MS publications available.
Interested in a deeper dive into MS clinical practice and research? Two valuable publications may help.
The Multiple Sclerosis Quarterly Report is a joint publication of United Spinal Association and the Consortium of MS Centers/ NARCOMS (North American Research Committee on MS). It is focused on MS research and provides an authoritative overview of current developments, feature stories, breaking news, and details on current clinical trials in MS. Although written for laypersons, the reading level may at times be challenging. But MS often spurs people to master un familiar material.
The MSQR is free to people with MS who have signed up with the NARCOMS Registry, an important resource for MS researchers. Participation involves filling out a detailed questionnaire twice a year, online at www .narcoms.org or on paper (call 800-253-7884). Strict confidentiality is maintained.
Names in the registry are never given out without the individual's written permission. The questions include demographic information, MS-related medical history, drug therapies and healthcare services used, and a series of performance questionnaires that reflect disability in eight domains of function. NARCOMS notifies registry participants of clinical trials they might choose to participate in and lets researchers use only de-identified data sets, without names or any other identifying information.
Preview the MS Quarterly at www.unitedspinal.org/pub lications/msqr--and consider registering with NARCOMS whether you want the publication or not. The data helps answer MS research questions and could speed the way to cures.
The International Journal of MS Care is the official publication of the Consortium, Rehabilitation in MS, and the International Organization of MS Nurses. Published by and for health-care professionals, and peer-reviewed for accuracy, the articles are not written with non professionals in mind. But the journal does reward those who have become familiar with medical literature by conveying what professionals in MS care are thinking about. The journal is available online at www.mscare.org.