National Information & Advocacy Resources.

THESE NATIONAL ORGANIZATIONS are information and advocacy resources for families and professionals. Many of these organizations provide a variety of services while others focus on more specific areas of concern. Numbers following each listing correspond to items listed in the Key to Services, which describes services provided by individual organizations. Effort has been made to list as much information as possible on each group, but it is best to contact the organization directly for a full description of services.

When available, e-mail addresses and Web sites have been included. E-mail addresses are indicated by the symbol, (e-mail). Web sites are listed with the standard http:// before each. (Unless otherwise indicated, all telephone numbers are for voice only.)

This directory is current as of December 2007.

Accessible Playgrounds

BOUNDLESS PLAYGROUNDS INC.

45 Wintonbury Avenue

Suite 202

Bloomfield, CT 06002

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.boundlessplaygrounds.org

2,4 English

Adoption

AASK ADOPT A SPECIAL KID

Andrea Schneider, Family

Coordinator

8201 Edgewater Drive

Suite 103

Oakland, CA 94621

[phone] EXT 12

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.adoptaspecialkid.org

1 2,3,4,6,7,9 English

ADOPTIVE FAMILIES

39 West 37 Street, 15TH Floor

New York, NY, 10018

[phone]

[phone](FAX)

http://www.adoptivefamilies.com

(e-mail) [e-mail]

1,2,4 English

JEWISH CHILDREN'S ADOPTION NETWORK

PO Box 147016

Denver, CO 80214-7016

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.users.qwest.net/~jcan

1,2,3,4,7 English, Hebrew, and Yiddish

NATIONAL ADOPTION CENTER

1500 Walnut Street

Suite 701

Philadelphia, PA 19102

(180) 0TO-ADOPT

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.adopt.org

1,2,3,4,5,7,9 English

SPAULDING FOR CHILDREN

16250 Northland Drive

Suite 100

Southfield, MI 48075

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.spaulding.org

Architectural Accessibility

CENTER FOR UNIVERSAL DESIGN COLLEGE OF DESIGN

Campus Box 8613

Raleigh, NC 27695-8613

[phone]

(V/TDD, US & Canada)

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.centerforuniversaldesign.org

2,4,6 English

Assistive Technology

CENTER FOR BEST PRACTICES IN EARLY CHILDHOOD EDUCATION

32 Horrabin Hall

Western Illinois University

Macomb, IL 61455

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.wiu.edu/thecenter

2,9 English and Spanish

NATIONAL LEKOTEK CENTER

2001 North Clybourn Avenue

Chicago, IL 60614

[phone] EXT 402

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.lekotek.org

2,4,5

RESNA: REHABILITATION ENGINEERING AND ASSISTIVE TECHNOLOGY SOCIETY OF NORTH AMERICA

1700 North Moore Street

Suite 1540

Arlington, VA 22209-1903

[phone]

[phone] (TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.resna.org

Bereavement Support

CENTER FOR LOSS IN MULTIPLE BIRTH

C/O JEAN KOLLANTAI

PO Box 91377

Anchorage, AK 99509

[phone]

(e-mail) [e-mail]

http://www.climb-support.org

THE COMPASSIONATE FRIENDS, INC.

PO Box 3696

Oak Brook, IL 60522-3696

[phone]

[phone]

[phone] (FAX)

http://www.compassionatefriends.org

2,5,6 English and Spanish

Breastfeeding

LA LECHE LEAGUE INTERNATIONAL

1400 North Meacham Road

Schaumburg, IL 60173

(800) LALECHE (525-3243)

[phone]

[phone] (FAX)

(e-mail) [e-mail]

(e-mail) [e-mail]

http://www.lalecheleague.org

1,2,3,4,5,6,9

Child Care

CHILD CARE PLUS+: THE CENTER ON INCLUSION IN EARLY CHILDHOOD

The University of Montana

Rural Institute on Disabilities

634 Eddy Avenue

Missoula, MT 59812-6696

[phone]

[phone] (V/TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.ccplus.org

1,2,7 English

THE SPECIAL LINK NATIONAL CENTER FOR CHILD CARE INCLUSION

2E22-515 Portage Avenue

Winnipeg, MB

CAN R3B 2E9

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.specialinkcanada.org

1,2,4,6,7 English and French

Developmental Disabilities

AAC-RERC ON COMMUNICATION ENHANCEMENT

PO Box 3887

Duke University Medical Center

Durham, NC 27710

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.aac-rerc.com

1,2,6,7,8 English and Spanish

DEVELOPMENTAL DELAY RESOURCES

5801 Beacon Street

Pittsburgh, PA 15217

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.devdelay.org

1,2,3,4 English and Spanish

TEXAS AUTISM ADVOCACY

Developmental, Psychiatric, Physical

PO Box 1363

Cypress, TX 77429

[phone]

(e-mail) [e-mail]

http://www.TexasAutismAdvocacy.org

1,2,3,4 English and Spanish

EASTER SEALS CENTRAL PENNSYLVANIA

55 Hamilton Road

Chambersburg, PA 17201

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.centralpa.easterseals.com

LIFETIME CARE FOUNDATION FOR THE JEWISH DISABLED

4510 16th Avenue

Brooklyn, NY 11204

[phone]

[phone]

[phone] (FAX)

(e-mail) icfoohelfamily.org

http://www.ohelfamily.org

2,3,4,6,7 English, Hebrew, and Yiddish

Early Intervention

PATHWAYS AWARENESS FOUNDATION

2591 Compass Road

Suite 100

Glenview, IL 60026

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.pathwaysawareness.org

Spanish, French, Chinese, and English

DIVISION FOR EARLY CHILDHOOD OF THE COUNCIL FOR EXCEPTIONAL CHILDREN

27 Fort Missoula Road

Suite 2

Missoula, MT 59804

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.dec-sped.org

Education

NATIONAL COALITION OF TITLE I/CHAPTER I PARENTS

310 Pennsylvania Avenue, SE

3RD Floor

Washington, DC 20003

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://nctic1p.org

FAMILY SUPPORT ORGANIZATION OF ESSEX COUNTY (CHAPTER)

60 Evergreen Place

Suite 410

East Orange, NJ 7018

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.fsoec.org

Employment Services

NATIONAL SCIENCE AND TECHNOLOGY EDUCATION PARTNERSHIP

2500 Wilson Boulevard

Suite 210

Arlington, VA 22201

[phone]

[phone] (TDD)

[phone] (FAX)

http://www.instep-online.org

2,4,6,8,9 English

NATIONAL FEDERATION OF THE BLIND

1800 Johnson Street

Baltimore, MD 21230

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nfb.org

1,2,4,5,6,7,8: English and Spanish

JUST ONE BREAK, INC.

120 Wall Street, 20th Floor

New York, NY 10005

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.justonebreak.com

2,4,7 English

NISH

8401 Old Court House Road

Vienna, VA 22182

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nish.org

2,4,5,6,7 English

PARENTS ALLIANCE EMPLOYMENT PROJECT

2525 Cabot Drive

Suite 302

Lisle, IL 60532

[phone]

[phone] (TDD)

[phone] (FAX)

(e-mail) t'[e-mail]

http://www.parents-alliance.org

4

General

ABOUT SPECIAL KIDS--CENTRAL OFFICE

7275 Shadeland Avenue

Suite 1

Indianapolis, IN 46250

[phone]

[phone] (Toll Free)

[phone] (FAX)

(e-mail) [e-mail]

(e-mail) [e-mail]

http://www.aboutspecialkids.org/

ASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES

1010 Wayne Avenue

Suite 920

Silver Spring, MD 20910

[phone]

[phone] (FAX)

http://www.aucd.org

1,2,3,4,5,6,7,8,9: Engish

NATIONAL BATTEN DISEASE REGISTRY-INSTITUTE FOR BASIC RESEARCH

Edie Dockter-Coordinator

1050 Forest Hill Road

Staten Island, NY 10314-6399

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

Krystyna E. Wisniewski, M.D.,

Ph.D.-Director

[phone]

[phone] (FAX)

2,4,5,9 English

BIRTH DEFECT RESEARCH FOR CHILDREN

800 Celebration Avenue

Suite 225

Celebration, FL 34747

[phone]

[phone] (FAX)

http://www.birthdefects.org

1,2,3,7,9 English

CHILDREN'S DEFENSE FUND

25 E Street, NW

Washington, DC 20001

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.childrensdefense.org

1,2,3,4,6,7,8 English and Spanish

COUNCIL FOR EXCEPTIONAL CHILDREN

1110 North Glebe Road

Arlington, VA 22201-5704

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.cec.sped.org

ERIC CLEARINGHOUSE ON DISABILITIES AND GIFTED EDUCATION

Bernadette Knoblauch

1110 North Glebe Road

Suite 300

Arlington VA 22201-5704

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://ericec.org

4 English and limited Spanish

EASTER SEALS

230 W. Monroe Street

Suite 1800

Chicago, IL 60606-4802

[phone]

[phone]

[phone] (TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.easter-seal.org

EASTER SEALS CANADA

90 Eglinton Avenue E

Suite 208

Toronto, ON M4P 2Y3

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.easterseals.ca

4,5,6,7,9 French and English

FAMILY VOICES

1000 Northeast 10th Street

Oklahoma City, OK 73117

405-271-9444

[e-mail]

http://www.health.ok.gov

1,2,3,4,5,6,9 Spanish, English, and some other languages

FRIENDSHIP MINISTRIES

2850 Kalamazoo Avene, SE

Grand Rapids, MI 49560

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.friendship.org

1,2 English and Spanish

FXB

150 Bergen Street

Room D347

Newark, NJ 07103

[phone]

http://www.fxb.center.org

HIDDEN MIRACLES MINISTRY

Directors- Lynn and

Barbara McNeely

201 Gayleh Lane

Waxahachie, TX 75165

[phone]

(e-mail) [e-mail]

http://www.hiddenmiraclesministry.org

5

STOMP: SPECIALIZED TRAINING OF MILITARY PARENTS C/O PAVE

6316 South 12th Street

Tacoma, WA 98465

[phone]

[phone] (V/TTY)

[phone] (FAX)

(e-mail) [e-mail]

http://www.stompproject.org

1,2,3,4 English and Spanish

FUTURES & OPTIONS FOR KIDS

Theresa Silk Executive Director

1 North End Avenue

New York,NY10282

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.futuresandoptionsforkids.org

MARCH OF DIMES BIRTH DEFECTS FOUNDATION

1275 Mamaroneck Avenue

White Plains, NY10605

[phone]

(e-mail) [e-mail];

http://www.marchofdimes.com

1,2,5,7,8 English and Spanish

NATIONAL FAMILY CAREGIVERS ASSOCIATION

10400 Connecticut Avenue

Suite 500

Kensington, MD 20895-3944

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.thefamilycaregiver.org

1,7 English and Spanish

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS

Mary Kaye Richter

PO Box 114

410 East Main

Mascoutah IL 62258-0114

[phone]

[phone] (FAX)

http://www.nfed.org

1,2,3,4,6,7,8 English

SAVE BABIES THROUGH SCREENING

205 Delhi Road

Scarsdale NY 10583

[phone]

(e-mail) [e-mail]

http://www.savebabies.org

1,2,7 English with some materials in Spanish

WASHINGTON STATE FATHER'S NETWORK

The Kindering Center 16120 NE

8th Street

Bellevue, WA 98008

[phone], ext. 4286

[phone] (FAX)

(e-mail) [e-mail]

http://www.fathersnetwork.org

NATIONAL VACCINE INFORMATION CENTER

204 Mill Street

Suite B1

Vienna, VA 22180

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nvic.org

NICHCY: NATIONAL DISSEMINATION CENTER FOR CHILDREN WITH DISABILITIES

PO Box 1492

Washington, DC 20013-1492

[phone] (V/TDD)

[phone] (V/TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.nichcy.org

2,6 English and Spanish

NPA: NATIONAL PERINATAL ASSOCIATION

2090 Linglestown Road

Suite 107

Harrisburg, PA 17110

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nationalperinatal.org

1,6

L'INSTITUT ROEHER INSTITUTE

Kinsmen Building

York University

4700 Keele Street

Toronto, ON

CAN M3J IP3

[phone]

[phone] (TTY)

[phone] (FAX)

(e-mail) [e-mail]

http://www.roeher.ca

2,4,6,7,8,9 English and French

SNAP: SPECIAL NEEDS ADVOCATE FOR PARENTS

3029 Wilshire Boulevard #200

Santa Monica, CA 90403

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.snapinfo.org

1,2,3,4,6,7 English

PAVE

Karen Anderson

6316 South 12th Street

Suite B

Tacoma WA 98465

[phone] (V/TTY)

(800) 5-PARENT

[phone] (FAX)

(e-mail) [e-mail]

http://www.washingtonpave.org

1,2,3,4,5,6 English and Spanish

RESNA

1700 N. Moore Street

Suite1540

Arlington, VA 22209-1903

[phone] (FAX)

http://www.resna.org

1,2,4,6,7 English

THE UNIVERSITY OF MONTANA RURAL INSTITUTE: CENTER FOR EXCELLENCE IN DISABILITES, EDUCATION, RESEARCH, AND SERVICE

R. Timm Vogelsberg, Director

634 Eddy 009 CHC

Missoula, MT 59812-6646

[phone] (toll free)

[phone] (voice/TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.ruralinstitute.umt.edu

1,2,3,4,5,6,7,8,9 English

VHL FAMILY ALLIANCE (VON HIPPEL-LINDAU)

12001 Beacon Street

Suite 208

Brookline MA 02135-7787

[phone]

[phone]

[phone] (FAX)

http://www.vhl.org

1,2,3,4,5,6,7,8,9 English, Spanish, French, German, Italian and Japanese

WORLD INSTITUTE ON DISABILITY

510 16th Street

Suite 100

Oakland, CA 94612

[phone]

[phone] (TDD)

[phone] (FAX)

(e-mail) [e-mail]

http://www.wid.org

1,2,6

Genetics

BRIDGEMAR RESEARCH FOUNDATION

PO Box 341

Crete, IL 60417

[phone]

[phone] (FAX)

(e-mail) [e-mail]

www.bridgemar.org

1,2,4,8

GENETIC ALLIANCE

4301 Connecticut Avenue, NW

Suite 404

Washington DC 20008-2369

[phone]

(800) 336-GENE4363

[phone] (FAX)

(e-mail) [e-mail]

http://www.geneticalliance.org

3,6,7 English

HEREDITARY DISEASE FOUNDATION

3960 Broadway, 6th Floor

New York, NY 10032

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.hdfoundation.org

English

Healthcare

AMERICAN ASSOCIATION ON HEALTH AND DISABILITY

Roberta Carlin, MS, JD,

Executive Director

110 North Washington Street

Suite 340A

Rockville, MD 20850

[phone]

[phone]

(e-mail) [e-mail]

http://www.aahd.us

1,2,3,4,6,7 English

NATIONAL HEALTH COUNCIL

1730 M Street, NW

Suite 500

Washington, DC 20036

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nhcouncil.org

1,2,4,6,7

ST. MARY'S HEALTHCARE SYSTEM FOR CHILDREN

c/o Rhonda Broden

29-01 216th Street

Bayside, NY 11360

[phone]

[phone]

(e-mail) [e-mail]

http://www.stmaryskids.org

Hospitality Housing/Hospice

CHILDRENS HOSPICE INTERNATIONAL

1101 King Street

Suite 360

Alexandria, VA 22314

(800) 24-CHILD (242-4453)

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.chionline.org

HOSPITALITY HOMES

PO 15265

Boston, MA 02111

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.hosp.org

1,2,4: English

NATIONAL ASSOCIATION OF HOSPITAL HOSPITALITY HOUSES

PO Box 18087

Asheville, NC 28814-0087

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.nahhh.org

1,2,4,6,7,8,9 English

Independent Living

DISABLED AND ALONE/LIFE SERVICES FOR THE HANDICAPPED, INC.

61 Broadway

Suite 510

New York, NY 10006

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.disabledandalone.org

1,2,4,6,7,8,9 English

INDEPENDENT LIVING RESEARCH UTILIZATION PROGRAM

2323 S. Shepherd

Suite 1000

Houston, TX 77019

[phone]

[phone] (TDD)

[phone] (FAX)

(e-email) [e-mail]

http://www.ilru.org

Information and Referrals

BRAVE KIDS

151 Sawgrass Corners Drive

Suite 204J

Ponte Vedra Beach, FL 32082

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.bravekids.org

2,3,4,9 English and Spanish

NATIONAL CHRISTIAN RESOURCE CENTER

Bethesda Lutheran Homes

600 Hoffman Drive

Watertown, WI 53094

[phone] EXT 4449

[phone] (FAX)

(e-email) [e-mail]

http:/www.blhs.org

2,3,4,9 English and Spanish

Legal Assistance

DREDF: DISABILITY RIGHTS EDUCATION AND DEFENSE FUND

2212 Sixth Street

PDI Center Serving Alemeda,

Contra Costa & Yolo Counties

Berkeley, CA 94710

[phone] (V/TDD)

[phone] (FAX)

http://www.dredf.org

1,2,4,7 Spanish, Mandarin and Cantonese Chinese

NATIONAL ASSOCIATION OF PROTECTION AND ADVOCACY SYSTEMS

900 2nd Street, NE

Suite 211

Washington, DC 20002

[phone]

[phone] (TDD)

[phone] (FAX)

(e-email) [e-mail]

http://www.NAPAS.org

1,2,3,4,5,6,7,8 English

Medical Travel/Transportation

NATIONAL PATIENT TRAVEL CENTER

4620 Haygood Road

Suite 1

Virginia Beach, VA 23455

[phone] (Patients)

[phone] (Administrative)

[phone] (FAX)

(e-email) [e-mail]

http://www.PatientTravel.org

Rare Disorders

CANADIAN ORGANIZATION FOR RARE DISORDERS

151 Bloor Street West

Suite 600

Toronto, ON

CAN M5S 1S4

[phone]

[phone]

[phone] (FAX)

http://www.cord.ca

1,2,3 English and French

MUMS: NATIONAL PARENT TO PARENT NETWORK

c/o Julie Gordon

150 Custer Court

Green Bay, WI 54301-1243

[phone]

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.netnet.net/mums

1,2,3,4,5,9 We can match according to languages spoken.

NORD: NATIONAL ORGANIZATION FOR RARE DISORDERS, INC.

55 Kenosia Ave

PO Box 1968

Danbury, CT 06810

[phone] (voice message)

[phone] TDD

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.rarediseases.org

1,2,3,4,6,7,8 English

Rehabilitation

EASTER SEALS CANADA

90 Eglington Avenue East

Suite 208

Toronto, ON CAN M4P 2Y3

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.esmodnc.org

4,5,6,7,9 French and English

EASTER SEALS / MARCH OF DIMES NATIONAL COUNCIL

Suite 208

Toronto, ON CAN M4P 2Y3

[phone]

[phone] (TDD)

[phone] (FAX)

(e-email) [e-mail]

http://www.esmodnc.org

4,5,6,7,9 French and English

EASTER SEALS

18 North Oller Avenue

Waynesboro, PA 17268

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.easter-seal.org

1,2,4,5 English

Respite Care

NATIONAL RESPITE LOCATOR SERVICE

800 Eastowne Drive, Suite 105

Chapel Hill, NC 27514

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.chtop.com

4

Self-Help

AMERICAN SELF-HELP GROUP CLEARINGHOUSE

100 Hanover Avenue, 2nd Floor

Cedar Knolls NJ 07927-2020

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.selfhelpgroups.org

1,2,3,4

NATIONAL SELF-HELP CLEARINGHOUSE

CUNY Grad School, University Center

365 Fifth Avenue

Suite 3300

New York, NY 10016

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.selfhelp.org

4

Sexuality

SEXUALITY INFORMATION AND EDUCATION COUNCIL OF THE UNITED STATES

130 W. 42nd Street

Suite 350

New York, NY 10036-7802

[phone]

[phone] (FAX)

(e-email) [e-mail]

http://www.siecus.org

1,2,4,6,7,8,9 English and Spanish

Sibling Support

SIBLING SUPPORT PROJECT

Donald Meyer, Director

c/o The Arc of the US

6512 23rd Avenue, NW

Suite 213

Seattle, WA 98117

[phone]

(e-mail) [e-mail]

http://www.thearc.org/siblingsupport

2,9

Suicide Prevention

AMERICAN FOUNDATION FOR SUICIDE PREVENTION

120 Wall Street, 22nd Floor

New York, NY 10005

[phone] EXT 12

(888) 333-AFSP

[phone] (FAX)

(e-mail) [e-mail]

http://www.afsp.org

1,2,4,5,6,7,8,9 English and Some Spanish

Support

FRIENDS' HEALTH CONNECTION FOR PEOPLE WITH MEDICAL CONDITIONS AND FOR CAREG IVERS

PO Box 114

New Brunswick, NJ 08903

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http:/www.friendshealthconnection.org

2,3

Toy Lending and Adaptations

THE NATIONAL LEKOTEK CENTER

2001 N. Clybourn Avenue

Chicago, IL 60614

[phone] Toy Resource

(800) 366-PLAY Helpline

[phone] (FAX)

(e-mail) [e-mail]

http://www.lekotek.org

7 English and some materials in Spanish

Training Programs

PROJECT DOCC DELIVERY OF CHRONIC CARE

Maggie Hoffman

350 Fifth Avenue, 23rd Floor

New York, NY 10118

[phone]

[phone] (FAX)

(e-mail) [e-mail].

http://www.uhfnyc.org

1,2,3,4,6,8,9 medical education where parents are the faculty

Travel

AMERICAN SPECIAL CHILDREN'S PILGRIMAGE GROUP

PO Box 633

Bergenfield, NJ 07621

[phone]

(e-mail) [e-mail]

http://www.ascpg.org

1,2,5 English

MOBILITY INTERNATIONAL USA

132 East Broadway

Suite 343

Eugene, OR 97401

[phone] (voice/TTY)

[phone] (FAX)

(e-mail) [e-mail]

http://www.miusa.org

1,2,3,4 English and Spanish

SATH-THE SOCIETY FOR ACCESSIBLE TRAVEL & HOSPITALITY

347 Fifth Avenue

Suite 605

New York, NY 10016

[phone]

[phone](FAX)

(e-mail) [e-mail]

(e-mail) info@fath,org

http://www.sath.org

2,4,5,6,7,9 English Wish

Organizations

BELIEVE IN TOMORROW NATIONAL CHILDREN'S FOUNDATION

(formerly Grant-a-Wish Foundation)

c/o Brian Morrison

6601 Frederick Road

Baltimore, MD 21228

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.believeintomorrow.org

1,2,4 English

CHILDREN'S WISH FOUNDATION INTERNATIONAL

8615 Roswell Rd.

Atlanta, GA 30350-1822

[phone]

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.childrenswish.org

1,2,3,8 English

THE CHILDREN'S WISH FOUNDATION OF CANADA

95 Bayly Street, West

Suite 404

Ajax, ON L1S 7K8

[phone] (only Canada)

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.childrenwish.ca

1,2,3,5,6,7 English and French

MAKE-A-WISH FOUNDATION OF AMERICA

3550 N. Central Avenue

Suite 300

Phoenix, AZ 85012

[phone] (FAX)

http://www.wish.org

1,2,5,6 English and Spanish

SUNSHINE FOUNDATION

1041 Mill Creek Drive

Feasterville, PA 19053

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.sunshinefoundation.org

2,5

CHILDREN'S WISH FOUNDATION OF CANADA

Linda Marco

95 Bayly Street, West

Suite 404

Ajax ON L1S 7K8

[phone] (only Canada)

[phone]

[phone] (FAX)

(e-mail) [e-mail]

http://www.childrenwish.ca

1,2,3,5,6,7 English and French

THE DREAM FACTORY

200 W Broadway

Suite 504

Louisville, KY 40202

[phone]

[phone]

[phone] (FAX)

http://www.dreamfactoryinc.com

1,2,4,5,6

THE MARTY LYONS FOUNDATION

326 West 48th Street

New York, NY 10036

[phone]

[phone] (FAX)

http://www.martylyonsfoundation.org

1,2,4,5 English and Spanish

CHILDREN'S HOPES AND DREAMS

Mariann Oswald

138 Cloudland Road

Dahlonega, GA 30533

[phone]

[phone] (FAX)

http://www.helpingnow.org

KEY TO SERVICES

1 Periodical/newsletter

2 Informational materials

3 Networking/matching

4 Referrals to local resources

5 Local chapters

6 National conferences

7 National advocacy efforts

8 Fund research

9 Maintain research registry