Peregrine Charities Announces Grant Recipients Focusing on Rare, Underfunded, or ''Orphan'' Diseases.CHICAGO -- $423,000 distributed in current grant cycle Next fundraiser, "Oktoberfest," slated for September 21 in Chicago Peregrine Charities has announced grant recipients from its first funding cycle. Ten specific non-profit projects will be awarded from $15,000 to $50,000 each. They are: --A-T Ease Foundation based in New York New York, state, United States New York, Middle Atlantic state of the United States. It is bordered by Vermont, Massachusetts, Connecticut, and the Atlantic Ocean (E), New Jersey and Pennsylvania (S), Lakes Erie and Ontario and the Canadian province of , NY for research into the rare genetic disorder Ataxia-Telangiectasia --Ataxia Telangiectasia telangiectasia /tel·an·gi·ec·ta·sia/ (tel-an?je-ek-ta´zhah) permanent dilation of preexisting small blood vessels, creating focal red lesions. Children's Project, Deerfield Beach, FL - in support of their research grants program --Brain Research Foundation, Chicago, IL - research into spinal muscular atrophy Spinal Muscular Atrophy (SMA) is a term applied to a number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem. --Congenital Adrenal Hyperplasia adrenal hyperplasia Diffuse enlargement of the adrenal glands. See Congenital adrenal hyperplasia. Research Education and Support Foundation, Inc. (CARES Foundation), Short Hills, NJ - for a clinical nurse practitioner/CAH natural history protocol --Myelin Project in Dunn Loring, VA for research into pharmacological gene therapy Pharmacological gene therapy is a new field that combines pharmacological therapy and gene therapy. It is used either to prevent a defective gene from producing its protein or to increase the concentration of normal protein produced in the body by insertion of DNA or RNA fragments. in X-linked adrenoleukodystrophy --Myelin Project in Dunn Loring, VA to fund research for HSC-based ex vivo gene therapy for globoid cell leukodystrophy glo·boid cell leukodystrophy n. An inherited metabolic encephalopathy of infancy with rapidly progressive cerebral degeneration, massive loss of myelin, severe astrocytic gliosis, and infiltration of the white matter with characteristic multinucleate --National MPS Society, Bangor, ME, for medical research grants --Pediatric Neurotransmitter Disease (PND (Personal Navigation Device) A portable GPS-based navigation system that can be used when walking, hiking or in any vehicle. See GPS. ) Association, Plainview, NY to fund one year of a two-year Young Investigator's Research Award --Retina Foundation of the Southwest, Dallas, TX, to support the Usher Syndrome Infant Screening Program --University of Rochester Medical Center, Rochester, NY -- research into Batten Disease. "Through Peregrine Charities, we are able to make a difference to many children and their families as research taps into the origin, treatment and cures of some of the hundreds of rare childhood illnesses in this country," said founder Russell R. Wasendorf, Sr. More than 56 qualified, non-profit organizations and researchers submitted grant requests. Peregrine Charities is supported by many friends and business associates of the Wasendorf family, who attend fundraisers like the annual Oktoberfest. This year, "Oktoberfest -- Raise One For The Little Ones" will be held at Allen's - The New American Cafe, in Chicago on September 21. All are invited to imbibe in five-star Barvarian delicacies created by Chef Allen, and lager, while at the same time, making a difference in the lives of children and families impacted by rare pediatric pediatric /pe·di·at·ric/ (pe?de-at´rik) pertaining to the health of children. pe·di·at·ric adj. Of or relating to pediatrics. diseases. Peregrine Charities is a private 501(c)(3) foundation created in 2004. For more information, please visit www.PeregrineCharities.org. |
|
||||||||||||||
Printer friendly
Cite/link
Email
Feedback
Reader Opinion