Printer Friendly
The Free Library
7,774,290 articles and books
Member login
User name  
Password 
 
Join us Forgot password?

Patient impatient.


Just about two years ago I lay critically ill in an intensive care unit at a Boston hospital. Since September 11, 2001, my left lung

Main article: Lung


The Left lung is divided into two lobes, an upper and a lower, by the oblique fissure, which extends from the costal to the mediastinal surface of the lung both above and below the hilus.
 has collapsed four times. I had numerous emergency hospital admissions in which I had to have a tube inserted into my chest to reexpand my lung. Each chest tube insertion tube insertion Tympanostomy, see there  resulted in blinding and searing sear 1  
v. seared, sear·ing, sears

v.tr.
1. To char, scorch, or burn the surface of with or as if with a hot instrument. See Synonyms at burn1.

2.
 pain I did not think possible. The last time my lung collapsed I had to be medevac'd out of Provincetown to get emergency open lung surgery Lung Surgery Definition

Lung surgery includes a variety of procedures used to diagnose or treat diseases of the lungs. Biopsies are performed to extract a small amount of tissue for diagnosis, resections remove a portion of lung tissue, and other
. I was living off sips of ice water, morphine, Percocet, and Xanax.

And, oh. I tested HIV-positive just before all this began.

In between my ICU ICU intensive care unit.

ICU
abbr.
intensive care unit



ICU

see intensive care unit.

ICU 
 adventures, my life did not stop because I was ill. A guy I was dating while temporarily separated from my partner turned out to have "issues." He lied, verbally and emotionally abused me, and spent my money. The problem was that I actually loved him and thought I could make it work.

You've just got to love denial.

While I was in the middle of confronting him about staying out all night or dodging flying objects aimed at my head, my mother became gravely ill. As I'm a nurse-practitioner, no one needed to tell me she was going to die. It was not a matter of if but when.

I think I was on my first chest tube insertion when Mother finally passed. With my sister and brothers, and with a hole in my chest--and in my heart--I buried my mother. Sometime after my second lung collapse our other mother died. Our wonderful aunt, my mother's sister, who'd lived with us her whole life, died suddenly of a heart attack. It was only six days after our mother's funeral.

When we called to the funeral director again to make my aunt's arrangements, he cried. Making a funeral director cry is a clear indication that life is treating you hard.

Chest tubes 3 and 4 came somewhere around this time, but life was a blur. I had wasted down to 140 pounds from 190 and had seen more attractive days.

I had doctors and nurses snap at Verb 1. snap at - bite off with a quick bite; "The dog snapped off a piece of cloth from the intruder's pants"
bite off

bite, seize with teeth - to grip, cut off, or tear with or as if with the teeth or jaws; "Gunny invariably tried to bite her"
 me because I was in so much pain and yet still expressed concern about my muscle loss. "You know, you're lucky to be alive!" was their standard way to shut me up.

But shutting tip is something I have never been good at. All my years of AIDS activism kicked in with a bang. My partner and I demanded, screamed, and threatened in order to get me pain relief. I had to constantly ask where my AIDS medications were and then make sure I got the right ones.

One night I said to the nurse, "These are not the right AIDS meds."

"I'm sure they are. Just take them."

"I am sure they're not," I snapped.

I was just about to telephone a prescription for my AIDS meds to the CVS (1) (Concurrent Versions System) A version control system for Unix that was initially developed as a series of shell scripts in the mid-1980s. CVS maintains the changes between one source code version and another and stores all the changes in one file.  pharmacy across the street from the hospital, to get my own supply, when the correct pills arrived. And all of this I was doing while in incredible pain, attached to machines and intravenous lines, and with the ever-popular Foley catheter Fo·ley catheter
n.
A catheter held in the bladder by an inflatable balloon.


Foley catheter
A two-channel catheter with a balloon on the bladder end of one channel.
 draining urine out of my bladder being used as a jump rope jump rope
 or skip rope

Children's game in which players hold a rope (jump rope) at each end and twirl it in a circle, while one or more players jump over it each time it reaches its lowest point.
 by the night staff when they checked on me.

Slowly, I improved. I checked out.

OK, nightmare over, I thought. Nothing bad can happen now. (Cue God, laughing.)

Back home on the Cape I'm healing slowly. Instead of doing bicep curls with 50-pound dumbbells, I use cans of soup to rebuild muscle. A walk around the block requires rest periods.

Earlier this year my sister called to tell me that my father, who has been a near-teetotaler his whole life, was diagnosed with a rare and fatal form of liver cancer Liver Cancer Definition

Liver cancer is a relatively rare form of cancer but has a high mortality rate. Liver cancers can be classified into two types.
. He had only weeks to live. Five weeks later he died.

So these past two years have seen me survive the terrorist attacks, abuse, loss, and even my own stabs at death. You know what? It wasn't all that bad. I cried more than I ever thought possible, but I learned much more.

By now everyone should be hearing Peggy Lee singing, "It that all there is?"

I learned that all my years of advocating for people with HIV HIV (Human Immunodeficiency Virus), either of two closely related retroviruses that invade T-helper lymphocytes and are responsible for AIDS. There are two types of HIV: HIV-1 and HIV-2. HIV-1 is responsible for the vast majority of AIDS in the United States.  had personal benefit. At a very low point in my life I could draw on the lessons learned from the early days of the epidemic. They saved my life.

Ferri is managing editor of NUMEDX.com and a nurse-practitioner in Provincetown, Mass.
COPYRIGHT 2003 Liberation Publications, Inc.
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 2003, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

 Reader Opinion

Title:

Comment:



 

Article Details
Printer friendly Cite/link Email Feedback
Title Annotation:my perspective; AIDS patient recounts year of treatment for his disease and loss of his parents
Author:Ferri, Richard
Publication:The Advocate (The national gay & lesbian newsmagazine)
Article Type:Column
Geographic Code:1U1MA
Date:Nov 11, 2003
Words:753
Previous Article:Correction.(reader forum)(Correction Notice)
Next Article:Rants & raves.(Brief Article)
Topics:



Related Articles
The other AIDS crisis; who pays for the treatment?
Survival bonus for people with AIDS. (AIDS patients treated with the drug foscarnet live longer)
When someone close has AIDS. (Pamphlet)
AIDS patients: opportunities and risks.
The blind leading the blind: doctors at many HMOs are ruining the best chance of HIV-positive individuals have for success.(badly managed...
Thoracoscopic management of pleural effusions in Kaposi's Sarcoma: a rapid and effective alternative for diagnosis and treatment. (Case Reports).
Caring for patients with AIDS: an interview with John R. Brechtl, MD, FACP.(Terence Cardinal Cooke Health Care Center)(Interview)(Cover Story)
From Leslie S. Rolko re cost of drugs.(Letters To The Editor)(Letter to the Editor)
Survey findings launched on treatment for people living with Aids.
Brush fire: Colombia's health system battles to contain on epidemic.(Healthcare)

Terms of use | Copyright © 2009 Farlex, Inc. | Feedback | For webmasters | Submit articles