CureDuchenne Caped Crusaders Compete for the Cure.105 to Run/Walk in OC Marathon for the Boys Who Can't IRVINE, Calif. -- CureDuchenne will boldly wave its colors at the 2007 Orange County Marathon on Sunday, January 7th, as 105 runners and walkers proudly display CureDuchenne capes during the race. The CureDuchenne Crusaders are participating in this year's marathon to bring visibility to the most lethal genetic childhood disorderODuchenne muscular dystrophy muscular dystrophy (dĭs`trōfē), any of several inherited diseases characterized by progressive wasting of the skeletal muscles. There are five main forms of the disease. . "This is our first year participating in the OC Marathon. We hope the public will take notice of our sea of green capes and open their hearts to our boys," said Debra Miller, President and co-founder of CureDuchenne and parent of a Duchenne boy. "Even though most people have heard of muscular dystrophy, they generally think of it as one disease. Duchenne is virtually unknown to most, and because of this, research is severely under-funded. We hope to fill that gap. Thanks to people like our team captains, Scott and Cathy Jones Cathy Jones (born April 6, 1955, in St. John's, Newfoundland) is a Canadian comedian and writer. She was born Catherine Theresa Jones in 1955 in Newfoundland, Canada and attended Holy Heart of Mary High School. , who also have a Duchenne boy, and all our Crusaders, we're well on our way. We're sincerely grateful for the huge response from our community and friends from across the nation who will join us for the marathon and help us get the word out. "For the first time, there is hope for Duchenne boys. Research projects that CureDuchenne is funding show promise of offering life-extending and enhancing therapies to these children. It's not a matter of if treatments will be foundObut when. The more support we have now, the more children will be saved." About Duchenne Muscular Dystrophy Duchenne muscular dystrophy (DMD) The most severe form of muscular dystrophy, DMD usually affects young boys and causes progressive muscle weakness, usually beginning in the legs. Every year, an estimated 20,000 babies (almost all of them boys) are born with Duchenne muscular dystrophy. Their muscle cells will die and not regenerate. They will be in wheel chairs by 12 and, historically, most have not survived their teenage years. An estimated 1 in every 3,500 boys worldwide is afflicted af·flict tr.v. af·flict·ed, af·flict·ing, af·flicts To inflict grievous physical or mental suffering on. [Middle English afflighten, from afflight, with Duchenne. It knows no boundaries and crosses all cultures and races. The gene mutation Noun 1. gene mutation - (genetics) a mutation due to an intramolecular reorganization of a gene point mutation genetic science, genetics - the branch of biology that studies heredity and variation in organisms that causes Duchenne is usually passed from mother to son, but fully one-third of cases are spontaneous. It can happen in any family. There currently is no cure, but for the first time, there are promising therapies on the horizon. About CureDuchenne CureDuchenne is a non-profit organization A non-profit organization (abbreviated "NPO", also "non-profit" or "not-for-profit") is a legally constituted organization whose primary objective is to support or to actively engage in activities of public or private interest without any commercial or monetary profit purposes. founded in 2003 by Debra and Paul Miller The name Paul Miller is shared by a number of people.
For more information, contact: CureDuchenne, 3334 E. Coast Hwy. #157, Corona del Mar Del Mar is the name of several places in the United States of America:
About The Orange County Marathon The Third Annual OC Marathon will take place Sunday, January 7th, 2007 and looks to draw 12,000 runners from around the world and 40,000 spectators to Orange County. The pinnacle of achievement for elite athletes and everyday runners alike, the Marathon is the focal point focal point n. See focus. of race weekend with a Half-Marathon, 5k Run/Walk, Kid's 1 Mile Run and a two day Health & Fitness Expo. The 26.2-mile course will begin at Newport Center Newport Center is a business, shopping, and entertainment district located on a high bluff overlooking Newport Harbor in Newport Beach, California. It was created in the early 1960s as part of William Pereira's master plan for the Irvine Ranch. , adjacent to Fashion Island in Newport Beach Newport Beach, residential and resort city (1990 pop. 66,643), Orange co., S Calif., on Newport Bay and the Pacific Ocean; inc. 1906. It is a popular seaside resort and yachting center. Manufactures include electrical and medical equipment, computers, boats, and adhesives. , and wind its way through the cities of Newport Beach, Irvine and Tustin to finish at the Greater Irvine Spectrum area. Last year's Marathon attracted over 10,000 runners from 10 countries, 42 states and over 600 cities benefiting eleven Orange County children's charities with many dramatic story lines. The race begins at 7:30 a.m. on Sunday, January 7th, 2007. For more information contact: Peggy Fort, President & CEO (1) (Chief Executive Officer) The highest individual in command of an organization. Typically the president of the company, the CEO reports to the Chairman of the Board. , California Marketing Concepts, Inc. at (949) 422-4210 or send an email to info@askcmc.com or visit: www.ocmarathon.com. INVITATION TO PRESS All press representatives are invited to join the CureDuchenne Crusaders at our hospitality location during the marathon. Please join us at: The Fox Sports Grill, Irvine Spectrum, 31 Fortune Drive, Irvine, CA 92618, 949-753-1369 (corner of Fortune Drive and Pacifica, next to Edwards Theatre) from 9:00 a.m. to 1:00 p.m. on Sunday, January 7, 2007. Continental breakfast and appetizers to be provided. Meet the Crusaders and learn more about Duchenne and our boys. |
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