Life after Death with Dignity: The Oregon Experience.
This article offers a framework for examination and overview of Oregon's Death with Dignity Act after its first year of implementation. This law became public policy on October 27, 1997, when all legal barriers were lifted. The law allows a terminally ill Terminally Ill
When a person is not expected to live more than 12 months.
Any gifts given out by the afflicted person at this time may be considered as a dispersion of the estate rather than a gift. person to request a prescription to end life if she or he qualifies under the law's requirements. According to according to
1. As stated or indicated by; on the authority of: according to historians.
2. In keeping with: according to instructions.
3. records, 23 Oregonians have received such a prescription, and 15 have used it. The effect of physician-assisted suicide (PAS) on clients and families, professional health care providers and agencies, and society and culture is explored through two questions: (1) What is known about PAS? and (2) What needs discovery and exploration? The reality of this end-of-life option has forever changed care of terminally ill individuals, and social workers may benefit from the Oregon experience.
Key words: death with dignity; end of life; physician-assisted suicide; right to die; terminally ill people
Introduction to Legalization LEGALIZATION. The act of making lawful.
2. By legalization, is also understood the act by which a judge or competent officer authenticates a record, or other matter, in order that the same may be lawfully read in evidence. Vide Authentication. of PAS in Oregon
Physician-assisted suicide (PAS) became legal in Oregon on October 27, 1997. When the Oregon legislature sent the Death with Dignity Act back to the 1997 ballot, it passed by an even wider margin than the original ballot measure three years earlier. Legal barriers were cleared at about the same time, and this option is now available for terminally ill residents of the state of Oregon.
The original Death with Dignity Act (Ballot Measure 16) was voted on in November 1994 and passed by a 2 percent margin (51 percent to 49 percent). Many service providers and health care professionals were caught by surprise. During the next three years, the courts were the center of attention for PAS, as the Ninth Circuit Court, and later the Supreme Court, with different cases, did not prohibit PAS. The Supreme Court found that although PAS is not a constitutional right, states have the freedom to pursue this end-of-life option if they so choose.
In November 1997, Ballot Measure 51 was placed before Oregon voters to repeal the Death with Dignity Act. There was a deluge of newspaper, radio, and television coverage, making this ballot measure one of the most expensive in Oregon's history. Repeal was defeated by a 20 percent margin, and with the legal barriers gone, PAS became public policy.
The evolution of the Death with Dignity Act was almost like a living laboratory for social workers who appreciate the ebb and flow the alternate ebb and flood of the tide; often used figuratively.
See also: Ebb of policy, practice, and politics. Despite the ongoing controversy and continued debate with Oregon's legislature and Congress, terminally ill Oregonians can ask for drugs to end life when the law's requirements are met. The Oregon Health Division released to the public a required annual report in February 1999 that contained specific data on use of the law during the first year of availability.
Oregon is in a unique position as the only place in the world where PAS is legal. Although PAS and euthanasia euthanasia (y'thənā`zhə), either painlessly putting to death or failing to prevent death from natural causes in cases of terminal illness or irreversible coma. are practiced openly in the Netherlands, these options are technically illegal. Social workers have an active role in many end-of-life settings such as hospice, long-term care, home care, and hospitals, and much has been learned in the first year since PAS became an option in Oregon. However, there are still many unknowns, and it may be of benefit to share Oregon's experiences and difficulties with PAS through a social work lens to assist practitioners and policymakers with end-of-life concerns that may emerge in their own communities.
What Is Known about Client and Family and PAS?
The guidelines to follow in the law are described here briefly. To qualify to receive a prescription for medication to end life, the person must be terminally ill with six months or less to live, and a second physician's opinion on diagnosis and prognosis is required. After the first oral request to start the process, a 15-day waiting period begins. A mental health consultation is not required, although either physician can request an evaluation by a psychiatrist or psychologist, and notification of family or friends is not required. A written request combined with another oral request is obtained, and a 48-hour waiting period begins. The prescription, generally barbiturates Barbiturates Definition
Barbiturates are medicines that act on the central nervous system and cause drowsiness and can control seizures.
Purpose and antinausea medication, is then given to the terminally ill person and taken by mouth. Social work is not specifically mentioned in the law.
In February 1999 the Oregon Health Division reported that 23 terminally ill people in Oregon had met the law's requirements and received prescriptions for the lethal drugs. Fifteen used the prescription drugs to end their lives, six died from their disease, and two were still alive on January 1, 1999 (Barnett & RojasBurke, 1999). Because of confidentiality issues, the demographics of the 15 people who took the lethal medication are limited. Eight were men, and seven were women. The median age was 69, 13 had a diagnosis of cancer, and one each had heart or lung disease lung disease Pulmonary disease Pulmonology Any condition causing or indicating impaired lung function Types of LD Obstructive lung disease–↓ in air flow caused by a narrowing or blockage of airways–eg, asthma, emphysema, chronic bronchitis; . The range of time from possession of the prescription until its use was the same day to 22 days later. According to Chin, Hedberg, Higginson, and Fleming (1999), the 15 terminally ill patients who used PAS were concerned about loss of autonomy or control of bodily functions. In addition, finances, experience of pain, health insurance coverage, or level of education were not associated with the choice of PAS. There were no reports of physical co mplications.
Fifty-three PAS deaths were predicted to happen in the first six months of the law going into effect (Woodward, 1997), but the number who received the lethal prescription drugs is far less. Forty-two people inquired about PAS by April 1998, but many were found ineligible for a wide variety of reasons: not terminal, not a resident of Oregon, death, or chose other options (Hoover, 1998c). There does not seem to be at this point any data that can point to or predict who might choose PAS as an option. In response to the lack of data, the Oregon Health Division has developed a 53-question interview that will be conducted voluntarily with doctors who participate in assisted suicide assisted suicide: see euthanasia. (Hoover, 1998d). The information obtained from the interviews should allow more information to emerge on patient demographics and the motives behind the request for PAS. One journalist (Hoover, 1998a) summed up her thinking on the type of person who might consider PAS and stated that "patients pursuing assisted suicide are those comfort able with asserting control over and planning for dying.[ldots] Doctors and counselors describe these patients as people who believe they/they've achieved much of what they set out to do in life, have loved ones who support their decision, and believe that life in some cases is over before one dies" (p. A5).
The SUPPORT (Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments) (1995) results certainly reflect the idea that there is much room for improvement in the care of people at the end of life. However, there is little data to indicate who might choose PAS. Back, Wallace, Starks, and Pearlman (1996) found that nonphysical concerns were often at the forefront for those who requested assistance with death at end of life. People in this study who requested PAS were concerned about losing control, becoming a burden, and losing independence and dignity. Concern about pain or other physical symptoms or worry about finances did not appear to drive the request.
Although case studies are not yet readily available, three helpful books for stories and cases about PAS are found in Shavelson (1995), Sequin se·quin
1. A small shiny ornamental disk, often sewn on cloth; a spangle.
2. A gold coin of the Venetian Republic. Also called zecchino.
tr.v. and Smith (1994), and Battin and Lipman (1996). A four-part series about a 35-year-old dying man named Brian that provides a powerful exploration of the process of choosing PAS was featured in the Oregonian (Barnett, 1998a, 1998b, 1998c, 1998d). Because data will emerge slowly over the next few years, these resources and personal reflections offer guidance to some deeper understanding of the thought processes This is a list of thinking styles, methods of thinking (thinking skills), and types of thought. See also the List of thinking-related topic lists, the List of philosophies and the . and feelings around death at the end of life.
What Needs Exploration and Discovery about Client and Family and PAS?
Many questions spring from the debate about how PAS will change end-of-life care for terminally ill patients and their families. The word "suffer" brings many unique and different pictures to people's minds. How does a social worker assess dignity, loss of control, suffering, and burden? Does the traditional mental health model of diagnosis and treatment of depression and distortion work at this point in the life cycle? Has self-determination gone too far (Callahan, 1994)?
Because the discussion of PAS with clients is now possible, at least in Oregon, social workers in various health care settings may work with terminally ill patients and their families who wish to consider and choose this option. Miller, Hedlund, and Murphy (1998) offered guidelines for social work practice with this population. However, more direction in social work assessment and intervention will probably evolve if and when PAS becomes available in other areas of the country.
Bereavement Bereavement Definition
Bereavement refers to the period of mourning and grief following the death of a beloved person or animal. The English word bereavement services generally are offered to all families of hospice patients for a year or so after the death. It is very unclear whether the needs of PAS families will be different from the needs of other families, whether PAS families will feel comfortable in a group setting, or whether these families will have special or different needs. Specialized bereavement groups have started in Portland, Oregon, for people who have been involved with or considered a physician-assisted death.
It is not clear whether common characteristics as to who might choose PAS will emerge or whether this is even important to know or understand. Will diagnosis, gender, race, socioeconomic status, or sexual orientation sexual orientation
The direction of one's sexual interest toward members of the same, opposite, or both sexes, especially a direction seen to be dictated by physiologic rather than sociologic forces. of the client have an effect on who will choose this option? A study of 100 people with amyotrophic lateral sclerosis amyotrophic lateral sclerosis (ALS) (ā'mīətrōf`ik, sklĭrō`sĭs) or motor neuron disease, found that more than half would consider assisted suicide (Ganzini, Johnston, McFarland, Tolle, & Lee, 1998). All 15 Oregonians who used the lethal prescription drug prescription drug Prescription medication Pharmacology An FDA-approved drug which must, by federal law or regulation, be dispensed only pursuant to a prescription–eg, finished dose form and active ingredients subject to the provisos of the Federal Food, Drug, were white. Another question to contemplate is whether having the option available will actually reduce the need to use it. Similar to evaluation of suicide in the general population, discussion of the thinking and planning of suicide can sometimes reduce the risk. It is also not clear how many people who receive the prescription will actually go ahead and use it or merely keep it close by and judge when the time has come to take the medicine (Barnett, 1999).
What Is Known about PAS and Health Care Professionals?
The Death with Dignity Act specifically mentions medical doctors and refers to psychologists and psychiatrists for evaluation of mental health. Although social work is not mentioned specifically in the law, social work is a mandated service under the Medicare hospice benefit (Miller & Mike, 1995). Oregon's law requires that all other end-of-life options are explored on request for PAS, and this is where a social work referral may begin. Social workers provide numerous services across many health care settings and should be involved in assessment and intervention with individuals who may choose PAS (Miller et al., 1998; Smokowski & Wodarski, 1996).
NASW NASW National Association of Science Writers
NASW National Association of Social Workers (Washington, DC)
NASW National Association of Social Workers
NASW National Association for Social Work (UK) was the first professional organization to adopt policy about PAS at the 1993 Delegate Assembly. Entitled "Client Self-Determination in End-of-Life Decisions" (NASW, 1994), the policy statement offers definitions, as well as a very basic framework for social work assessment and intervention if and when PAS becomes legal. With self-determination as its base, the policy says that a social worker may be present for the assisted death, but may not deliver the medications. The policy statement was not changed at the 1999 Delegate Assembly. Many other organizations and professional groups, too numerous to mention, followed with statements and positions on assisted suicide after passage of the original Death with Dignity Act in 1994 (for a list, refer to Task Force to Improve the Care of Terminally Ill Oregonians, 1998). Despite NASW's position, social workers in Oregon debated PAS and disagreed on its place in end-of-life options (Miller & Hedlund, 1996). The NASW Oregon Chapter remained neutral on both ballo t measures. Attitudes and values of social workers toward assisted suicide are just now coming into the literature (Csikai, in press).
Social workers in health care often function as part of an interdisciplinary team interdisciplinary team,
n a group that consists of specialists from several fields combining skills and resources to present guidance and information. , so it is important to understand how other professionals deal with and practice PAS. Three studies document the attitudes of different physician groups in Oregon about PAS. For physicians who might be eligible to participate under the law, about 50 percent would be willing to prescribe a lethal dose for a terminally ill patient (Lee et al., 1996). For psychiatrists (Ganzini, Fenn, Lee, Heintz, & Bloom, 1996), a majority agreed with PAS; however, only 6 percent of psychiatrists surveyed believed that a one-time consultation could evaluate depression or impairment of the patient's judgment around the request for PAS. Sixty-nine percent of emergency room physicians (Schmidt et al., 1996) agreed with PAS, and this article elaborates on the dilemma of patients' failed attempts for this professional group. One common thread that runs through these three studies is that physicians with strong religious affiliations are much less like ly to agree with or participate in PAS.
The American Pharmaceutical Association voted in March 1998 to allow its members to participate in PAS if willing to do so. However, controversy remains as to whether the prescription should be flagged as one for PAS (Hoover, 1998b). Physicians want to maintain patient confidentiality patient confidentiality Medical practice A Pt's right to privacy and freedom from public dissemination of information that the Pt regards as being of a personal nature. See HIPAA, Medical privacy. . Pharmacists want to know the purpose of the prescription for two reasons: (1) the option to refuse to fill the prescription and (2) the ability to educate the patient on proper use of the drugs. This dilemma may have to be resolved in the courts.
The option of conscientious objection to participation in PAS is part of the law. Many agencies and health care professionals, particularly those with religious affiliations, have clear policies about nonparticipation. However, other agencies are developing their policies slowly to address not only participation but also conscientious objection. Many hospice organizations state that they do not promote or agree with PAS; however, they will not abandon a patient or family that chooses this option (Mesler & Miller, in press).
Hospice agencies in particular have been struggling with implementation of PAS in Oregon. Because the hospice philosophy supports patient control and autonomy, along with neither hastening nor postponing death, PAS has created controversy within the hospice movement (Campbell, Hare, & Matthews, 1995). Data emerging from a study in progress reveal a potential dilemma for hospice workers and hospice agencies as PAS unfolds, particularly around the very principles from which the hospice movement grew (Mesler & Miller, in press). What Needs Exploration and Discovery about PAS and Health Care Professionals?
The effect of PAS on health care providers and agencies is still evolving. There appears to be a wide range of discussion about PAS practice in hospice agencies and at different levels of policy development (Woolfrey, 1998). Many agencies and professional groups spent energy on position statements during the three years of court battles on PAS. Now health care providers are faced with the reality of PAS as an option.
How PAS will change or shift the hospice philosophy remains to be seen. It may be too early to understand the subtle transformations that may occur as PAS becomes part of what hospice offers its terminally ill clients. However, the challenges that PAS poses to hospice workers definitely are emerging in a current study (Mesler & Miller, in press). It is quite possible that overtime, hospices or other health care providers may develop programs that specifically offer and market PAS as a service.
Social workers, psychologists, and psychiatrists generally are taught that suicidal ideation suicidal ideation Suicidality Psychiatry Mental thoughts and images which hinge around committing suicide. See Suicide. is a sign of depression, impaired judgment, or distortion of reality. They are taught to engage the client in a discussion about his or her plan and to force treatment if the client appears at high risk of suicide. At the end of life, a legally sanctioned option to end life with the assistance of a physician is now available in Oregon. Many mental health professionals struggle with a perceived quandary about how to evaluate depression, distortion, and judgment at end of life that seems at odds with education and training (Van Loon loon, common name for migratory aquatic birds found in fresh- and saltwater in the colder parts of the Northern Hemisphere. Its strange, laughing call carries for great distances. Like the grebes, loons float low in the water and their legs are placed far back. , 1999). New and different ways to evaluate competence, depression, and judgment at the end of life need to be developed, tested, and taught.
The financial aspects of PAS are also controversial and based at this point on projections. Wolf (1996) presented concerns about managed care and PAS, with particular emphasis on how limited treatment and referral might lead more easily to the choice of PAS. She discussed the concerns about treatment for depression that appear to exist already in managed care (less care than in fee-for-service plans) and explained the lack of information at this point about end-of-life care and managed systems.
In Oregon's three most populous counties, more than 50 percent of Medicare enrollees are in one of seven managed plans. It is too soon to know whether Medicare managed care will be cost effective or patient friendly. The Medicare Hospice Benefit provides numerous services to the terminally ill beneficiary, including payment for prescription drugs (Miller & Mike, 1995), yet the Assisted-Suicide Funding Restriction Act of 1997 (PL 105-12) prohibits use of federal money for PAS, similar to the Hyde Amendment's prohibition of federal money for abortions. How billing procedures will be implemented for the Medicare Hospice Benefit and PAS is unclear.
The Oregon Health Plan The Oregon Health Plan is the Oregon state healthcare program for low income residents of Oregon. Eligibility
Basic eligibility requires that the applicant be a resident of Oregon, as a citizen or otherwise. (OHP OHP Oregon Health Plan
OHP Overhead Projector
OHP Observatoire de Haute-Provence (French observatory)
OHP Office of Historic Preservation
OHP Oral History Project
OHP Occupational Health Psychology
OHP Oxford Health Plans Inc. ), the state's Medicaid program, will pay for PAS with state funds only, and two of the 15 people who used PAS were covered by OHP. The decision to cover this service for poor people was controversial, particularly because OHP is delivered solely through a managed care model, and the payment system has gone through numerous waivers and changes. How low-income people will use PAS or whether some groups may feel pressure to use PAS is not known yet. One argument used against the choice of abortion was the assertion that low-income women and women of color not of the white race; - commonly meaning, esp. in the United States, of negro blood, pure or mixed.
See also: Color would be forced to have abortions against their will. However, just the opposite has happened, because low-income women do not have access to abortion in many states (McFarlane & Meier, 1994).
Emanuel and Battin (1998) discussed the assertion posed in the PAS debate that doctors may push PAS to save money. The authors discussed PAS within the context of managed care, Medicare, and dollars spent on end of life. They concluded that if 2.7 percent of the dying population in the United States United States, officially United States of America, republic (2005 est. pop. 295,734,000), 3,539,227 sq mi (9,166,598 sq km), North America. The United States is the world's third largest country in population and the fourth largest country in area. per year (62,000 people) chose PAS, about 0.07 percent or $627 million of the total U.S. health care costs would be saved. Although the authors described the savings as small overall, they did not ignore the complexities and inequalities in the U.S. health care system.
What Is Known about Society and Culture and PAS?
The right-to-die movement is alive and well in the United States, and some would say on a fast track. However, health care and technology also are on a fast track. Moving from the right to withhold or withdraw treatment to the federal Patient Self-Determination Act Patient Self-Determination Act An act that requiring health professionals reimbursed by Medicare/Medicaid to inform Pts of their legal rights to refuse treatment and prepare advance directives. (PL 101-508) as part of the 1990 Omnibus Budget Reconciliation Act to double effect (pain medicine potentially hastening death) to PAS happened in less than 10 years. Hospice was legitimized by Medicare only 18 years ago (Mesler & Miller, 1996). The history of the right-to-die movement is long, political, and always controversial (Glick, 1992; Hoefler, 1994).
From a societal perspective, numerous polls and surveys indicate that a majority of U.S. citizens want PAS as an end-of-life option. A recent national poll discovered that three-fourths of those surveyed nationwide thought Congress should not intercede or restrain Oregon's Death with Dignity law (Barnett & Barnett, 1998). However, there are also other groups of people who worry about the effect of PAS on people with disabilities (Miller, 1993), people with AIDS The People With AIDS (PWA) Self-Empowerment Movement was a movement of those diagnosed with AIDS and grew out of San Francisco. The PWA Self-Empowerment Movement believes that those diagnosed as having AIDS should "take charge of their own life, illness, and care, and to minimize (Werth, 1995), and society as a whole (Dougherty, 1993). There is also some concern that Oregon's law might violate the federal Americans with Disability Act (Woodward, 1998). Some voice concern that if terminally ill people can request death earlier than its natural course, the slippery slope 'slippery slope' Medical ethics An ethical continuum or 'slope,' the impact of which has been incompletely explored, and which itself raises moral questions that are even more on the ethical 'edge' than the original issue would lead society to view people with dementia or other debilitating de·bil·i·tat·ing
Causing a loss of strength or energy.
Weakening, or reducing the strength of.
Mentioned in: Stress Reduction conditions as burdens and hasten their deaths as well.
Social work has a long way to go toward culturally sensitive practice at end of life. It is certainly not a secret that 40 million U.S. citizens are still without health insurance and that many citizens of color and those who are poor are not getting needed health care services. Spiritual and religious practices at end of life often are misunderstood or seen as noncompliance with treatment (Julia, 1996; Spector, 1991). Barriers to service may sometimes be culturally bound, because our health care system has evolved on the basis of a dominant-culture medical model. Dying people (and those living) are diverse and heterogeneous, and our ability to quantify how PAS will unfold within U.S. culture and society may not be attainable or even a priority. This does not mean, however, that we stop breaking down barriers of access to health care.
Terminal dehydration dehydration
Method of food preservation in which moisture (primarily water) is removed. Dehydration inhibits the growth of microorganisms and often reduces the bulk of food. is generally a medically and legally acceptable method to end life that may not violate ethical standards (Miller & Meier, 1998). How many terminally ill people choose this option is not clear, but Tolle (1998) delineated de·lin·e·ate
tr.v. de·lin·e·at·ed, de·lin·e·at·ing, de·lin·e·ates
1. To draw or trace the outline of; sketch out.
2. To represent pictorially; depict.
3. some of the changes that have occurred in end-of-life care in Oregon since the 1994 ballot measure. Oregon has the lowest in-hospital mortality rate in the country, admission rates into hospice have increased 20 percent, and the use of medical morphine morphine, principal derivative of opium, which is the juice in the unripe seed pods of the opium poppy, Papaver somniferum. It was first isolated from opium in 1803 by the German pharmacist F. W. A. has increased by 70 percent. Hospitals and health care systems in Oregon have developed comfort care teams that specifically address pain management.
Quill quill: see pen. , Meier, Block, and Billings (1998) described the deliberation on PAS as "both fuel and a distraction" (p. 552), and the authors elaborated on areas where disagreement about end-of-life options really merge into common ground. They spoke of the increased awareness of palliative care palliative care (paˑ·lē·ā·tiv kerˑ),
n an approach to health care that is concerned primarily with attending to physical and emotional comfort rather and pain control, patients' rights The legal interests of persons who submit to medical treatment.
For many years, common medical practice meant that physicians made decisions for their patients. This paternalistic view has gradually been supplanted by one promoting patient autonomy, whereby patients and , and a new push for revisiting and rethinking professional values.
What Needs Exploration and Discovery for Society and Culture and PAS?
The effects of Oregon's law on end-of-life care and how other states might proceed either for or against PAS is difficult to know. Nine state legislatures, including Oregon, have considered a ban on PAS, and 11 states have contemplated the use of PAS (Hoover, 1997). Michigan voters soundly defeated a PAS bill similar to Oregon's in the fall of 1998.
The controversy sparked by PAS has definitely raised awareness about pain control at end of life, and 22 states have studied and changed access to good pain management. These efforts are accomplished by changes in access to pain medicine, patients' bills of rights, and rethinking of pain as a diagnosis rather than a symptom. The Joint Commission on Accreditation of Healthcare Organizations Joint Commission on Accreditation of Healthcare Organizations,
n.pr the United States body that accredits healthcare organizations.
Joint Commission on Accreditation of Healthcare Organizations (JCAHO/TJC),
n. (JCAHO JCAHO Joint Commission on Accreditation of Healthcare Organizations, see there ) has added new standards for the assessment and management of pain to be implemented over the next two years (Resource Center of the American Alliance of Cancer Pain Initiatives, 1999). Oregon's Task Force on Pain and Symptom Management was mandated by the last legislative session to learn about how good pain management works and what the barriers are in that state to good pain control for terminally and chronically ill people. A report was given to the governor and the legislature in January 1999 that recommends a wide range of changes in pain management, education, and access (Pain and Symptom Management Task Forc e, 1999). The Oregon legislature also will consider a bill that mandates universal hospice access to all residents.
Whether the slippery slope has begun is being debated. Will Oregon's law open the door to voluntary euthanasia that would allow health care professionals to administer the lethal dose? Will PAS be a part of advance directives, or could a health care proxy health care proxy End-of-life A power of attorney for health-care decision-making in which a person designates another to make medical decisions in the event that he/she becomes too incapacitated to make such decisions. See Advance medical directive, Living will. make a decision for a lethal prescription drugs if given permission in advance? Will terminally ill people be viewed differently? The questions are unending, and the answers are few.
Implications for Social Work and Conclusion
PAS is extremely complex and driven by multiple factors. The practice of PAS in Oregon is slowly evolving and changing. For individuals working with dying people in Oregon, it has been a bumpy and tiring road. There has been little available about PAS in the social work literature, although nursing and medicine journals have been very active on the issue. The Oregon experience may be of some guidance as other states move forward with their own versions of PAS.
It seems curious that so few Oregonians have chosen PAS at this point and that so much furor furor /fu·ror/ (fu´ror) fury; rage.
furor epilep´ticus an attack of intense anger occurring in epilepsy. has been raised every time a PAS death is reported, particularly because people with AIDS had used the practice for many years (Shavelson, 1995). As the practice moves into mainstream society, it has come under much more scrutiny. It is also interesting that a Congress that supports states' rights would attempt to repeal Oregon's Death with Dignity Act after two state elections. The action in the fall of 1998 by the House Judiciary Committee Judiciary Committee may refer to:
This article is offered to individuals who want to learn about Oregon's Death with Dignity Act and how it has begun to unfold over its first year of legalization. The practice issues may not resolve themselves for some time; meanwhile, other states may adopt PAS policy. What is currently known about PAS for clients and families, health care professionals, and society could change, and there is much more that needs to be explored. In Oregon the debate about whether PAS is good public policy has been put to the side as the reality and consequences of this option must be incorporated into end-of-life decisions. There is life after Death with Dignity, and time will reveal the results of this extremely controversial choice.
Pamela J. Miller, PhD, ACSW ACSW Academy of Certified Social Workers
ACSW Australasian Computer Science Week
ACSW Advisory Council on the Status of Women
ACSW Alberta College of Social Workers
ACSW Advanced Crew-Served Weapon (US DoD)
ACSW Actuaries’ Club of the Southwest , is associate professor, Graduate School of Social Work, Portland State University, Box 751, 400B University Center Building, Portland, OR 97207; e-mail: email@example.com.
NOTE: Because this subject area is changing so quickly, it should be noted that the data from the second year after passage of the law were released in February 2000 and that Congress took on the Pain Relief Promotion Act in that session; consequently, Oregon's law could be in jeopardy, depending on the results.
Assisted Suicide Funding Restriction Act of 1997, P.L. 105-12, 111 Stat. 23.
Back, A. L., Wallace, J. I., Starks, H. E., & Pearlman, R. A. (1996). Physician-assisted suicide and euthanasia in Washington State. JAMA, 275, 919-925.
Barnett, E. H. (1998a, November 22). Choosing how to die. Oregonian, pp. A1, A16.
Barnett, E. H. (1998b, November 23). From theory to reality. Oregonian, pp. A1, A9.
Barnett, E. H. (1998c, November 24). Struggling with a decision. Oregonian, pp. A1, A8.
Barnett, E. H. (1998d, November 25). Hope slips away in final vigil. Oregonian, pp. A1, A6.
Barnett, E. H. (1999, January 17). Dilemma of assisted suicide: When? Oregonian, Al, A16.
Barnett, E. H., & Barnett, J. (1998, July 30). Poll: Nation sides with Oregon on suicide issue. Oregonian, pp. B1, B7.
Barnett, E. H., & Rojas-Burke, J. (1999, February 18). 15 Oregonians chose assisted suicide in '98, report says. Oregonian, pp. A1, A11.
Battin, M. P., & Lipman, A. G. (1996). Drug use in assisted suicide and euthanasia. New York New York, state, United States
New York, Middle Atlantic state of the United States. It is bordered by Vermont, Massachusetts, Connecticut, and the Atlantic Ocean (E), New Jersey and Pennsylvania (S), Lakes Erie and Ontario and the Canadian province of : Haworth Press.
Callahan, J. (1994). The ethics of assisted suicide. Health & Social Work, 19, 237-244.
Campbell, C. S., Hare, J. & Matthews, P. (1995). Conflicts of conscience: Hospice and assisted suicide. Hastings Center The Hastings Center, founded in 1969, is an independent, nonpartisan, non-profit bioethics research institute dedicated to examination of essential questions in health care, biotechnology, and the environment. Report, 25(3), 36-43.
Chin, A. E., Hedberg, K., Higginson, G. K., & Fleming, D. W. (1999). Legalized physician-assisted suicide in Oregon: The first year's experience. New England Journal of Medicine The New England Journal of Medicine (New Engl J Med or NEJM) is an English-language peer-reviewed medical journal published by the Massachusetts Medical Society. It is one of the most popular and widely-read peer-reviewed general medical journals in the world. , 340, 577-583.
Csikai, E. L. (in press). The role of values and experience in determining social workers' attitudes toward euthanasia and assisted suicide. Social Work in Health Care.
Dougherty, C. J. (1993). The common good, terminal illness, and euthanasia. Issues in Law & Medicine, 9, 151-166.
Emanuel, E. J., & Battin, M. P. (1998). What are the potential cost savings from legalizing physician assisted suicide? New England Journal of Medicine, 339, 167-172.
Ganzini, L., Fenn, D. S., Lee, M. A., Heintz, R. T., & Bloom, J. D. (1996). Attitudes of Oregon psychiatrists toward physician-assisted suicide. American Journal of Psychiatry, 153, 1469-1475.
Ganzini, L., Johnston, W. S., McFarland, B. H., Tolle, S. W., & Lee, M. A. (1998). Attitudes of patients with amyotrophic lateral sclerosis and their care givers toward assisted suicide. New England Journal of Medicine, 339,967-973.
Glick, H. R. (1992). The right to die. New York: Columbia University Press Columbia University Press is an academic press based in New York City and affiliated with Columbia University. It is currently directed by James D. Jordan (2004-present) and publishes titles in the humanities and sciences, including the fields of literary and cultural studies, .
Hoefler, J. M. (1994). Deathright: Culture, medicine, politics and the right to die. Boulder, CO: Westview Press.
Hoover, E. (1997, November 18). Suicide laws seem unlikely elsewhere. Oregonian, pp. A1, A7.
Hoover, E. (1998a, February 19). Patients find roadblocks to suicide. Oregonian, pp. A1, A5.
Hoover, E. (1998b, April 18). Pharmacists accept right to legal lethal dose. Oregonian, pp. E1, E3.
Hoover, E. (1998c, April 24). So far, 42 people ask for assisted suicide. Oregonian, p. D1.
Hoover, E. (1998d, June 17). Questionnaire compiled for doctors aiding deaths. Oregonian, pp. B1, B7.
Julia, M. C. (1996). Multicultural awareness in the health care professions. Boston: Allyn & Bacon.
Lee, M. A., Nelson, H. D., Tilden, V. P., Ganzini, L., Schmidt, T. A., & Tolle, S. W. (1996). Legalizing assisted suicide--Views of physicians in Oregon. New England Journal of Medicine, 334, 310-315.
McFarlane, D. R., & Meier, K. J. (1994). State abortion funding policies. Women & Health, 22(1), 99-115.
Mesler, M. A., & Miller, P. J. (1996). Incarnating heaven: Making the hospice philosophy mean business. Journal of Sociology and Social Welfare, 23(3), 31-49.
Mesler, M. A., & Miller, P. J. (in press). Hospice and assisted suicide: The structure and process of an inherent dilemma. Death Studies.
Miller, F. G., & Meier, D. E. (1998). Voluntary death: A comparison of terminal dehydration and physician-assisted suicide. Annals of Internal Medicine Annals of Internal Medicine (Ann Intern Med) is an academic medical journal published by the American College of Physicians (ACP). It publishes research articles and reviews in the area of internal medicine. Its current editor is Harold C. Sox. , 128, 559-562.
Miller, P. J., & Hedlund, S. C. (1996). Oregon's assisted suicide law: A different perspective. American Journal of Hospice and Palliative Care, 13(3), 26-33.
Miller, P. J., Hedlund, S. C., & Murphy, K. A. (1998). Social work assessment at end of life: Practice guidelines practice guidelines Medical practice A set of recommendations for Pt management that identifies a specific or range of range of management strategies. See Peer review organization, Practice standards. Cf 'Cookbook' medicine. for suicide and the terminally ill. Social Work in Health Care, 26(4), 23-36.
Miller, P. J., & Mike, P. B. (1995). The Medicare hospice benefit: Ten years of federal policy for the terminally ill. Death Studies, 19, 531-542.
Miller, p. S. (1993). The impact of assisted suicide on persons with disabilities--Is it a right without freedom? Issues in Law & Medicine, 9(1), 47-62.
National Association of Social Workers. (1994). Client self-determination in end-of-life decisions. In Social work speaks: NASW policy statements (3rd ed., pp. 58-61). Washington DC: NASW Press.
Pain and Symptom Management Task Force. (1999). Report to the Seventieth Oregon Legislative Assembly The Oregon Legislative Assembly is the state legislature for the U.S. state of Oregon. The Legislative Assembly is bicameral, meaning that it has two chambers: the Senate, whose 30 members are elected to serve four-year terms; and the House of Representatives, which has 60 members and Governor John Kitzhaber John Albert Kitzhaber (born March 5 1947 in Colfax, Washington) is a physician, member of the Democratic Party and former two term Governor of Oregon. He graduated from South Eugene High School in 1965, Dartmouth College in 1969, and then Oregon Health & Science University with a , State of Oregon.
Patient Self-Determination Act of 1990, P.L. 101-508, 104 Stat. 1388.
Quill, T. E., Meier, D. E., Block, S. D., & Billings, J. A. (1998). The debate over physician-assisted suicide: Empirical data and convergent views. Annals of Internal Medicine, 128, 552-558.
Resource Center of the American Alliance of Cancer Pain Initiatives. (1999, Fall). JCAHO revises standards to address pain management. Cancer Pain Forum, pp. 1-2 [Online]. Available: www.aacpi.org.
Schmidt, T. A., Zechnich, A. D., Tilden, V. P., Lee, M. A., Ganzini, L., Nelson, H. D., & Tolle, S. W. (1996). Oregon emergency physicians' experiences with, attitudes toward, and concerns about physician-assisted suicide. Academic Emergency Medicine, 3, 938-945.
Sequin, M., & Smith, C. K. (1994). A gentle death. Toronto: Key Porter Books.
Shavelson, L. (1995). A chosen death. The dying confront assisted suicide. New York: Simon & Schuster Simon & Schuster
U.S. publishing company. It was founded in 1924 by Richard L. Simon (1899–1960) and M. Lincoln Schuster (1897–1970), whose initial project, the original crossword-puzzle book, was a best-seller. .
Smokowski, P. R., & Wodarski, J. S. (1996). Euthanasia and physician-assisted suicide: A social work update. Social Work in Health Care, 23(1), 53-65.
Spector, R. E. (1991). Cultural diversity in health and illness (3rd ed.). East Norwalk East Norwalk is a neighborhood located in Norwalk, Connecticut.
The neighborhood is a culturally diverse, mostly middle-class section of the city, inhabited by many different ethnicities such as Greeks, Italians, Hispanics, African Americans, and long time "Connecticut , CT: Appleton & Lange.
SUPPORT Principal Investigators. (1995). A controlled trial to improve care for seriously ill hospitalized patients. JAMA, 274, 1591-1598.
Task Force to Improve the Care of Terminally Ill Oregonians. (1998). The Oregon Death with Dignity Act Ballot Measure 16 of 1994 established the U.S. state of Oregon's Death with Dignity Act (ORS 127.800-995), which legalizes physician-assisted dying with certain restrictions. Passage of this initiative made Oregon the first U.S. : A guidebook for health care providers. Portland: Oregon Health Sciences University, Center for Ethics in Health Care.
Tolle, S. W. (1998). Care of the dying: Clinical and financial lessons from the Oregon experience. Annals of Internal Medicine, 128, 567-568.
Van Loon, R. A. (1999). Desire to die in terminally ill people: A framework for assessment and intervention. Health & Social Work, 24, 260-268.
Werth, J. L. (1995). Rational suicide reconsidered: AIDS as an impetus for change. Death Studies, 19, 65-80.
Wolf, S. M. (1996). Physician-assisted suicide in the context of managed care. Duquesne Law Review, 35, 455-479.
Woodward, S. (1997, December 7). The suicide equation. Oregonian, pp. E1, E2.
Woodward, S. (1998, February 27). Oregon will cover assisted suicide. Oregonian, pp. A1, A19.
Woolfrey, J. (1998). What happens now? Oregon and physician-assisted suicide. Hastings Center Report, 28(3), 9-17.