Cruising the information highway ... on a scooter."Wake up! " calls Mary Helen Gunkler, though there's no one else in the room. "Wake up!" she repeats, slightly louder. Suddenly, her computer springs to life, ready to perform almost any task from writing memos and connecting her with friends on the Internet to balancing her checkbook and paying bills. It even dials the telephone -- all at the command of her voice. Ms. Gunkler, a Minnesotan who has had MS for five years, has been a quadriplegic quadriplegic /quad·ri·ple·gic/ (-ple´jik) 1. of, pertaining to, or characterized by quadriplegia. 2. an individual with quadriplegia. for nearly two. She had to give up her job as a dietitian dietitian /di·e·ti·tian/ (di?e-tish´in) one skilled in the use of diet in health and disease. di·e·ti·tian or di·e·ti·cian n. A person specializing in dietetics. at a major food company. But getting a computer with state-of-the-art voice recognition software has turned her life around; someday she expects to work in her profession again. "Having my computer is like having the prison doors opened," she said. There's no shortage of success stories about how computers have opened whole new worlds for people with disabilities. But for every happy ending, there's someone who has missed out on the technological help he or she needs. If you haven't "gotten into" computers yet, you'll be surprised to learn how easy it is. And, though they're often tough to find, resources are available to help you get started. What's Out There? No matter what your level of disability, there is probably an assistive device assistive device Public health Any device designed or adapted to help people with physical or emotional disorders to perform actions, tasks, and activities. See Americans with Disabilities Act, Architectural barriers, Assistive technology. that can help. Using computer-based technology can compensate when you've lost an ability -- for instance, a speech synthesizer synthesizer Machine that electronically generates and modifies sounds, frequently with the use of a digital computer, for use in the composition of electronic music and in live performance. can "speak" aloud any text you type in, if you cannot speak aloud yourself. You can also use a computer to help restore other functions, such as sharpening your concentration skills with a "thinking" software program. The options range from high- to low-tech. Here's a small sampling of the possibilities: * Miniature keyboards that allow you to type if you have a limited range of motion. * Electronic "pointers" -- stickers worn on your forehead, finger, or foot -- that allow you to point to commands on a computer screen if you can't use a keyboard. * Keyguards to prevent accidental keystrokes if you have tremors. * Screen enlargers that enhance computer screen size if your vision is limited. * Word prediction software Software that anticipates the correct word after typing only a couple of characters. Word prediction is used in Web browsers to save typing in a lengthy URL. It is also available for word processors to lower the number of keystrokes required by turning abbreviations into words or by that helps conserve your energy by automatically filling in a choice of commonly used words or phrases once you've typed in a few first letters of a word. * Screen readers that can read aloud whatever's on the computer screen (say, the newspaper, downloaded from the Internet). For ideas about how a computer might help you, talk first with the service providers you work with -- your physical therapists, rehabilitation specialists, and professionals in social service agencies. Chances are, some of them have experience with devices that are appropriate for you. Other good sources of information include computer magazines and local computer users' groups This is a list of users' groups and types of users' groups with their own Wikipedia articles, categorized by interest. Computers General
Getting an Evaluation Before you buy anything, experts urge, get a computer access evaluation to determine what your needs are and how assistive technology Hardware and software that help people who are physically impaired. Often called "accessibility options" when referring to enhancements for using the computer, the entire field of assistive technology is quite vast and even includes ramp and doorway construction in buildings to support can help. The evaluation staff should have expertise in both computer operation and in working with people who have disabilities. During the evaluation, you can try out different systems to see what works best for you. To get an evaluation, ask local rehabilitation agencies, hospitals, or independent living centers (see "Resources" on pages 6-7). Another option is your state's Tech Act project. These centers are found in each state, under the mandate of the 1988 Technology-related Assistance for Individuals with Disabilities Act (P.L. 99407). They were established to help people with disabilities get the assistive technology they need. (RESNA RESNA Rehabilitation Engineering and Assistive Technology Society of North America (formerly Rehabilitation Engineering Society of North America) , an organization listed in the "Resources" section, can help you locate the project in your state.) Help with Funding Once you've determined what you need, you'll probably need some help with the bill. Technology is rarely inexpensive. Fortunately, there are several ways to get financial aid, though you may have to do much of the digging yourself. Check your insurance company policy first to see if computers (sometimes called "durable medical equipment Durable medical equipment is a term of art used to describe certain Medicare benefits, that is, whether Medicare may pay for the item. The item is defined by Title XVIII the Social Security Act: "Public disability funding largely falls into three categories: vocational rehabilitation Noun 1. vocational rehabilitation - providing training in a specific trade with the aim of gaining employment rehabilitation - the restoration of someone to a useful place in society , special education, and Medicaid," notes Nell Bailey, Director of RESNA's Technical Assistance Project. Each has specific eligibility criteria. Vocational rehabilitation provides technology that enables people to work at jobs ("although you may also be able to get approved for a device that allows you to live independently," claims Ms. Bailey). Special Education is geared toward providing educational access for disabled children through age 21 -- and devices must be used for schooling. In both instances, the technology should be included in the person's individualized in·di·vid·u·al·ize tr.v. in·di·vid·u·al·ized, in·di·vid·u·al·iz·ing, in·di·vid·u·al·iz·es 1. To give individuality to. 2. To consider or treat individually; particularize. 3. plan. Medicaid may help you pay for an assistive device if it is associated with a specific medical need. Applying for public funding Public funding is money given from tax revenue or other governmental sources to an individual, organization, or entity. See also
Shelley Peterman Pe´ter`man n. 1. A fisherman; - so called after the apostle Peter. Schwarz, a Wisconsin-based writer whose work often appears in this magazine, got help from Vocational Rehabilitation. A former teacher of the deaf, she had to retire 15 years ago when MS restricted her ability to sign and finger-spell. Today, thanks to her computer (which she manipulates with a single hand), she's written more than 200 magazine and newspaper articles and is working on her third book. Mrs. Schwarz uses a three-wheel scooter and needed a keyboard tray that would slide out perpendicular to her desk and across her lap. She and the vocational rehab staff designed a wooden keyboard tray that slides in and out with a single push. "Now, when I'm finished writing, I can just push the tray in and drive away," she said. If public funding sources don't come through, you can try some creative approaches. Ronna Linroth, Funding and Policy Specialist at the STAR Program (System of Technology to Achieve Results) in St. Paul St. Paul as a missionary he fearlessly confronts the “perils of waters, of robbers, in the city, in the wilderness.” [N.T.: II Cor. 11:26] See : Bravery , suggests asking yourself, "What organizations do I belong to?" Groups like the Lions Club, Veterans of Foreign Wars (VFW See Video for Windows. ), or churches and synagogues often have projects to help people with disabilities. They may even organize a fund-raising drive Noun 1. fund-raising drive - a campaign to raise money for some cause fund-raising campaign, fund-raising effort crusade, campaign, cause, drive, effort, movement - a series of actions advancing a principle or tending toward a particular end; "he supported to help you. You might also consider a loan. A few banks offer favorable rates for people with disabilities. First Bank, for example, offers an "Accessibility Financing Program specifically for purchases of assistive devices and living aids. (Contact First FinancialLine at 1-800-444-1244 weekdays; TTY (TeleTYpewriter) See teletypewriter and TDD/TTY. (hardware) tty - /tit'ee/ (ITS pronunciation, but some Unix people say it this way as well; this pronunciation is not considered to have sexual undertones), /T T Y/ 1. teletypewriter. 2. 1-800-217-0087.) Getting Training Once you've gotten your computer, the most critical step remains: learning how to use it. Manuals are helpful, but for most people they are not enough. Check to see if the manufacturer offers free "get started" classes. Many of the sources you've consulted for funding can also help you find training; your state's Tech Act project or Vocational Rehabilitation office are good places to start. Rachael Bower, Information Outreach Coordinator at the University of Wisconsin's Trace Research and Development Center, suggests trying vocational/technical schools or community colleges for low-cost computer classes. Universities are another good source for advice about training, she noted. "Under the ADA Ada, city, United States Ada (ā`ə), city (1990 pop. 15,820), seat of Pontotoc co., S central Okla.; inc. 1904. It is a large cattle market and the center of a rich oil and ranch area. [Americans with Disabilities Act Americans with Disabilities Act, U.S. civil-rights law, enacted 1990, that forbids discrimination of various sorts against persons with physical or mental handicaps. ], universities must make their facilities accessible to students with disabilities. There's usually a department that deals with access issues that might be able to help. There may be a disabled students' group." Or she suggests taking a continuing education continuing education: see adult education. continuing education or adult education Any form of learning provided for adults. In the U.S. the University of Wisconsin was the first academic institution to offer such programs (1904). class in computers, especially since that may grant you access to the university's computer laboratory. Shelley Peterman Schwarz advocates seeking out computer-savvy friends and local users' groups. "People who are into computers are usually so helpful and eager to show you what computers can do." Not Just For Computer Whizzes If you've read all this and still think computers aren't for you, consider Sidney Rosenthal's story. He'd been a successful medical illustrator A medical illustrator is a professional artist who interprets and creates visual material to help record and disseminate medical, biological and related knowledge. Medical illustrators not only produce such material but can also function as consultants and administrators within the in Boston, Massachusetts “Boston” redirects here. For other uses, see Boston (disambiguation). Boston is the capital and most populous city of Massachusetts.[3] The largest city in New England, Boston is considered the unofficial economic and cultural center of the entire New , until progressive MS rendered his right arm -- his drawing arm -- useless. Forced to retire in his mid-fifties, he passed his business on to his daughter and son. Soon, his children had computerized the operation -- setting him up with a computer, some instruction manuals, and a speakerphone. "I didn't know a thing about computers, but it was sink or swim," he said. "I called my kids whenever I needed help." Eventually, he mastered the machine. From there he tried drawing software, using 4 mouse with his good hand, and word-processing software for people with typing injuries. Now, eight years after his "retirement," Mr. Rosenthal's life is busier than ever. He serves as an unpaid consultant in medical illustration, has written a pamphlet on people with disabilities at worship, volunteers at the National MS Society's Massachusetts Chapter, and is an outspoken advocate for people with disabilities. Computer access plays a big role in all these activities. "Technology shouldn't frighten anyone," he said recently. "You just have to get started. I'm sorry I didn't start sooner." Resources Information NARIC NARIC National Rehabilitation Information Center NARIC National Academic Recognition Information Centre (UK) (National Rehabilitation Information Center) 8455 Colesville Road, Suite 935 Silver Spring, MD 20910 Tel: 800-346-2742 * Fax: 301-587-1967 This telephone information and referral center is a helpful first stop when you're looking for Looking for In the context of general equities, this describing a buy interest in which a dealer is asked to offer stock, often involving a capital commitment. Antithesis of in touch with. almost any information related to disability. Its library includes government research project reports, resource guides, and directories of disability services. Information provided over the telephone is free, but you'll be charged a small fee for any materials you need copied and sent to you. RESNA (Rehabilitation Engineering and Assistive Technology Society of North America) 1700 N. Moore Street, Suite 1540 Arlington, VA 22209-1903 Tel: 703-524-6686 * Fax: 703-524-6630 * Website: http://wwwresna.org/resna/ reshome.htm RESNA, an association of assistive technology, or AT, professional organizations, can help you locate your state's Tech Act project, and advise you on what kind of help is available in your state. RESNA also has a library of publications related to AT; for a free list, ask for RESNA Press when you call. ATA (1) (AT Attachment) The specification for IDE drives. See IDE. (2) See analog telephone adapter. ATA - Advanced Technology Attachment (Alliance for Technology Access) 2175 East Francisco Blvd., Suite L San Rafael, CA 94901 Tel: 800-455-7970; 415-455-4575 * E-mail: atafta@aol.com ATA is a national network of 41 community-based resource centers that provide technology information to people with disabilities. If you have a technology-related question -- whether it's buying software or modifying a keyboard -- ATA can refer you to the center in your area that may be able to help. ATA publishes "Computer Resources for People with Disabilities," a guide that outlines options and lists manufacturers and funding sources. A just-updated edition is available in bookstores or can be ordered from ATA directly for $14.95 paperback, $19.95 spiral-bound. Pay by check, money order, Mastercard, or Visa. ABLEDATA Database and ABLE INFORM Bulletin Board 8455 Colesville Road, Suite 935 Silver Spring, MD 20910 Tel: 800-227-0216 o Fax: 301-587-1967 * Internet: via telnet or BBS (1) (Bulletin Board System) A computer system used as an information source and forum for a particular interest group. They were widely used in the U.S. : fedworld.gov, then option G, then option 1, then option 115. If you're shopping around for a specific assistive device, contact ABLEDATA. This national database lists information for more than 22,000 products for people with disabilities, from low-tech to high-tech. Listings are posted on an electronic bulletin board that is updated daily. You can call and have an information specialist search the database for you at no cost. Having a search printout sent to you, however, incurs a nominal charge. You can also access the listings directly via modem, or order the entire database on the CD-ROM CD-ROM: see compact disc. CD-ROM in full compact disc read-only memory Type of computer storage medium that is read optically (e.g., by a laser). called CO-NET by calling 608-262-6966. ABLEDATA also publishes Fact Sheets and Consumer Guides that address specific areas of technology, which are available for a fee. United Cerebral Palsy United Cerebral Palsy (UCP), sometimes known as United Cerebral Palsy Associations, is a network of affiliated groups in the United States which works to "advance the independence, productivity and full citizenship of people with disabilities" (from UCP's mission statement), Association Assistive Technology Funding and Systems Change Project 1660 L Street NW Washington, DC 20036 Tel: 800-827-0093 * Website: http:// www.assisttech.com/atfsc.html You don't have to have cerebral palsy cerebral palsy (sərē`brəl pôl`zē), disability caused by brain damage before or during birth or in the first years, resulting in a loss of voluntary muscular control and coordination. to benefit from this resource on funding for assistive technology. Information specialists can advise you about funding sources and your potential eligibility, and refer you to resources in your area. Visit the website for news about funding, legislation related to disability, and more. The Lighthouse Inc. 111 East 59th Street, 11th Floor New York New York, state, United States New York, Middle Atlantic state of the United States. It is bordered by Vermont, Massachusetts, Connecticut, and the Atlantic Ocean (E), New Jersey and Pennsylvania (S), Lakes Erie and Ontario and the Canadian province of , NY 10022 Attn: Jennifer Jenkins Tel: 800-334-5497 The Lighthouse Inc. publishes "An Introduction to Computer Technology", a booklet describing some of the assistive devices available to people with impaired vision, with a listing of manufacturers. Large print, 18 pages, free. The information specialists can also make referrals to computer training available through local and state agencies. Publications Computer Access for Persons with Spinal Cord Injury Spinal Cord Injury Definition Spinal cord injury is damage to the spinal cord that causes loss of sensation and motor control. Description Approximately 10,000 new spinal cord injuries (SCIs) occur each year in the United States. : High Tech and Low Tech Assistive Devices, Techniques and Resources for Independence by Stephanie O'Leary Special Needs Project Worldwide Disability Information Resources 3463 State Street, Suite 282 Santa Barbara, CA 93105 Tel: 800-333-6867 for orders only * Fax: 805-683-2341 * E-mail: snpdbooks aol.com Though aimed at people with spinal cord injuries, this 180-page spiral-bound book is full of helpful information for anyone with limited mobility. It includes basic computer terminology, product descriptions, funding suggestions, success stories, and lists of support programs and vendors. Updated in 1996. $17.95 + 4.00 (or 10% of order total) shipping and handling. (CA residents add sales tax sales tax, levy on the sale of goods or services, generally calculated as a percentage of the selling price, and sometimes called a purchase tax. It is usually collected in the form of an extra charge by the retailer, who remits the tax to the government. .) Pay by check, money order, Mastercard, or Visa. Computer Resources for the Disabled Twin Peaks Press P.O. Box 129 Vancouver, WA 98666-0129 Tel: 800-637-2256 or in Wash. 360-694-2462 * Fax: 360-696-3210; attn: Diane * E-mail: 73743.2634@ compuserve.com * Website: www. netm.com/mall/infoprod/twinpeak/ helen.htm This booklet lists sources for buying computers or software at a discount, training services, assistive technology-oriented newsletters, Internet and website addresses and more. $19.95 + $3.00 shipping. Pay by check, money order, Mastercard, or Visa. Extend Their Reach Consumer Electronics Manufacturers Association (CEMA CEMA Conveyor Equipment Manufacturers Association CEMA Chef d'Etat-Major des Armees CEMA Consumer Electronics Manufacturers Association CEMA Canadian Egg Marketing Agency CEMA Council for the Encouragement of Music and the Arts ) 2500 Wilson Boulevard Arlington, VA 22201 Attn: Amy Davis Tel: 703-907-7614 * E-mail: adavis@ eia.org A helpful listing of companies that produce special computer-related products and services for people with disabilities, updated in March 1996. First copy is free; subsequent copies are 90 cents each. Pay by check, money order, Mastercard, Visa, or American Express. Manufacturers Note: Operating systems for all IBM (International Business Machines Corporation, Armonk, NY, www.ibm.com) The world's largest computer company. IBM's product lines include the S/390 mainframes (zSeries), AS/400 midrange business systems (iSeries), RS/6000 workstations and servers (pSeries), Intel-based servers (xSeries) and Macintosh computers, as well as Microsoft's Windows 95 and Windows NT software, incorporate some features designed to improve access for people with disabilities. Apple Computer, Inc. Worldwide Disability Solutions Group 1 Infinite Loop, M/S M/S Meter(s) per Second M/S Milestone M/S Modeling and Simulation M/S Master/Slave M/S Messieurs (plural of Mister) M/S Minesweeping M/S miles per second M/S Miniature Sheet 38-DS Cupertino, CA 95014 Tel: 800-600-7808; TTY- 800-755-0601 If you're looking to modify your Macintosh, or need Mac-compatible software to accommodate a disability, Apple can supply a database of manufacturers of adapted equipment and software. For an overview, request a Mac Access Passport packet. IBM Independence Series Information Center Building #904-Internal ZIP 9448 11400 Burnet burnet, hardy perennial herb of the family Rosaceae (rose) found in temperate regions, usually with white or greenish flowers. The European species are sometimes cultivated for the leaves, which are used in salads, for flavoring, and formerly as a poultice to stop Road Austin, TX 78758 Tel: 800-426-4832; TDD (Time Division Duplexing) A transmission method that uses only one channel for transmitting and receiving, separating them by different time slots. No guard band is used. Contrast with FDD. See also TDD/TTY. TDD - Telecommunications Device for the Deaf : 800-426-4833 The IBM Independence Series Information Center offers a wide range of IBM-compatible products and software for people with disabilities, including a screen magnifier, speech therapy software, and a screen reader that reads written text aloud, to name a few. IBM will also refer individuals to other companies to meet special needs. New Haven Computers 201 West Stassney Lane, Suite 426 Austin, TX 78745 Tel: 512-443-8463 * Fax: 512-440-0602 This computer hardware manufacturer designs standard and custom PCs for people with disabilities at a reduced cost. |
|
||||||||||||||||||

Printer friendly
Cite/link
Email
Feedback
Reader Opinion