FAMILY SEEKS MARROW MATCH FOR AILING SON.Byline: Patricia Farrell Aidem Staff Writer VALENCIA - It was a rash that appeared on Peter Nahas' arm when he was 9 that sent a Valencia family into a four-year search for the bone marrow he needs to help battle an inherited blood disorder Noun 1. blood disorder - a disease or disorder of the blood blood disease cytopenia - a deficiency of some cellular element of the blood acidemia - a blood disorder characterized by an increased concentration of hydrogen ions in the blood (which falls . Now 13, Peter has yet to find the right match, said his mother, Lina. To widen the search, the family is holding a bone marrow drive next week at a Greek Orthodox church Greek Orthodox Church Independent Eastern Orthodox church of Greece. The term is sometimes used erroneously for Eastern Orthodoxy in general. It remained under the patriarch of Constantinople until 1833, when it became independent. in the San Fernando Valley San Fernando Valley Valley, southern California, U.S. Northwest of central Los Angeles, the valley is bounded by the San Gabriel, Santa Susana, and Santa Monica mountains and the Simi Hills. with hopes of tapping the Middle Eastern community. Peter's heritage is Greek. And because bone marrow characteristics are more likely to match if donor and recipient are of similar ethnic backgrounds, his family is encouraging donors of Middle Eastern descent. The search, however, is larger than that. People of all backgrounds are urged to undergo the simple blood test from 7:30 a.m. to 1:30 p.m. June 12 at St. Nicholas Church, 9501 Balboa Blvd., Northridge. Potential matches will be called back for further testing in hopes that someone will be able to give this 13-year-old a shot at a better life. The family will pay for the testing - $65 per person. That fee, however, could be erased if 60 people agree to donate a pint of blood each in a companion drive to help replenish re·plen·ish v. re·plen·ished, re·plen·ish·ing, re·plen·ish·es v.tr. 1. To fill or make complete again; add a new stock or supply to: replenish the larder. 2. Southern California's dangerously low supply. Peter has Fanconi anemia Fanconi anemia (FA) is a genetic disease that affects children and adults from all ethnic backgrounds. The disease is named after the Swiss pediatrician who originally described this disorder, Guido Fanconi. , which leads to bone marrow failure. The condition has left him susceptible to infection, and as an adult he will be at much higher risk for various cancers than the average population. His parents are moving one step at a time to keep him well. ``We need to find a match to cure the bone marrow part and we'll worry about the other stuff later,'' Lina said. Peter was attending Mountainview Elementary School elementary school: see school. in Saugus when he was diagnosed and soon afterward 150 volunteered to be tested as a possible match. No match was found, prompting plans for an effort that would attract more likely candidates. If both parents carry the Fanconi anemia gene, there is a 25 percent chance their child will develop the disorder. The Nahases have an older daughter who did not. Peter, who went to Arroyo Seco Junior High School Arroyo Seco Junior High School is a public junior high school in Saugus, California. It is a member of the William S. Hart Union High School District. Rhondi Durand, Cathy Novean, and Dr. Andy Keyne are the principals. , was home-schooled this year to guard against infection. He can't go out much, but loves video games See video game console. and animals, his mother saad. ``He just loves animals, anything to do with animals,'' Lina said. ``He has two little Chihuahuas and we're cat-sitting for the summer.'' In the fall, Peter will go to the new West Ranch School in Stevenson Ranch Stevenson Ranch, California (in the 91381 ZIP Code) is a Los Angeles County, USA, unincorporated community west of Santa Clarita a few miles south of Six Flags Magic Mountain amusement park. The Stevenson Ranch fountain was redone in 2007. because it will have a comparatively smaller enrollment, which means a smaller risk of getting sick. ``It's just opening and they'll just have freshmen and a block schedule with only three classes a day,'' Lina said. ``He won't have to move around as much; it'll be less tiring for him. He won't have as many books to carry. Hopefully, he'll be able to stay there.'' Patricia Farrell Aidem, (661) 257-5251 pat.aidem(at)dailynews.com |
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