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Special education in India at the crossroads.

Mom: Arun, bring your homework diary.
Arun: I have only math and science homework today.
Mom: Show me! Hmmm! What have you written, Arun? I can't make any sense
at all. Again you did not copy the sums or your science homework
correctly from the blackboard. How many times have I told you to
carefully copy what the teacher writes on the board? Look how you
have spelled Siecnec. I don't know what to do with you.
(Arun sits still on the chair as his eyes well up with tears.)


Here, a frustrated frus·trate  
tr.v. frus·trat·ed, frus·trat·ing, frus·trates
1.
a. To prevent from accomplishing a purpose or fulfilling a desire; thwart:
 mother and her son in India are tangled in a repeat of a scene that can be seen in families with children with dyslexia dyslexia (dĭslĕk`sēə), in psychology, a developmental disability in reading or spelling, generally becoming evident in early schooling. To a dyslexic, letters and words may appear reversed, e.g.  every evening as they work toward completing the child's homework. Both feel helpless. The mother thinks her son's carelessness is the reason for his mistakes, whereas the real reason lies elsewhere. Soon, the problem will spin out of control as the child with dyslexia faces increasing academic challenges. It is estimated that at least 10 percent of India's children have dyslexia (Krishnakumar, 1999; P. Mirchandani, personal communication, June 6, 2006). Parents and teachers struggle as they do not know the reasons for the child's failure and hence label the child as lazy (Mirchandani, 2006).

In this article, we will first discuss the multi-tiered Indian education system. Then, using dyslexia as an example, the authors will explain the many challenges in identifying learning difficulties, to illuminate the rough road ahead for special needs children in inclusive settings. The burgeoning efforts of individuals and organizations to support and educate children with disabilities also will be discussed. Finally, the authors will present recommendations.

The Indian Education System

The Indian government faces the challenge of achieving Sarva Shiksha Abhiyan The 'Sarva Shiksha Abhiyan' (Hindi: The 'Education for All' Movement, sometimes referred to as "each one teach one") is a flagship programme of the Government of India for achievement of universalization of elementary education in a time bound manner, as  (SSA (Serial Storage Architecture) A fault tolerant peripheral interface from IBM that transfers data at 80 and 160 Mbytes/sec. SSA uses SCSI commands, allowing existing software to drive SSA peripherals, which are typically disk drives. ), which means Universal Elementary Education elementary education
 or primary education

Traditionally, the first stage of formal education, beginning at age 5–7 and ending at age 11–13.
, by the target date of 2010 (Soni, 2004). Meeting a goal this ambitious is possible only if governmental agencies at the federal, state, and local levels work cooperatively. Currently, 5.5 million teachers teach 202.5 million children in about one million schools. Statistics show that 82 percent of the population has access to primary education within a one-kilometer radius of home (Rajakumar, Kumar, Uppal, & Devikar, 2005). One of the primary objectives of SSA is to educate girls and children with special needs, currently less well-served.

School choices and multilingualism multilingualism: see bilingualism.  in India make the education system complex and multi-tiered. The federal, state, and city government schools and private schools are open to all children. Except for city government schools, the medium of instruction is English in all schools. Private schools charge monthly tuition and generally cater to the higher strata of society. Government schools also may charge tuition on a sliding scale slid·ing scale
n.
A scale in which indicated prices, taxes, or wages vary in accordance with another factor, as wages with the cost-of-living index or medical charges with a patient's income.
. Although parents enjoy freedom of school choice, their financial condition ultimately determines where they may enroll their children.

Indian states are organized linguistically, but one will find many languages spoken in each state. "Linguistic diversity of India poses complex challenges but [it] also [provides] a range of opportunities" (Rajakumar et al., 2005, p. 36) for teachers as well as learners. Fortunately, the curriculum framework of the National Council of Educational Research and Training The National Council of Educational Research and Training (NCERT) is an apex resource organisation set up by the Government of India, with headquarters at New Delhi, to assist and advise the Central and State Governments on academic matters related to school education.  (n.d.) suggests that teachers view this multilingualism as a resource rather than a challenge.

The Many Challenges of Identifying Learning Disabilities

Assessment and Multilingualism. Although the benefits of educating a child using multiple languages are many, the multilingual mul·ti·lin·gual  
adj.
1. Of, including, or expressed in several languages: a multilingual dictionary.

2.
 and the multi-orthographic systems prevalent in India pose fundamental issues in assessing children with special needs (Ramaa, 2000). The mother tongue mother tongue
n.
1. One's native language.

2. A parent language.


mother tongue
Noun

the language first learned by a child

Noun 1.
 of children could be different from the language spoken in a given state, and the medium of instruction in school could be a third language. For example, a child who speaks Tamil, a Dravidian language Noun 1. Dravidian language - a large family of languages spoken in south and central India and Sri Lanka
Dravidic, Dravidian

natural language, tongue - a human written or spoken language used by a community; opposed to e.g.
, at home may live in a northern state where Hindi is widely spoken and attend a school where the medium of instruction is English. This simultaneous exposure to three languages could be demanding even for a typically developing child, and much more so for a child with a learning disability.

To rule out whether the child's learning difficulty is caused by limited proficiency in the language of the school or by a learning disability, assessment is essential. However, "identification and diagnosis of learning disability is very difficult because ready-made standardized assessment tools are not available in all of India's different languages. There is an urgent need to develop standardized ... assessment instruments" (Ramaa,2000,p.271). Most of the assessment tools are in English, adapted from Western countries. Efforts to translate assessments into relevant languages have been limited. For example, some researchers have developed their own tools to conduct studies, but no effort has been made to mass-produce them. A few others have translated the available tools from English into vernacular languages and re-standardized them, but this, too, is done on a limited scale (Ramaa, 2000).

Yet another complexity is that multilingualism Perpetuates social strata. Children who come from affluent and educated families are proficient in the English language English language, member of the West Germanic group of the Germanic subfamily of the Indo-European family of languages (see Germanic languages). Spoken by about 470 million people throughout the world, English is the official language of about 45 nations.  and, therefore, are assessed in English, yet children who hail from economically and socially disadvantaged families speak only the vernacular languages and, therefore, are not able to benefit from such testing measures. Thus, more privileged children are likely to receive a more appropriate education than are less privileged children.

Lack of Awareness and Teacher Preparation.

The lack of awareness about learning disabilities among the general public, parents, and teachers is yet another issue. Many parents are not comfortable accepting their child's learning disability and often lack the knowledge to use appropriate remedial education for learning difficulties. The social stigma Social stigma is severe social disapproval of personal characteristics or beliefs that are against cultural norms. Social stigma often leads to marginalization.

Examples of existing or historic social stigmas can be physical or mental disabilities and disorders, as well as
 of a learning disability often prevents parents from seeking appropriate remedies for children with dyslexia ("Stigma stands," 2004). Further, the lack of parental awareness prevents them from disclosing to their child's teacher what they know to be true about their child with special needs. As one educator contemplates,

We are an inclusive school An inclusive school is a school that encourages special needs students and students without special needs to learn together. Therefore, students are able to learn to live together. There are some inclusive schools in the world. , and we expect parents to declare the problem so we can assess the situation to check if we can provide the right kind of support to them, but some parents resort to concealing the fact ... lest we reject admission. They pretend ignorance and wait for us to discover the child's special needs. (N. Sundaram, personal communication, June 17, 2006)

The anguish of parents is in some ways justified. They seek schools that have empathy for atypically a·typ·i·cal   also a·typ·ic
adj.
Not conforming to type; unusual or irregular.



atyp·i·cal
 developing children. Although some schools are inclusive, acceptance is based on the school's capability to provide services and is not, therefore, guaranteed.

Teachers need training to address the special needs of children. Neither preservice nor inservice teacher preparation adequately addresses basic pedagogic ped·a·gog·ic   also ped·a·gog·i·cal
adj.
1. Of, relating to, or characteristic of pedagogy.

2. Characterized by pedantic formality: a haughty, pedagogic manner.
 skills in literacy (Rajakumar et al., 2005). Therefore, teachers are unable to design appropriate learning experiences to suit their students' diverse learning needs, since they lack preparation in various instructional models and differentiated instruction Differentiated instruction (sometimes referred to as differentiated learning) is a way of thinking about teaching and learning. It involves teachers using a variety of instructional strategies that address diverse student learning needs.  (Tomlinson, 2003). The authors talked with a school principal and a school counselor A school counselor is a counselor and educator who works in schools, and have historically been referred to as "guidance counselors" or "educational counselors," although "Professional School Counselor" is now the preferred term.  in Mumbai, who expressed concern that teacher certification programs are short of sufficient courses in special education to prepare general education teachers for inclusive classrooms, and so creativity and trial and error guide the course of remediation (N. Sundaram, personal communication, June 17, 2006; P. Mirchandani, personal communication, June 6, 2006).

Until recently, special needs children were placed in self-contained programs; now, inclusive programs are mushrooming around India. Soni (2004) examined the perception of children with special needs related to their education and found that 62.5 percent of the children felt that their teachers had a positive attitude toward them and that they invested extra time to help them. The same study found that slightly more than half of the children with special needs responded that teachers sometimes pose questions to students with disabilities. Their response to whether or not the teachers encouraged them to ask questions was a resounding re·sound  
v. re·sound·ed, re·sound·ing, re·sounds

v.intr.
1. To be filled with sound; reverberate: The schoolyard resounded with the laughter of children.

2.
 and discouraging never. One can deduce de·duce  
tr.v. de·duced, de·duc·ing, de·duc·es
1. To reach (a conclusion) by reasoning.

2. To infer from a general principle; reason deductively:
 that while the intentions of teachers are generally noble, they are unable to effectively engage students with special needs in the classroom.

Lack of In-house Screening. Finally, the government makes no coordinated effort to identify children with special needs. Even though the government runs screening clinics, they are overburdened o·ver·bur·den  
tr.v. o·ver·bur·dened, o·ver·bur·den·ing, o·ver·bur·dens
1. To burden with too much weight; overload.

2. To subject to an excessive burden or strain; overtax.

n.
1.
 and inadequate to meet the demand. The counselor from Mumbai explained that the city and state schools in Mumbai simply require their students to obtain a certificate from the government screening clinic to receive appropriate services (P. Mirchandani, personal communication, June 6, 2006). Schools have no in-house screening and only a few well-informed school principals refer students to counselors for screening. The counselor added that very little screening is performed at the primary level. A similar sentiment was expressed in a column on dyslexia that ran in a national newspaper: Ramakrishnan (2006) declared that schools often recommend failing students to counselors for assessment and remedial education. Thus, schools only identify special needs children either when there is recurring failure or if the principals are aware of the importance of early identification.

In summary, the lack of assessment tools in vernacular languages, lack of awareness by and training for teachers, and insufficient diagnostic opportunities pose tremendous challenges in identifying children with special needs. Although SSA promises appropriate education for all children, the need continues for a concerted effort by the government to translate its policies from paper into action. The responsibility of identifying special needs cannot be left to parents. Delaying remedial education will only damage the child's self-esteem; therefore, early intervention ear·ly intervention
n. Abbr. EI
A process of assessment and therapy provided to children, especially those younger than age 6, to facilitate normal cognitive and emotional development and to prevent developmental disability or delay.
 is the immediate need. We shall now examine the efforts of the government and individual organizations to bring about change.

Organizational Efforts

Dyslexia, an Example. "Dyslexia ... is the most common and most carefully studied of the SpLDs [specific learning disabilities], affecting 80% of all those identified as learning disabled" (Karande, Sawant, Kulkarni, Galvankar, & Sholapurwala, 2005, p. 96). Both governmental and non-governmental organizations “NGO” redirects here. For other uses, see NGO (disambiguation).

A non-governmental organization (NGO) is a legally constituted organization created by private persons or organizations with no participation or representation of any government.
 have tried addressing this prevalent problem, with varied and often limited success. In 1991, the Madras Madras.

1 State and former province, India: see Tamil Nadu.

2 City, India: see Chennai.
 Dyslexia Association (MDA (1) (Monochrome Display Adapter) The first IBM PC monochrome video display standard for text. Due to its lack of graphics, MDA cards were often replaced with Hercules cards, which provided both text and graphics. See PC display modes and Hercules Graphics. ), a nonprofit service organization, was formed by special educators, philanthropists, and parents (Krishnakumar, 1999). MDA strives to promote awareness, provide training for teachers and administrators, and offer support sessions for parents (Radhakrishnan, 1999). The association holds two training sessions annually with the goal of building up a force of capable teachers and administrators who will, in turn, prepare other teachers. The training sessions address the issues of identification, assessment recommendations, and remedial education for children with dyslexia. MDA recognizes that dyslexia is a subtle disability and that many talents can be lost for sheer lack of timely help (Radhakrishnan, 1999). To identify learning disabilities, MDA runs Ananya, a full-time and part-time remedial program for children ("Workshop on dyslexia," 2004). When children join this program at a school's recommendation, they are pulled out of school anywhere from a term to a year, based on need and progress. The remedial program focuses on the child's strengths and interests as starting points Noun 1. starting point - earliest limiting point
terminus a quo

commencement, get-go, offset, outset, showtime, starting time, beginning, start, kickoff, first - the time at which something is supposed to begin; "they got an early start"; "she knew from the
. (More information can be found at www.mdachennai.org/ ananya_activites.html.) In addition, Ananya conducts yoga, karate, and dance lessons for children with learning disabilities and operates resource centers in 13 schools so that students can attend remedial classes on the school premises.

The significant change happening at the state level pertains to a new policy that affects children with dyslexia. "The Tamil Nadu Tamil Nadu (tăm`əl nä`d), formerly Madras (mədrăs`, mədräs`), state (2001 provisional pop.  Government Order ... issued on February 18, 1999, marks a progressive step towards helping children with dyslexia, which is now recognized as a learning disability" (Krishnakumar, 1999, p. 1). As a result, children with dyslexia now have concessions in school board examinations. Tamil Nadu and Maharashtra are the only two states in India to offer such concessions. B.S. Virudhagirinathan, a consultant clinical neuropsychologist Neuropsychologist
A clinical psychologist who specializes in assessing psychological status caused by a brain disorder.

Mentioned in: Post-Concussion Syndrome
, applauds this step, yet warns that some parents do not take advantage of the concessions, as they are ashamed to admit their child's dyslexia ("Stigma stands," 2004). Some parents believe that their child's disability is the child's fault (Spaeth, 2003).

A school principal (N. Sundaram, personal communication, June 17, 2006) adds another dimension to this discussion. In Maharashtra, parents make a beeline bee·line  
n.
A direct, straight course.

intr.v. bee·lined, bee·lin·ing, bee·lines
To move swiftly in a direct, straight course.
 to the government-accredited centers to get their child certified as having a learning disability so that their child will be exempt from one language. This way, the parents hope to improve their child's overall academic performance. Since education in India India has been a major seat of learning for thousands of years. While some of the country's universities (BITS, IITs, NITs, IISc, TIFR, ISI, IIMs and AIIMS) are among the world's well-renowned, it is also dealing with challenges in its primary education and strives to reach 100% literacy.  is academically driven, scoring high in examinations is closely connected to getting a competitive job or being admitted to institutes of higher education higher education

Study beyond the level of secondary education. Institutions of higher education include not only colleges and universities but also professional schools in such fields as law, theology, medicine, business, music, and art.
.

Some well-informed parents, however, seek help from professional agencies. N. Sundaram, a school principal, explains the types of services offered at his school, which clearly are available only to city dwellers and to those with financial resources.

We have students with dyslexia, ADHD Attention-Deficit/Hyperactivity Disorder (ADHD) Definition

Attention-deficit/hyperactivity disorder (ADHD) is a developmental disorder characterized by distractibility, hyperactivity, impulsive behaviors, and the inability to remain focused on tasks or
, and ADD. We also have two children who have autism autism (ô`tĭzəm), developmental disability resulting from a neurological disorder that affects the normal functioning of the brain. It is characterized by the abnormal development of communication skills, social skills, and reasoning.  and one with Down syndrome Down syndrome, congenital disorder characterized by mild to severe mental retardation, slow physical development, and characteristic physical features. Down syndrome affects about 1 in every 730 live births and occurs in all populations equally. . We accepted these three children only because the parents have managed to find additional support at their own cost. We have a psychologist who is experienced with special needs children. She helps in designing activities for these children, and we also seek guidance from the agency that provides occupational therapy and periodic assessment for these children for which parents pay. (personal communication, June 17, 2006)

The government has focused much of its attention on SSA. Soni (2004) argues that SSA's focus is to propel an integrated and inclusive education, and its zero rejection policy helps ensure that all can take advantage of the Indian education. However, the difficulty lies in transferring this philosophy to the field. Even though the government policy takes a stand, individuals have to hold the government responsible for implementation. Soni (2004) believes changes will occur when parents demand an appropriate environment and education for their children. Such a change needs to happen at the grassroots level. Yet parents in villages and rural areas are usually unaware of the services available for their children and thus need to be informed.

Implications and Recommendations: A Long Road Ahead

Even though the challenges in identifying children with special needs are daunting daunt  
tr.v. daunt·ed, daunt·ing, daunts
To abate the courage of; discourage. See Synonyms at dismay.



[Middle English daunten, from Old French danter, from Latin
, one cannot make excuses for not providing remedial programs. The efforts of associations and individuals are commendable, but these are only small steps. A synthesized syn·the·sized  
adj.
1. Relating to or being an instrument whose sound is modified or augmented by a synthesizer.

2. Relating to or being compositions or a composition performed on synthesizers or synthesized instruments.
 effort by the government, parents, and teachers is necessary for the picture to change. Therefore, it is important to make necessary changes at the policy level and implement them. First and foremost, India must fully adopt and implement the Biwako Millennium Framework of the United Nations Economic and Social Commission (UNESCO UNESCO: see United Nations Educational, Scientific, and Cultural Organization.
UNESCO
 in full United Nations Educational, Scientific and Cultural Organization
, 2003), which endorses an inclusive, barrier-free, and rights-based society for people with disabilities in Asia. This regional framework promotes early detection, intervention, education, and anti-discriminatory measures to protect women with disabilities (Punani Punani may refer to:
  • Punani, Sri Lanka, a small hamlet in Sri Lanka made famous in 1920 by a man-eating leopard
  • A Hawaiian and Jamaican Patois term for the vagina or vulva used as slang in American English
, 2004). India "should take the lead in adopting the framework as a policy document for its implementation within the envisaged time-frame" (p. 44). UNESCO and the Government of India The Government of India (Hindi: भारत सरकार [3]Bhārat Sarkār), officially referred to as the Union Government, and commonly as Central Government  plan to set up an International Centre for Special Needs Education in New Delhi New Delhi (dĕl`ē), city (1991 pop. 294,149), capital of India and of Delhi state, N central India, on the right bank of the Yamuna River.  to cater to the needs of the Asia Pacific Region, which will be located on the campus of the National Council of Educational Research and Training (National Council of Educational Research and Training, n.d.). Perhaps this will intensify the government's efforts to promote special education.

The Indian government, working toward the goal of Sarva Shiksha Abhiyan (Universal Elementary Education), must collaborate with UNESCO to launch public awareness campaigns on special education and gender equity. Creating public awareness is fundamental to alleviating the social stigma attached to special education. Part of such awareness programs should be workshops for teachers and parents that help them identify indicators of bigger issues in child development in the initial stages.

Preservice and inservice teacher training programs must offer courses in special education and provide training in remedial teaching strategies and differentiated instruction with sound pedagogical ped·a·gog·ic   also ped·a·gog·i·cal
adj.
1. Of, relating to, or characteristic of pedagogy.

2. Characterized by pedantic formality: a haughty, pedagogic manner.
 knowledge (Rajakumar et al., 2005). Schools must be encouraged to actively pursue grants to provide professional development opportunities in special education for its teachers. When possible, teachers must be encouraged to participate in international conferences so they will have the opportunity to interact with the international professional community on special education and to keep current in the field.

The government must take measures to mitigate the pressure on existing clinics and reach out to a wider cross section of the population of children (P. Mirchandani, personal communication, June 6, 2006; N. Sundaram, personal communication, June 17, 2006). It should set up several zonal centers and resource centers for assessing children, and these centers could actively be involved in identification of needs and provision of remedial services to children with special needs without further delay. Such an arrangement would not only benefit the children with special needs, but also provide economic opportunities for the paraprofessionals and professionals working with children and families. Similarly, publishers of assessment instruments, the so-called Indian professional diaspora, and professionals in India should make every effort to translate assessment tools into vernacular languages. If assessment tools are available in many languages, then all children can be assessed, as opposed to only English-speaking children.

References

Karande, S., Sawant, S., Kulkarni, M., Galvankar, P., & Sholapurwala, R. (2005). Comparison of cognition cognition

Act or process of knowing. Cognition includes every mental process that may be described as an experience of knowing (including perceiving, recognizing, conceiving, and reasoning), as distinguished from an experience of feeling or of willing.
 abilities between groups of children with specific learning disability. Indian Journal of Medical Sciences, 59(3), 95-103.

Krishnakumar, A. (1999). Coping with a disability. Frontline, 19(8).

Mirchandani, P. (2006). Dyslexia. India Parenting, an on-line news letter. Retrieved on June 8, 2006, from www. indiaparenting.com/articles/data/artl0_007.shtml

National Council of Educational Research and Training (n.d.). Retrieved on November 3, 2006, from http://ncert.nic. in/sites/inclusiveeducation/inclusive_education.htm

Punani, B. (2004). Integrated education The Integrated Education movement in Northern Ireland is an attempt to bring together children, parents and teachers from both Roman Catholic and Protestant traditions, the aim being to provide a balanced education, while allowing the opportunity to understand and respect all  for children with disabilities. Journal of Indian Education, 36-46.

Radhakrishnan, L. (1999). Unsung heroes fight unseen problems: MDA tackles dyslexia, and puts the pieces in order. Retrieved on June 7, 2006, from file:///C:/Documents%20and%20S ettings/thirumva/Desktop/Dyslexia%20in%20India,06/ Masras%20Dyslexia%20Association.htm

Rajakumar, P., Kumar, S., Uppal, S., & Devikar, V. (2005). National curriculum framework. National Council of Educational Research and Training. New Delhi: NCERT NCERT National Council of Educational Research and Training (India)  publication.

Ramaa, S. (2000). Two decades of research on learning disability in India. Dyslexia News Worldwide, 6, 268-283.

Ramakrishnan, H. D. (2006). Helping them overcome dyslexia. The Hindu, April 15, 2006.

Soni, R. B. L. (2004). Disabled students' perceptions about their education. Primary Teacher, 29(2), 77-93.

Spaeth, A. (2003). Mind at risk: Dyslexia is less common in Asia than the U.S., but it's still a big and largely unnoticed problem. In Times Asia, September 8, 2003. Retrieved on June 21, 2007, from www.time.com/time/asia/covers/ 501030908/dyslexia_asia.html

Stigma stands in the way of dyslexia cure. (2004). The Hindu, August 15, 2004. Retrieved on June 7, 2006, from www. thehindu.com/2004/08/15/stories/2004081508050400.htm

Tomlinson, C. (2003). Fulfilling the promise of the differentiated classroom. Alexandria, VA: Association for Supervision and Curriculum Development The Association for Supervision and Curriculum Development, or ASCD, is a membership-based nonprofit organization founded in 1943. It has more than 175,000 members in 135 countries, including superintendents, supervisors, principals, teachers, professors of education, and .

UNESCO. Biwako millennium framework for action towards an inclusive, barrier-free and rights-based society for persons with disabilities in Asia and the Pacific. Retrieved on November 1, 2006, from www8.cao.go.jp/ shougai/english/biwako/contents.html

Vandenbroeck, M. (1999). The view of the Yeti yeti: see abominable snowman.


(Young, Entrepreneurial technocraTI) Coined around the turn of the century during the dot-com bubble, there is also a "yetti" variation, which means "young, entrepreneurial, tech-based twenty-something."
: Bringing up children in the spirit of self-awareness and kindredship. The Hague: Bernard van Leer Foundation The Bernard van Leer Foundation[1] is a private grantmaking foundation that funds and shares knowledge internationally about work in early childhood development and child rights. It was established in 1949 and is based in the Netherlands. .

Workshop on dyslexia. (2004). Health, December 10, 2004. Retrieved on June 7, 2006, from www.chennaionline.com/health/News/ 12workshop.asp

Vidya Thirumurthy is Assistant Professor, School of Education, Pacific Lutheran University Pacific Lutheran University is located in the Parkland suburb of Tacoma, Washington. As of September 2007, PLU had a student population of 3,669 and approximately 250 full-time faculty. , Tacoma, Washington. Brinda Jayaraman is Counselor, ASHA Counseling Center, Chennai, India.
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Author:Thirumurthy, Vidya; Jayaraman, Brinda
Publication:Childhood Education
Date:Aug 15, 2007
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