Printer Friendly
The Free Library
14,497,195 articles and books
Member login
User name  
Password 
 
Join us Forgot password?

PLAYING THROUGH THE PAIN TWO YOUNG HEART PATIENTS LEAVE PROBLEMS BEHIND AND GO OFF TO CAMP.


Byline: Evan Henerson Staff Writer

Mario Coletti, age 10, is outgoing, friendly and fearless. Dylan Beekman, 10, is quieter, more reserved.

Mario is into full-contact karate. Dylan plays guitar and collects rocks and sea shells.

Both boys are artistic. Both play Nintendo.

``He's pretty funny, and I enjoy playing with him,'' Dylan says of Mario. ``He's pretty much my best friend.''

``I think we're kind of opposites,'' returns Mario. ``But it's the similar things that are what really make us friends.''

Best friends, in fact, even though they see each other only a couple times a year. Mario lives in Camarillo, Dylan in Mesa, Ariz.

Both boys were born with transposition of the great vessels Transposition of the great vessels (TGV) is a group of congenital heart defects (CHDs) involving an abnormal spatial arrangement of any of the primary blood vessels: superior and/or inferior vena cavae (SVC, IVC  - heart defects that would require several surgeries. Their families met when Dylan and Mario, then ages 4 and 3, were at UCLA UCLA University of California at Los Angeles
UCLA University Center for Learning Assistance (Illinois State University)
UCLA University of Carrollton, TX and Lower Addison, TX
. The two boys shared a room and had surgery the same day. Dylan and Mario both have pacemakers Pacemakers Definition

A pacemaker is a surgically-implanted electronic device that regulates a slow or erratic heartbeat.
Purpose

Pacemakers are implanted to regulate irregular contractions of the heart (arrhythmia).
.

Seven years later, of course, a fourth- and fifth-grader (Dylan is a few months older) have more important topics of conversation than shunts, valves, ventricles Ventricles
The two chambers of the heart that are involved in pumping blood. The right ventricle pumps blood into the lungs to receive oxygen. The left ventricle pumps blood into the circulation of the body to deliver oxygen to all of the body's organs and tissues.
 and the latest in cardiovascular research. Their heart bond is largely unspoken, but understood.

``When they call each other, they certainly have a lot to talk about,'' says Dylan's mother, Dede Smith. ``I think they both like that feeling of knowing they have a good friend who knows how they feel.''

Together, the Colettis and the Smiths have gone to amusement parks This page contains a list of amusement parks by
  • region, and
  • links to amusement parks listed alphabetically, beginning with the name of the park. The size of the list has required it to be broken into separate pages:
 all over Southern California Southern California, also colloquially known as SoCal, is the southern portion of the U.S. state of California. Centered on the cities of Los Angeles and San Diego, Southern California is home to nearly 24 million people and is the nation's second most populated region, , as well as to Sea World and the San Diego Zoo San Diego Zoo

One of the world's largest collections of mammals, birds, and reptiles, located in San Diego, Calif., and administered by the Zoological Society of San Diego. The 100-acre (40.
. A camping trip to Carpinteria is also in the works. Dylan's sister, Sydney, and Mario's sister, Kaitlin, both 5, are also playmates. (Shannon and Dominic Coletti also have a 3-year-old son, Nico.)

Without their families, Dylan and Mario now have a standing summer engagement. Over Labor Day Labor Day, holiday celebrated in the United States and Canada on the first Monday in September to honor the laborer. It was inaugurated by the Knights of Labor in 1882 and made a national holiday by the U.S. Congress in 1894. , the boys were cabin mates at Camp del Corazon, a camp specifically designed for children with heart disease or who have undergone heart surgery. The camp, a nonprofit organization Nonprofit Organization

An association that is given tax-free status. Donations to a non-profit organization are often tax deductible as well.

Notes:
Examples of non-profit organizations are charities, hospitals and schools.
 whose accommodations are offered free of charge, takes place on Catalina Island Catalina Island: see Santa Catalina. .

Lisa Knight, a nurse at UCLA's Mattel Children's Hospital A children's hospital is a hospital which offers its services exclusively to children. The number of children's hospitals proliferated in the 20th century, as pediatric medical and surgical specialties separated from internal medicine and adult surgical specialties. , developed the camp as a place where children could forget about their health-mandated restrictions or limitations, and where a child need not fear eliciting wonder at the pool when peeling off a shirt and revealing a surgical scar.

At Camp del Corazon, nobody will notice. While conditions and medications are closely monitored, for five days the kids get to swim, kayak, climb, hike and be typical campers. And that's the point.

``Parents are left at the dock. That's the deal,'' says Knight, who lives in Sherman Oaks. ``This is not a camp that's there specifically for people to talk about heart disease. We allow them to bring it up among themselves only if they want to.''

The 2000 session was Dylan's second session, Mario's first. The two boys returned home with photographs and plenty of memories: swims, hikes, feats in archery, hornets ...

Hornets?

``Tons, and they land on your plate at lunch time,'' says Mario. ``The air's like `bzzzzz.' I hate it when that happens.''

Not all the campers are up for intense fun and games "Fun and Games" is an episode of the original The Outer Limits television show. It first aired on 30 March, 1964, during the first season. Opening narration
. Since the camp is for children suffering all stages of heart disease, some can play practically without restrictions while others have a hard time just walking across the beach, says Knight, who co-founded the camp with UCLA pediatric pediatric /pe·di·at·ric/ (pe?de-at´rik) pertaining to the health of children.

pe·di·at·ric
adj.
Of or relating to pediatrics.
 cardiologist Dr. Kevin Shannon.

Seven campers have died in the seven years Knight and Shannon have been running Camp del Corazon, though none during the camp session itself. ``These children do die, and a lot of them have never had an opportunity to go to camp,'' Knight said.

And that can be part of their fellow campers' memories as well. During his first year, Dylan shared a cabin with a boy who had had a heart transplant heart transplant

Procedure to remove a diseased heart and replace it with a healthy one from a legally dead donor. The first was performed in 1967 by Christiaan Barnard.
. ``It was pretty unfortunate because he had to be taken around in a wagon, so I just felt really sorry for him,'' he said.

``He died, like, last summer,'' Dylan added. ``That was kind of sad.''

Dylan and Mario both know that they have limits, but neither says he feels cheated or restricted. This is just something they have learned to accept.

``I really don't worry,'' says Mario. ``I just think, 'It's great that I'm here,' and I try to do everything I can. It doesn't make me any (more special).''

``It's not like it's going to hold him back,' agrees his mother, Shannon, a first-grade teacher. ``We just tell him he can do whatever he wants to do. Everybody has things that are different about them.''

Dylan admits he gets worn out a little more easily than other kids his age, ``But other than that, I'm a normal kid, and I'm doing very well. That's why I think I'm really lucky.''

Max Gerber, an L.A.-based photographer who has interviewed and taken pictures of both boys, believes children living with heart disease mature quickly.

``I think children who are sick, and who always have been sick, kind of develop adult realizations at different rates than healthy people,'' said Gerber, who is working on a book titled ``My Heart vs. the Real World.''

And, yes, you do bond with people who have your identical medical condition, says Gerber, who, like Mario and Dylan, has a pacemaker.

``I went to Sea World with them in July, and we were walking along,'' recalled Gerber. ``Dylan was on one side holding onto the strap of my camera bag. Mario was on the other side. At one point we all stopped walking and they looked at me. All three of us had pacemakers. It was a neat moment.''

No matter how different they turn out to be, or how much they are separated by geographic distance, the two will always share a special bond.

``From what I've seen, they have very different personalities,'' says Gerber. ``But because they have this shared experience, the differences in their personalities don't seem to matter so much.

``They'll never have nothing in common,'' he added. ``Not possible.''

Camp del Corazon is free, although preregistration pre·reg·is·tra·tion  
n.
An early registration, as for returning college students, that takes place before general registration.
 is required and families must provide transportation to the boat docks in Marina del Rey Del Rey may refer to:
  • Del Rey, California, a census-designated place in Fresno County, California
  • Del Rey, Los Angeles, California, a small district in the west side of Los Angeles
  • Del Rey (band), an indie rock band
. Application forms for the 2001 sessions (which run Aug. 27-31 and Aug. 31-Sept. 4) will be available in April.

For more information, call (818) 901-0323 or (888) 621-4800 or visit www.campdelcorazon.org.

CAPTION(S):

4 photos

Photo:

(1 -- cover -- color) Buddies at Heart

Dylan Beekman and Mario Coletti have taken their friendship from hospital room to camp cabin

(2) Lisa Knight, a pediatric cardiology nurse and founder of Camp del Corazon, waves goodbye to kids going home after the weeklong camp held on Catalina Island.

(3) A license plate tells the story of Camp del Corazon, a getaway for children with heart problems of all kinds.

(4) Kids such as this one, ascending a climbing wall A climbing wall is an artificially constructed wall with grips for hands and feet, used for climbing. Some are brick or wooden constructions, but on most modern walls, the material used is a thick multiplex board with holes drilled into it.  at Camp del Corazon, face much greater dangers in their everyday lives.

Eric Grigorian/Staff Photographer
COPYRIGHT 2001 Daily News
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 2001, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

 Reader Opinion

Title:

Comment:



 

Article Details
Printer friendly Cite/link Email Feedback
Title Annotation:L.A. Life
Publication:Daily News (Los Angeles, CA)
Date:Feb 12, 2001
Words:1170
Previous Article:PULSE PAMPER YOURSELF.(L.A. Life)
Next Article:KINGS CHARM COURT.(News)



Related Articles
Ritual remedies: quasi-religious botanica pharmacies thriving in L.A. (Los Angeles)
Why exercise is the best medicine.
ACTORS AMIABLE, BUT STORY LOSES 'HEART'.(L.A. Life)
DODGERS NOTEBOOK: HUNDLEY COMFORTABLE AND READY TO RUMBLE.(SPORTS)
`WHOEVER TOOK HIM STOLE HER HEART, TOO'; LOSS OF DOG REVIVES PAIN TOO DEEP TO SPEAK.(News)
INMATE DADS GET VISITS FROM KIDS.(NEWS)
CLIPPERS NOTEBOOK: CLIPPERS FILL IN WITH WRIGHT HANDYMAN.(SPORTS)
BOY'S DEATH BROUGHT A NEW PERSPECTIVE ON LIFE.(NEWS)
KINGS NOTEBOOK: MILLER COULD MISS OPENER.(Sports)
Counselors give strategies for grieving during the holidays.(Health)

Terms of use | Copyright © 2009 Farlex, Inc. | Feedback | For webmasters | Submit articles