Living one day at a time: thirty-four year old Chenai has AIDS. She became seriously ill following her husband's death last year. Her hospital bills became exorbitant and she moved in with her sister and her family. She spoke to Loveness Jambaya.It has not been an easy road. When I first moved into my sister's place I felt like I was intruding in·trude v. in·trud·ed, in·trud·ing, in·trudes v.tr. 1. To put or force in inappropriately, especially without invitation, fitness, or permission: ; like an outcast out·cast n. One that has been excluded from a society or system. out cast with a
plague that no one wanted to catch. It was as if no one really wanted me
around the house, especially my sister's children. I am not sure
whether I was just being paranoid or that I was actually being
stigmatised because of my condition.
Everyone around me just seemed to be extra careful where there was possible contact with me. They used disinfectants like Jik, gloves when cleaning the toilet and changing my linen, which I sometimes soiled, and so on. My sister's two children would rewash everything I touched. They didn't want to touch let alone wash my clothes. This was beginning to drive me insane and I thought they were just being over cautious. I began to feel bitter towards my nieces and all visitors who came to stay at the house. The situation became worse as I began to snap at Verb 1. snap at - bite off with a quick bite; "The dog snapped off a piece of cloth from the intruder's pants" bite off bite, seize with teeth - to grip, cut off, or tear with or as if with the teeth or jaws; "Gunny invariably tried to bite her" everyone around even when they meant well. This began to affect my sister's family as her husband was caught between allowing me to continue staying at the house or ask me to leave for the sake of his children. We eventually received counselling from a local care giver who is part of a team that works in the St Mary's neighbourhood. The counsellor explained to my nieces and the rest of the family what sharing a house with an AIDS patient meant. She also made me understand that some of their actions were necessary precautions. She explained what could put them at risk and what was not considered risky. Since then my relationship with my nieces has improved though it is not perfect. [ILLUSTRATION OMITTED] When I look at it however, my sister tries her best. On a typical day, when I am seriously ill A patient is seriously ill when his or her illness is of such severity that there is cause for immediate concern but there is no imminent danger to life. See also very seriously ill. she wakes up early to make sure she helps me take a bath. If I am well enough I do it myself. Then she prepares breakfast for me, which is usually highly nutritious nutritious /nu·tri·tious/ (noo-trish´us) affording nourishment. nu·tri·tious adj. Providing nourishment; nourishing. nutritious affording nourishment. . She is quite fussy fuss·y adj. fuss·i·er, fuss·i·est 1. Easily upset; given to bouts of ill temper: a fussy baby. 2. about what I eat and I have to make sure I oblige. I then take my medication and go and sit outside for some fresh air and get my room cleaned for me. I get something to eat again--fruit or some healthy snack like roasted peanuts, pumpkins or something else before I eventually get my lunch just after midday. I take my medication and then go back to my bed to rest. I also have another snack before supper time. Supper is my last meal of the day. My sister or the care giver make sure I take my medication at the right times. The care giver also brings some food packs and home-based care kits that her organisation distributes to help my sister. When my sister is busy--with her chain of flea market See computer flea market. flea market yard sale of used items at low prices. [Pop. Culture: Misc.] See : Inexpensiveness stalls--and cannot be available she has an arrangement with a voluntary care giver from the team that visits our neighbourhood. It is difficult for her to ask the domestic helper to take care of me as she thinks it might become too much for her and she will run away from her. Initially I believe I had the wrong attitude towards my sister. But that has changed as I see the effort she puts in to get me through each day. I have learnt to appreciate her love and support. It is a struggle because she does not get much support from our other three siblings. They feel she is the best financially placed person to take care of me since she has a small business. But they do not understand the challenges she goes through taking care of me. My other two sisters say their husbands won't allow them to have me move in with them. Meanwhile our only brother feels he cannot take me in to stay with him because I am female and they are male, hence he cannot burden his wife. Fortunately my husband's two sisters have taken in my children. Some days are better than others but I have learnt to take one day at a time One Day at a Time is a long-running American situation comedy that portrayed a divorced mother, played by Bonnie Franklin, her two teenage daughters (Mackenzie Phillips and Valerie Bertinelli) and their building superintendent (Pat Harrington, Jr.). and put my trust in the Lord. I do not know how I will ever be able to thank my sister and her husband for everything she has done for me. I hope I will get well enough for me to go back to my house, as I am now responding to my medication, and fend for Verb 1. fend for - argue or speak in defense of; "She supported the motion to strike" defend, support argue, reason - present reasons and arguments my children. Loveness Jambaya is the Gender and Media Southern Africa
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