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Journals make family secrets public.


Many researchers have studied detailed family trees to trace disease-causing genes as they are passed from generation to generation. The diagrams can reveal incest, mistaken paternity The state or condition of a father; the relationship of a father.

English and U.S. Common Law have recognized the importance of establishing the paternity of children.
, and other skeletons in a family's past. A study in the June 10 Journal of the American Medical Association JAMA: The Journal of the American Medical Association is an international peer-reviewed general medical journal, published 48 times per year by the American Medical Association. JAMA is the most widely circulated medical journal in the world.  suggests that publication of such genealogies can violate patient confidentiality patient confidentiality Medical practice A Pt's right to privacy and freedom from public dissemination of information that the Pt regards as being of a personal nature. See HIPAA, Medical privacy.  

Ethicist eth·i·cist   also e·thi·cian
n.
A specialist in ethics.

Noun 1. ethicist - a philosopher who specializes in ethics
ethician

philosopher - a specialist in philosophy
 Jeffrey R. Botkin of the University of Utah The University of Utah (also The U or the U of U or the UU), located in Salt Lake City, is the flagship public research university in the state of Utah, and one of 10 institutions that make up the Utah System of Higher Education.  in Salt Lake City and his colleagues surveyed 177 investigators regarding the publication of genealogies. They found that 131 did not obtain written consent for such publication and 61 researchers said they did not tell participants that their family tree would be included in a scientific article.

Once the paper appears in a scientific journal, "there may be breaches of privacy," Botkin says. He recalls a family feud after a young Catholic woman found out about her aunt's abortions.

Some scientists, on the other hand, seem well aware of privacy problems caused by the publication of family trees. Thirty-two of the researchers reported that they had altered the published genealogies in order to protect families. Only 14, however, had reported the alterations to the journal's become pancreatic, says Melton.
COPYRIGHT 1998 Science Service, Inc.
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 1998, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

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Title Annotation:Science and Society; genealogies used for family health research
Author:Fackelmann, Kathleen
Publication:Science News
Article Type:Brief Article
Date:Jul 4, 1998
Words:193
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