Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability.
Quality of life and human difference; genetic testing, health care, and disability.
Ed. by David Wasserman et al.
Cambridge U. Pr.
Cambridge studies in philosophy and public policy
Preconception and prenatal testing for disability have raised ethical/ ideological controversies about the value of life. Wasserman (U. of Maryland) and his working group introduce nine viewpoints treating this capability in conjunction with health-related quality- of-life (QOL) assessments to inform abortion, treatment, and end-of-life decisions. They question whether QOL measures can determine what makes a life worth living and negative assumptions about the quality of life of people with disabilities. It is not stated whether any of these disability scholars is disabled.
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