Real-Life Stories Needed to Assist Parkinson's Research; Muhammad Ali Parkinson's Research Center Launches 'Don't Be Silent' Initiative to Compile World's Largest Parkinson's Database in Effort to Find a Cure.PHOENIX -- Your story could be the key to finding a cure. The "Don't Be Silent: Tell Us Your Story" initiative is the first nationwide effort to compile data on Parkinson's disease Parkinson's disease or Parkinsonism, degenerative brain disorder first described by the English surgeon James Parkinson in 1817. When there is no known cause, the disease usually appears after age 40 and is referred to as Parkinson's disease. from people who have the disorder, which affects the central nervous system. People with Parkinson's across the country are being asked to fill out a confidential survey, which then will become part of the Parkinson's Disease Registry, the world's largest database of information regarding how people with Parkinson's are managing the disease. The initiative is a project of the Phoenix-based Muhammad Ali Muhammad Ali, pasha of Egypt Muhammad Ali, 1769?–1849, pasha of Egypt after 1805. He was a common soldier who rose to leadership by his military skill and political acumen. Parkinson's Research Center (MAPRC MAPRC Maryland Association of Professional Recruitment Consultants MAPRC Modified Aromatic Polyimide Resin Coating ), part of Barrow Neurological Institute at St. Joseph's Hospital and Medical Center St. Joseph's Hospital and Medical Center is a hospital in Phoenix, Arizona, USA. It is currently operated by Catholic Healthcare West. Services St. Joseph's is a certified level I trauma center for adults. . Researchers estimate that there are up to 1.5 million people with Parkinson's in the United States United States, officially United States of America, republic (2005 est. pop. 295,734,000), 3,539,227 sq mi (9,166,598 sq km), North America. The United States is the world's third largest country in population and the fourth largest country in area. . Officials at MAPRC are seeking 20,000 survey responses to create a database to serve diverse research purposes and to help find a cure. "Only people with Parkinson's can tell us the full story," said Dr. Richard S. Burns, MAPRC medical director and co-principal investigator of the Registry. "These are the people who understand the impact of the disease better than anyone, so we are asking them to share their knowledge." The survey asks people with Parkinson's to complete a confidential online survey about their day-to-day experiences living with the disease. Questions include inquiries about respondents' medication regimen, symptoms, sleeping patterns, exercise routines, quality of life and other lifestyle insights. "If you have Parkinson's, please tell us your story," said Dr. Holly Shill shill Slang n. One who poses as a satisfied customer or an enthusiastic gambler to dupe bystanders into participating in a swindle. v. shilled, shill·ing, shills v.intr. , co-principal investigator of the Registry and a neurologist at Barrow. Eventually, the data will be made available to researchers and clinicians looking for Looking for In the context of general equities, this describing a buy interest in which a dealer is asked to offer stock, often involving a capital commitment. Antithesis of in touch with. both a cure and better techniques to manage the disease. The survey takes less than one hour to complete and patient privacy is completely protected. "The secret to curing Parkinson's lies somewhere in the minds and bodies of those with the disease," Burns said. "This Registry will generate insights that have not been uncovered anywhere before, and will be the catalyst for new research studies that we hope will lead to a cure." Participants can complete the survey online at www.parkinsonsregistry.com or request a printed copy with a return postage-paid envelope by calling 877-287-7122. EDITOR'S NOTE Editor's Note (foaled in 1993 in Kentucky) is an American thoroughbred Stallion racehorse. He was sired by 1992 U.S. Champion 2 YO Colt Forty Niner, who in turn was a son of Champion sire Mr. Prospector and out of the mare, Beware Of The Cat. Trained by D. : Interviews and photos are available by calling 602-417-1594. |
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