Collaborative research and reproductive health outcomes among African American women.Abstract: The cause of disparities in the reproductive outcomes among African American African American Multiculture A person having origins in any of the black racial groups of Africa. See Race. women continues to elude e·lude tr.v. e·lud·ed, e·lud·ing, e·ludes 1. To evade or escape from, as by daring, cleverness, or skill: The suspect continues to elude the police. 2. health researchers and professionals. While stress has been identified as a health risk factor, researchers have called for a reexamination re·ex·am·ine also re-ex·am·ine tr.v. re·ex·am·ined, re·ex·am·in·ing, re·ex·am·ines 1. To examine again or anew; review. 2. Law To question (a witness) again after cross-examination. of the measures and methods employed in investigations aimed at uncovering the link between stress and reproductive health Within the framework of WHO's definition of health[1] as a state of complete physical, mental and social well-being, and not merely the absence of disease or infirmity, reproductive health, or sexual health/hygiene outcomes. This paper describes an iterative it·er·a·tive adj. 1. Characterized by or involving repetition, recurrence, reiteration, or repetitiousness. 2. Grammar Frequentative. Noun 1. methodology employed in community-based research conducted in Atlanta, Georgia Guided by a focus on the multiple and intersecting in·ter·sect v. in·ter·sect·ed, in·ter·sect·ing, in·ter·sects v.tr. 1. To cut across or through: The path intersects the park. 2. identities assumed by African American women (race, class, and gender), the research sought to locate the stressors confronted by African American women that are embedded Inserted into. See embedded system. in their lived experiences. Another aim was to develop a race and gender-specific stress measure drawn from the lived experiences of African American women, These objectives were accomplished through procedures that explored the conceptualization con·cep·tu·al·ize v. con·cep·tu·al·ized, con·cep·tu·al·iz·ing, con·cep·tu·al·iz·es v.tr. To form a concept or concepts of, and especially to interpret in a conceptual way: of community as experience by African American women, the interplay in·ter·play n. Reciprocal action and reaction; interaction. intr.v. in·ter·played, in·ter·play·ing, in·ter·plays To act or react on each other; interact. of qualitative and quantitative methods, and the translation of reciprocity reciprocity In international trade, the granting of mutual concessions on tariffs, quotas, or other commercial restrictions. Reciprocity implies that these concessions are neither intended nor expected to be generalized to other countries with which the contracting parties , accountability, and sensitivity to research where the participated were seen as collaborators informing every phase of the research process. ********** Bombarded with so many things, if it ain't the men, it's the children, it's society, it's something. So I'm not saying that, you know, we don't consciously take care of us, it's a thing that by the time you finish caring for everybody and deal with everything that happening on the outside of your body ... the inside is probably the last thing that you pay attention [to]. Jennifer, a college educated woman This comment by Jennifer is indicative of the causal link between stress and poor health outcomes acknowledged by African American women. While the association between stress and health outcomes, in general, is well established, investigators have argued for a closer examination of the link between stress and reproductive health outcomes among African American women (Burchfield,1979; Dressler, 1991; Kreiger, 1996; Rowley, 1993). In light of finding revealing that for African American women education does not mediate MEDIATE, POWERS. Those incident to primary powers, given by a principal to his agent. For example, the general authority given to collect, receive and pay debts due by or to the principal is a primary power. reproductive health outcomes as expected, the search for answers has led to a reexamination of methodologies and measures employed in stress research (Kreiger, 1995; McClean,1993). In particular, it has been argued that while generalized stress measures provide certain information linking stress to poor health outcomes, they nonetheless are inadequate for assessing the specific stressors confronted by African American women. The acknowledgement of the necessity to "fill in the gaps" on race and gender specific stressors coupled with the promotion of community-based research has informed the development of iterative, triangulated approaches for discerning dis·cern·ing adj. Exhibiting keen insight and good judgment; perceptive. dis·cern ing·ly adv. the link between stress and the disparate health outcomes
among African American women.In this paper, we will describe the processes deployed in a series of studies on stress and reproductive health outcomes that were conducted in metropolitan Atlanta. The intent is to simultaneously illustrate the procedures and the theoretical and conceptual frameworks For the concept in aesthetics and art criticism, see . A conceptual framework is used in research to outline possible courses of action or to present a preferred approach to a system analysis project. that shaped the research process. Because of the focus on the identities of African American women linked to race, gender, and class the aim is to demonstrate the translation of a focus on multiple and intersecting identities to the procedures for conducting community-based research. Correspondingly the goal is to examine the notion of collaboration between researcher and study participants within the parameters of a research endeavor. The aim of our research on stress and reproductive health outcomes was two-fold: 1) to locate the stressors and supports in the lives of African American women, particularly college-educated African American women through qualitative methodologies, i.e. focus groups and interviews and 2) to have what the women said about their lives and the stress they encountered in the those lives inform the development of a race and gender specific stress measure (quantitative). Those objectives were accomplished through a community-based approach that employed iterative procedures combining qualitative and quantitative methods. Here we demonstrate the application of a community-based approach to a research project that has evolved to development interventions for stress reduction (Jackson, 2002). COMMUNITY-BASED RESEARCH Community-based research has been widely endorsed as an effective approach for uncovering the complexity of factors that imperil im·per·il tr.v. im·per·iled or im·per·illed, im·per·il·ing or im·per·il·ling, im·per·ils To put into peril. See Synonyms at endanger. health outcomes. (Braithwaite, 1992) Proponents assert that the research process is greatly enhanced by the insights and expertise of community participants. They bring to the process an authentic view of the perceptions and behaviors surrounding health and well-being. Correspondingly, a community based approaches can expose barriers to health and well-being while promoting critical analysis and activism aimed at health promotion and intervention. Unfortunately, the concept of a community-based approach has been applied to research endeavors where participants are merely present without any real involvement in the research process. More ideally, community-based research can encompass a comprehensive collaboration where researchers and community participants form authentic partnerships characterized by the community's participation and monitoring of all phases of the research (Mullings, 2001). Best practices in community based research are characterized by community empowerment as the foundation for developing sustainable health promotion and intervention. Implicit in Adj. 1. implicit in - in the nature of something though not readily apparent; "shortcomings inherent in our approach"; "an underlying meaning" underlying, inherent this goal is adherence to the tenets of community based research: reciprocity sensitivity, and accountability. Thus community involvement in the process and access to its findings is requisite of for community partnering efforts. While there are no limitations on the methodologies employed under the "umbrella" of a community-based approach for conducting health research, conceptual models and associated methodologies exist that lend themselves to collaboration between researchers and community participants. Grounded theory as a conceptual model and methodology offers an opportunity for the voices of the community to be heard and provides a framework for organizing those voices into theory; theory that can guide future explorations. The objective of this approach is to create theory that is representative of the direct experiences under observation. Thus the theory is juxtaposed jux·ta·pose tr.v. jux·ta·posed, jux·ta·pos·ing, jux·ta·pos·es To place side by side, especially for comparison or contrast. to the methodology and the interpretation of the data; the emergent emergent /emer·gent/ (e-mer´jent) 1. coming out from a cavity or other part. 2. pertaining to an emergency. emergent 1. coming out from a cavity or other part. 2. coming on suddenly. theory is evaluated in terms of its authentic representation of the observed experiences (Richie. 1997; Glazer, 1992). Proponents of grounded theory assert that investigators should restrict their immersion immersion /im·mer·sion/ (i-mer´zhun) 1. the plunging of a body into a liquid. 2. the use of the microscope with the object and object glass both covered with a liquid. into the literature associated with the topic. Rather, the emphasis should be placed on the methodology as the source of information. It is improbable that investigators will enter a research endeavor, "naive" about the topic; yet the focus in grounded theory on capturing the experience is complimentary to a community-based research approach where the voices and experiences of the participants frame the research agenda. Qualitative research Qualitative research Traditional analysis of firm-specific prospects for future earnings. It may be based on data collected by the analysts, there is no formal quantitative framework used to generate projections. methods provide the best approach for collecting the lived experiences of community participants in their own words. Focus groups, interviews, participant observation participant observation, n a method of qualitative research in which the researcher understands the contex-tual meanings of an event or events through participating and observing as a subject in the research. and other qualitative methods permit a systematic way of observing study participants in their communities, workplaces, or other settings. Through qualitative methods we gain perspective on the behaviors associated with health consequences and the multiple contexts in which they occur (Scrimshaw scrimshaw Decoration of bone or ivory objects, such as whale's teeth and walrus tusks, with fanciful designs, traditionally carved by Anglo-American and Native American whale fishermen with a jackknife or sail needle and emphasized with black pigments (e.g., lampblack). , 1992; Glesne, 1992; Peskin, 1993). Qualitative approaches insure rich, contextualized data however the methods are limited in the ability to produce findings that can be generalized across populations. Hypothesis formulation and theory development may result from qualitative data but the determination of the wider application of theoretical and conceptual models require methods that are reliable (Weller, 1988). The goal of reliability and capacity to generalize generalize /gen·er·al·ize/ (-iz) 1. to spread throughout the body, as when local disease becomes systemic. 2. to form a general principle; to reason inductively. findings across population unfortunately typically come with the loss of contextual information for interpretation of the data. To resolve the dichotomy di·chot·o·my n. pl. di·chot·o·mies 1. Division into two usually contradictory parts or opinions: "the dichotomy of the one and the many" Louis Auchincloss. between qualitative and quantitative data researchers have advocated the combination of both approaches. Advocates argue that the integration of qualitative and quantitative methods enhances the researcher's ability to understand risk factors by cross validating the qualitative and qualitative findings (Carey, 1995). The appropriation of qualitative methods or the integration of qualitative and quantitative methods under the rubric RUBRIC, civil law. The title or inscription of any law or statute, because the copyists formerly drew and painted the title of laws and statutes rubro colore, in red letters. Ayl. Pand. B. 1, t. 8; Diet. do Juris. h.t. of a community-based approach, however, does not in and of itself insure a process that will uncover the significant factors contributing to disparate health outcomes. In the case of research focusing on the health of African American women, what is needed is the deliberate articulation articulation In phonetics, the shaping of the vocal tract (larynx, pharynx, and oral and nasal cavities) by positioning mobile organs (such as the tongue) relative to other parts that may be rigid (such as the hard palate) and thus modifying the airstream to produce speech of the identities that African American women assume and those imposed upon them to gain a view of their lives and how their lived experiences impact health outcome. Investigators acknowledge that experiences of oppression can have adverse consequences for health outcomes; it has been demonstrated that racism is a health risk factor (Harrell, 1998; Kreiger, 1993; Utsey, 1998; Williams, 1997). However, more information is needed to understand the pathways by which racism contributes to poor health. In the case of African American women examinations of the triple forms of oppression they encounter are warranted. That is a focus on oppression associated with race, gender, and class permits detailed analysis of the barriers to health confronted by African American women. Correspondingly, we assert that examinations of race, class, and gender, must be inclusive of inclusive of prep. Taking into consideration or account; including. how those identities are embraced by African American women. In other words Adv. 1. in other words - otherwise stated; "in other words, we are broke" put differently , research endeavors involving African American women intended to explore the impact of racism and other forms of oppression should consider the polarized A one-way direction of a signal or the molecules within a material pointing in one direction. relationships that accompany notions of race (and gender). Examinations of oppression therefore must include way to explore the impact of the identities of African American women that are simultaneously embraced by and imposed upon African American women (Jackson, 2001). To locate the connection between the identities of African American women and the stress in their lives demands methodologies informed by the voices of African American women. Our community-based research employed a practice and a tradition of African American women naming their experiences and making sense of their lives. Several scholars have analyzed the long history of African American women describing their lives and interpreting their history (Giddings, 1984; Carby, 1989; Hills-Collins, 2000, Hill-Collins, 1998, King, 1988, Higgobothan, 1994). African American women have a long reputation of articulating their experiences associated with health. In this statement by an African American women, we gain a glimpse of complexities surrounding pregnancy and birth: To me having a baby inside me is the only time that I'm really alive .I know that I can make something, do something no matter what my skin is and what names people call me. When the baby gets born I see him and he's full of life, or she is and I think to myself it doesn't make nay difference what happens later at least now we have got a chance, or the baby does. (Ladner, 1993, p.314). The voice of this woman points to the multiple and devalued de·val·ue also de·val·u·ate v. de·val·ued also de·valu·at·ed, de·val·u·ing also de·val·u·at·ing, de·val·ues also de·val·u·ates v.tr. 1. To lessen or cancel the value of. statues occupied by African American women. Their discussions and descriptions offer analysis of the simultaneous experiencing of the race, class, sexuality, and gender. Understanding the cornucopia cornucopia (kôr'ny kō`pēə), in Greek mythology, magnificent horn that filled itself with whatever meat or drink its owner requested. of risk factors and
health mediators for African American women is best accomplished through
processes that take into account the multiplicative mul·ti·pli·ca·tive adj. 1. Tending to multiply or capable of multiplying or increasing. 2. Having to do with multiplication. mul interaction of the of the identities assumed by African American women. UNDERSTANDING STRESS: THE RESEARCH PROCESS The research on stress and reproductive health was guided by the desire to answer several questions: * If a college-education and presumed access to prenatal care prenatal care, n the health care provided the mother and fetus before childbirth. is not protective for reproductive health outcomes among African American women, why not? * If stress is a risk factor for adverse birth outcomes among African American women, is it possible or desirable to measure the context and content of the particular stressors that impact their health. * How is stress operationalized within the context of the lived experiences of African American women representative of diverse educational and income categories? * How do the stressors that precede pregnancy impact the stressors that accompany pregnancy, birth, and motherhood for African American women? * How should a community-based research project be implemented to promote the collaboration of African American women from diverse educational and income categories? * How can the research process and the subsequent findings inform the development of stress interventions? Because we acknowledged the authoritative voices of African American women for understanding their lives and those conditions that imperil health and well-being, we sought their collaboration in our quest for Verb 1. quest for - go in search of or hunt for; "pursue a hobby" quest after, go after, pursue look for, search, seek - try to locate or discover, or try to establish the existence of; "The police are searching for clues"; "They are searching for the answers. Research participants were collaborators rather than subjects and as such their voices informed the research process. In total 545 African American women, from all walks of life but mainly college-educated participated in a series of studies to uncover the stressors confronted by African American women. (Table I, II). In actuality ac·tu·al·i·ty n. pl. ac·tu·al·i·ties 1. The state or fact of being actual; reality. See Synonyms at existence. 2. Actual conditions or facts. Often used in the plural. the number of collaborators exceeds the women who participating in any phase of the research; collaborators also included those individuals who assisted in identifying individuals and groups of women who completed the focus groups, interviews, and the administration of the instruments. During the first phase, 444 women from all walks of life but mainly college-educated participated in interviews, focus group and the pilot testing of a race and gender-specific stress measure. Subsequent to the development of the stress measure, 101 pregnant African American women replicated the process. Our quest for answers proceeded through an iterative process that included focus groups, semi-structured interviews A semi-structured interview is a method of research used in the social sciences. While a structured interview has a formalized, limited set questions, a semi-structured interview is flexible, allowing new questions to be brought up during the interview as a result of what the , a jury exercise, pilot testing of the stress measure, and the administration of a battery of validity measures (NHIS-depression, Spielburger state and trait trait (trat) 1. any genetically determined characteristic; also, the condition prevailing in the heterozygous state of a recessive disorder, as the sickle cell trait. 2. a distinctive behavior pattern. anxiety, Spielburger state and trait anger, John Henryism John Henryism, based on the African American folk hero John Henry, is recognized as "a style of strong coping behaviors used ... to deal with psychosocial and environmental stressors such as career issues, health problems and even racism". [1] Scale of Active. As Figure 1 indicates, each phase of the research process was informed by the women's voices. Beginning and ending with focus groups, the procedure was constructed so that we "checked in" with the women throughout the data collection phase to confirm their experiences of stress and support. The administration of the quantitative measures was preceded and followed by focus groups and/or interviews. After the completion of the initial focus groups and interviews, content analysis was performed to develop statements capturing the women's voices. Research collaborators were subsequently asked to participate in a jury exercise where they critiqued the statements examining their content and format. As a consequence of their assessment, exploratory factor analysis, and further cross validation using the qualitative data, we constructed a 71 item pilot stress measure. The pilot measure and the validity scales were administered twice over a thirty day period. After the completion of the second administration of the stress measure and validity instruments, groups of women participated in discussions where they were again asked to critique the pilot measure and elaborate on their response to individual items. To confirm our impressions about the utility of the instrument and our thoughts about the contexts for responses to individual stress items, interviews were conducted with a sub-sample of the women who pilot tested the stress measure (n= 42). Specifically the women were asked to explain their response to items from the pilot stress measure. Our elaborate and time-consuming research approach was deployed to "ground" the research and most explicitly the stress measure in the lived experiences of African American women. This integration of qualitative and quantitative methods allowed the cross validation of what the women said about stress and our measure of those experiences. The goal was to maintain a corresponding relationship between what the women said and the stress scale items. In other words we were committed to sustaining the integrity of the authority of the women's voices in the creation of a race and gender-specific stress measure (Figure 1). Because of our adherence to the tenet TENET. Which he holds. There are two ways of stating the tenure in an action of waste. The averment is either in the tenet and the tenuit; it has a reference to the time of the waste done, and not to the time of bringing the action. 2. of reciprocity and accountability, the research did not end once data collection was completed; rather once the data was collected we began a process of disseminating dis·sem·i·nate v. dis·sem·i·nat·ed, dis·sem·i·nat·ing, dis·sem·i·nates v.tr. 1. To scatter widely, as in sowing seed. 2. the research finding (Figure 1). This phase of the research was accomplished thought the publication of newsletters and the convening con·vene v. con·vened, con·ven·ing, con·venes v.intr. To come together usually for an official or public purpose; assemble formally. v.tr. 1. of a day-long gathering where the women were exposed to the findings from the research and intervention strategies for stress reduction. BEGINNING WITH THE VOICES OF THE WOMEN To pre-assess our methodology, we conducted an initial focus group where participants were asked a series of questions to elicit e·lic·it tr.v. e·lic·it·ed, e·lic·it·ing, e·lic·its 1. a. To bring or draw out (something latent); educe. b. To arrive at (a truth, for example) by logic. 2. their experiences of stress embedded in their lives. In order for us to observe the process, we asked one of the women recruited for the research to facilitate the focus group. A corporate manager experienced in group facilitation Facilitation The process of providing a market for a security. Normally, this refers to bids and offers made for large blocks of securities, such as those traded by institutions. , she introduced the discussion: African American women are being asked to participate in a study on our health issues. Previously we were engaged at the point of the questionnaire. Because these questionnaires were not designed by us sometimes issues were left out that are applicable to the problems that we see in our lives. So tonight we are trying to change that. This focus group is designed so that we can get the right answers, so that our daughters and granddaughters don't have to suffer the same ills that we are seeing. As revealed in her introduction the research was conceived as a process where the research and study participants would interact as collaborators. In contrast to the designation as "subject" we were in partnership with the women. At the essence of our research was the perspective that African American women are authorities on their lives and therefore possess significant insights on those conditions that imperil their health. The "conversation" during the pilot session was initiated by the women being exposed to health disparity dis·par·i·ty n. pl. dis·par·i·ties 1. The condition or fact of being unequal, as in age, rank, or degree; difference: "narrow the economic disparities among regions and industries" data, particularly that which focused on African American women. The presentation of those data became the stimulus for research collaborators to share their own experiences as the avenue for offering explanation for the poor health seen among African American women. As expected the women provided the usual explanations: diet, lack of exercise, family history, and access and utilization of health care services. But of all of the factors they identified, the burdens of having so many expectations and responsibilities imposed upon them as women and African Americans--many of whom were established middle class or upwardly mobile--resonated for the women as the explanation for disparate health outcomes. They specifically identified stress as a significant contributor to their poor heath and the health of relatives, friends, and colleagues. Their "naming" stress and theorizing about its link to preterm preterm /pre·term/ (-term´) before completion of the full term; said of pregnancy or of an infant. pre·term adj. delivery and low birth weight and other health concerns among African American women was the foundation of our search for answers. RECRUITMENT: MORE THAN A TELEPHONE CALL From our pilot focus group we preceded to recruit women for subsequent focus groups, interviews and the administration of the pilot stress measure and the validity scales. To operationalize stress within the context of the lived experiences of the women, we identified multiple sites for the recruitment of research collaborators. With the exception of the last phase of the research, women were recruited from non-clinical sites. During the last phase the women who volunteered were recruited from three Ob-Gyn offices located in metropolitan Atlanta. Understanding the multiple and taxing demands in the lives of African American women informed our process for recruiting collaborators. We sought opportunities to enter the day-to-day involvements of the women which led in an examination of the configurations of "community" among African American women. The term community has been appropriated to symbolize residential enclaves where members of a racial or ethnic group and the poor reside. This limited perception of community obstructs the realities of how and where people of color Noun 1. people of color - a race with skin pigmentation different from the white race (especially Blacks) people of colour, colour, color race - people who are believed to belong to the same genetic stock; "some biologists doubt that there are important live. Our understanding of the fluidity of community led us to look beyond the boundaries of location, education, income and employment when attempting to identify the "places" of association embraced by groups of individuals. Thus community in these studies was inclusive of locale (programming) locale - A geopolitical place or area, especially in the context of configuring an operating system or application program with its character sets, date and time formats, currency formats etc. Locales are significant for internationalisation and localisation. and the interactions maintained among the women as they participated in clubs, churches and even as associates in the workplace. Adherence to an approach extending beyond locale insured stability of the populations of women in the study. Because of the transient characteristics of the women (relocation by women across SES categories), we encountered challenges maintaining contact with them throughout the study. Our chances were improved if the communities that we entered emerged from associations. Furthermore, we have hypothesized that "community" as a consequence of association offers advances for sustaining effective interventions. In our effort to maximize the data collection process, we explored opportunities where the women would be more apt to share the experiences of their lives. Since we wanted to know about the lived experiences of stress and support for college-educated women, we predicted that contacts with groups of women during their college reunion activities would be opportune op·por·tune adj. 1. Suited or right for a particular purpose: an opportune place to make camp. 2. Occurring at a fitting or advantageous time: an opportune arrival. time to engage them in dialogue. Our hunch hunch n. 1. An intuitive feeling or a premonition: had a hunch that he would lose. 2. A hump. 3. A lump or chunk: "She . . . was correct; the focus groups during reunion activities served a means to organize the sharing that was already taking place around their experiences of stress and support. The sampling approach was both purposive pur·po·sive adj. 1. Having or serving a purpose. 2. Purposeful: purposive behavior. pur and opportunistic opportunistic /op·por·tu·nis·tic/ (op?er-tldbomacn-is´tik) 1. denoting a microorganism which does not ordinarily cause disease but becomes pathogenic under certain circumstances. 2. . Contacts with alumnae groups from HBCUs offered an avenue for us to locate study collaborators. Beginning the process with graduates of Spelman College Spelman College: see Atlanta Univ. Center. Spelman College Private, historically black, women's liberal arts college in Atlanta, Ga. Its history is traced to 1881, when two Boston women began teaching 11 black women, mostly ex-slaves, in an Atlanta , a historically black college for women, the recruitment of other collaborators was done through a "snowball snowball: see honeysuckle. " process; the women referred us to other individuals and organizations. Recruitment of the collaborators for the pregnancy phase of the research was achieved through response to posters placed in medical offices and referrals by the physicians and office staff. A snowball sampling For other uses, see Snowball (disambiguation). In social science research, snowball sampling is a technique for developing a research sample where existing study subjects recruit future subjects from among their acquaintances. process was employed in the pregnancy phase where study collaborators identified other prospective participants. WHERE WERE THE WOMEN? Our intent was not only to hear what the women said about their lives but to also have some limited observations of what they were experiencing. The research was not ethnographic eth·nog·ra·phy n. The branch of anthropology that deals with the scientific description of specific human cultures. eth·nog in the traditional sense, but it was nonetheless conducted in ways that validated our perceptions of the context for understanding stress and support. There were instances where we had multiple and sequential contacts with a sub-sample of the women who were involved in the post-measures interviews and had been participants in the administration of the battery of instruments. What allowed us to examine more closely the conditions shaping the experiences of stress for the women was the settings were we collected the data. Data collection, particularly the interviews took place in a variety of settings where the women lived and worked. Typically, the interviews were conducted in the homes of the collaborators. At other times we visited worksites or other non-residential settings. In one instance, a worksite interview required a member of the research team to accompany a florist as she traveled throughout the city purchasing supplies and making deliveries. Interviews were conducted in shopping mails and during times when women participated in volunteer and social activities. It was those approaches for entering the lives of the women that framed our layered view of what stress and supporting the lives of study collaborators. It was also important to be mindful mind·ful adj. Attentive; heedful: always mindful of family responsibilities. See Synonyms at careful. mind of the fact that the women lived in the Atlanta metropolitan area The Atlanta metropolitan area, commonly referred to as metro Atlanta in Georgia, is the ninth-largest metropolitan area in the United States and consists of up to 28 counties in Georgia. , and geographical location provided yet another important context in which the women lived their lives. Atlanta, long considered a "Mecca" for African American professionals, is a city--much like the women themselves--characterized by complicated multiple and intersecting identities. It is a city (and metropolitan area) of both a long-standing elite African American political class, a visible African American middle-class within which financial straggle strag·gle intr.v. strag·gled, strag·gling, strag·gles 1. To stray or fall behind. 2. To proceed or spread out in a scattered or irregular group. n. is often masked, and a visible sector of the population that is poor. Atlanta is also a city with a history of negotiated "peace" between African American and white, primarily male, political and economic elites when the rest of the South was in open warfare during the 1960s and 1970s (Baylor, 1996; Rutheiser, 1966). In fact, this same negotiated peace has allowed for the recent gentrification gentrification, the rehabilitation and settlement of decaying urban areas by middle- and high-income people. Beginning in the 1970s and 80s, higher-income professionals, drawn by low-cost housing and easier access to downtown business areas, renovated deteriorating of key neighborhoods of Atlanta. However, underneath the negotiated calm there are racial hostilities and suspicions that are the unspoken dimensions of the debates, for example, about MARTA's (Atlanta's public transportation system) extension into the suburbs, and the city's past affirmative action affirmative action, in the United States, programs to overcome the effects of past societal discrimination by allocating jobs and resources to members of specific groups, such as minorities and women. policies (Atlanta Journal and Constitution, July 23, 1999). The interesting irony of the racialized discourse (dichotomized into "black" and "white") about Atlanta and its "surrounding cides" is that some of those cities and counties have sizable siz·a·ble also size·a·ble adj. Of considerable size; fairly large. siz a·ble·ness n. African American,
as well as immigrant populations. It is within this very layered and
complex "Atlanta" that the women experienced many of their
stressors.WHAT THE WOMEN SAID: THE CONTENT AND CONTEXT OF THE PROCESS Each phase of the research expanded our perception of what stress meant in the lives of the women. As indicated, conversation during the focus groups was stimulated by the women's exposure to health disparity data. In the focus groups following the pilot session, the women identified personal neglect and stress as risk factors. Janine, a 10-year college reunioner offered as explanation for the health among African American women: The most important thing is that we tend not to take care of ourselves for taking care of others. Lisa, a manager in the group said: You know what I think it is denial.... OK, I'm comfortable because I went to college and I know when I get to hurting I will go. And in the mean time I have too much too do and I don't have time and it does take a lot of time and money. During this same focus group, Kay an attorney contributed: Stress, I fed that the reason is stress. Society is probably the biggest thing Probe: In what way? Even when you are educated, even when you are attorney you are still always fighting the battle of being Black first and the profession second ... It's always the next hurdle that you go over because you are black. That's weight-heavy. At subsequent gatherings other collaborators continued to identify stress linked to racism and other forms of oppression and the context shaping those experiences. During the jury exercise collaborators confirmed or challenged the statements that were gleaned from what the women said during the focus groups and interviews. In response to the statements, "Everyone expects me to be strong for them" and "Everyone depends on me" one of the collaborators indicated: For the most part most of these statements relate to black women ... Well right now I have a friend--she works and her mother does not work. And her mom was in an accident, now she has to take care of her mom. So she goes to work and when she gets home she has to take care of her mother ... you expect to kind of have things that you want to do and what you want to do but now she has to think about someone else as opposed to thinking about herself. And that's great stress. Because a majority of the women administered the pilot stress measure agreed to the statement "everyone expects me to be strong for them" we asked participants selected for the post-measure interviews to explain their response in the statement. Vanessa, in her mid thirties said: Um I think in any group of people you will have strong women. But I think as black women, from birth we are told we have to be strong because there will be a lot of obstacles that we will have to overcome. In another post measure interview, Mary elaborated on the concept of the strong black women by saying: ... just a long history of strong black women who jus dealt with any number of things that would make us look like punks. The things that we whine and complain of, you know, knowing that you come from that you know, type of stock ... it makes everything seen possible. The responses of these women and other collaborators demonstrated that stress is embedded in the multiple and overlapping contexts of women's lives. Their voices confirmed our assertion that the stress encountered by African American women is shaped by race, gender, class, social conditions, culture, history and region. Specifically, we uncovered that stress as the result of racism is exacerbated by the gendered roles that African American women assume as caretakers (Jackson, 2002). Our process allowed us to capture in each progressive stage the dimensions of race specific and gendered stress. Comparable to the construction of the pilot measure, questions posed during the focus groups and the interviews were drawn from the prior sessions with the women. For instance, during the focus groups the women identified their responsibilities as caretakers as a stressful; therefore, during the interviews we asked the women to discuss the positive and negative aspects of their family life involving both immediate and extended kin. The post measure interviews were designed for the women to expound ex·pound v. ex·pound·ed, ex·pound·ing, ex·pounds v.tr. 1. To give a detailed statement of; set forth: expounded the intricacies of the new tax law. 2. on their responses to the scale items. That is, collaborators detailed the events in their lives that informed their responses. The women participating in the focus groups indicated that they saw those experiences as desired opportunities to interact with other African American women mound concerns impacting their lives. In this respect the focus groups became a form of intervention fostering the exchange of resources and experiential ex·pe·ri·en·tial adj. Relating to or derived from experience. ex·pe ri·en information. Our embrace of
reciprocity and accountability as core to community based research led
us to examine the merits of focus groups and group discussions as
avenues for health interventions health intervention Health care An activity undertaken to prevent, improve, or stabilize a medical condition . Without question, support groups and
other group processes are widely employed as approaches for health
interventions and promotion. But our appropriation of a group process
was for data collection and less explicitly for the purpose of
intervention. Despite this distinction, led by the voices of the women
we sought ways to continue the "dialogue" as a form of
reciprocity for their participation in the research. The aim was to
initiate an evidence-based approach for stress intervention as
reciprocity for the women's participation in the research. The goal
of facilitating interactions among the research collaboration resulted
in our convening two day-long conferences where the women gathered in
small "talking circles A talking circle, is a method used by a group to discuss a topic in an egalitarian and non-confrontational manner. The group members sit in a circle and make comment on the topic of the discussion following a small number of rules: CONCLUSION Situated in the lived experiences of African American women, the methodology allowed us to simultaneously confirm and extend our conceptualization of stress. More importantly, as a consequence of the process (including the conferences), it appears the collaborators are forming new associations among themselves aimed at sustaining approaches for stress intervention. That is the methodology has fostered the development of a "community" posed to address their health concerns. The potential longevity of our collaboration with this community represents an evolution from research to an integrated approach for what we hope will be the beginnings of sustained interventions for eliminating health disparities
Health disparities (also called health inequalities in some countries) refer to gaps in the quality of health and health care across racial, ethnic, and socioeconomic groups. among African American women.
Table 1. Selected Sociodemographic Variables for Total Sample (N=444)
Variable N
Age
18-24 13
25-34 154
35-49 192
50-79 77
Missing data 8
Education
College educated 321
No college degree 100
Other degree 1
Missing data 22
Marital status
Married 162
Not married (includes single, separated, divorced, or widowed) 281
Missing data 1
Birth History
No children 173
At least 1 child 264
Missing data 7
Annual household income (in thousands of dollars)
<10 14
10-30 81
31-50 92
51 and higher 130
Missing data 127
Table 2. Selected Sociodemographic Variables for Pregnant Sample
(N=101)
Variable N
Age
18-24 19
25-34 64
49-49 17
Missing data 1
Education
College educated 62
No college degree 38
Missing data 1
Marital status
Married 58
Not married (includes single, separated,
divorced, or widowed) 53
Birth History
No children 50
At least 1 child 42
Missing data 9
Annual household income (in thousands of dollars)
10-30 14
31-50 31
51 and higher 48
Missing 8
Figure 1. From the Voices to Scale Items
Women's Voices Scale Items
"Always there for everyone else Burden item
... you are like a barrel that I taking care of everyone else,
gets water and if it never rains but no one is taking care of me.
you are going to get empty"
"I would work long hard hours Racism Item
because I wanted to make a good Individuals at my work assume that
appearance ... but it didn't make I am incapable of performing the
a difference I was still a black job because I am African American.
person and how dare I have the
right to be there."
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Also, generally, in Criminal Law to instigate, persuade, or move another to commit a crime; in this sense nearly synonymous with abet. racial divide" Atlanta Journal and Constitution, July 23. HEALTH EDUCATION RESPONSIBILITY AND COMPETENCY COMPETENCY, evidence. The legal fitness or ability of a witness to be heard on the trial of a cause. This term is also applied to written or other evidence which may be legally given on such trial, as, depositions, letters, account-books, and the like. 2. ADDRESSED Responsibility IV--Evaluating Effectiveness of Health Education Programs Competency C--Interpret results of program evaluation Program evaluation is a formalized approach to studying and assessing projects, policies and program and determining if they 'work'. Program evaluation is used in government and the private sector and it's taught in numerous universities. . Subcompetency 2--Translate evaluation results into terms easily understood by others. Adress all correspondence to Fleda Mask Jackson, Ph.D., Rollins School of Public Health The Rollins School of Public Health (RSPH) is the public health school of Emory University. Founded in 1990, RSPH has more than 850 students pursuing master's degrees (MPH/MSPH) and over 100 students pursuing doctorate degrees (PhD). , Emory University Emory University (ĕm`ərē), near Atlanta, Ga.; coeducational; United Methodist; chartered as Emory College 1836, opened 1837 at Oxford. It became Emory Univ. in 1915 and in 1919 moved to Atlanta. , 1158 Clifton Road Clifton Road is main street in Clifton neighborhood of Saddar Town in Karachi, Sindh, Pakistan. Its name dates from the British Colonial rule, and its market is posh areas of Karachi. , Atlanta, Georgia 30322, PHONE: 404.727.4775, FAX: 404.727.8744, E-MAIL e-mail: see electronic mail. in full electronic mail Messages and other data exchanged between individuals using computers in a network. : fjack02@sph.emory.edu. |
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