ri·e·tal
adj.
1.
 damage and narrow "spotlight" spatial attention. Journal of Cognitive Neuroscience, 6(3), 220-232.

Tsai, L. Y. (1992). Diagnostic issues in high functioning autism. In E. Schopler and G. B. Mesibov (Eds.). High functioning individuals with autism (pp. 11-40). New York: Plenum Press.

Venter, A., Lord, C., and Schopler, E. (1992). A follow-up study of high functioning autistic children. Journal of Child Psychiatry child psychiatry

Branch of medicine concerned with mental, emotional, and behavioral disorders of childhood. It arose as a separate field in the 1920s, largely because of the pioneering work of Anna Freud.
, 33(3), 489-507.

Williams, D. (1992). Nobody, nowhere. New York: Times Books

Williams, D. (1994a). Invited commentary: In the real world. Journal of the Association for persons with Severe Handicaps, 19(3), 196-199. Williams, D. (1994b). Somebody, somewhere. New York: Times Books

Wing, L. (1991). The relationship between Asperger syndrome and Kanner's autism. In U. Frith (Ed.), Autism and Asperger Syndrome, (pp. 93-121). Cambridge, UK: Cambridge University Press.

Yeung-Courchesne, R., & Courchesne, E. (1997). From impasse to insight in autism research: From behavioral symptoms to biological explanations. Development & Psychopathology psychopathology /psy·cho·pa·thol·o·gy/ (-pah-thol´ah-je)
1. the branch of medicine dealing with the causes and processes of mental disorders.

2. abnormal, maladaptive behavior or mental activity.
, 9, 389-419.

Marjorie F. Olney, Ph.D., CRC (Cyclical Redundancy Checking) An error checking technique used to ensure the accuracy of transmitting digital data. The transmitted messages are divided into predetermined lengths which, used as dividends, are divided by a fixed divisor. , Assistant Professor, Rehabilitation Program, 120 Huff Hall, MC 588, 1206 S. Fourth University of Illinois at Urbana-Champaign Early years: 1867-1880
The Morrill Act of 1862 granted each state in the United States a portion of land on which to establish a major public state university, one which could teach agriculture, mechanic arts, and military training, "without excluding other scientific
, IL 61820
COPYRIGHT 2000 National Rehabilitation Association
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 2000, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

 Reader Opinion

Title:

Comment:



 

Article Details
Printer friendly Cite/link Email Feedback
Author:Olney, Marjorie F.
Publication:The Journal of Rehabilitation
Date:Oct 1, 2000
Words:5031
Previous Article:Rehabilitation Counselors' Experiences with Client Death and Death Anxiety.(Statistical Data Included)
Next Article:An Exploratory Study on the Work of Independent Living Centers to Address Abuse of Women with Disabilities.(Statistical Data Included)
Topics:



Related Articles
Intervention for adults with autism.
Adults with autism: habilitation challenges and practices.
What potential does the applied behavior analysis approach have for the treatment of children and youth with autism?
Drug fails in autism study.(Biomedicine)(Brief Article)
Assault on autism: scientists target drugs and other environmental agents that may play a role.
Promoting learning for children with autism: some schools may not be fully prepared to provide the learning environments required by the growing...

Terms of use | Copyright © 2009 Farlex, Inc. | Feedback | For webmasters | Submit articles