CSL Behring Awards Second Round of LEAD Grants in Support of Patient Group Advocacy Efforts.Five Grants Awarded to Patient Organizations for Grassroots Advocacy KING OF PRUSSIA King of Prussia, industrialized suburban area (1990 pop. 18,406), Montgomery co., SE Pa. It has glass and steel fabricating, food processing, printing and publishing, and varied manufacturing (textiles, liquified petroleum gas, water-treatment and electrical , Pa. -- CSL Behring, a global leader in the plasma-protein biotherapies industry, announces the awarding of five grants totaling more than $65,000 to patient advocacy organizations in the United States. These five grants represent the second round of semi-annual awards in the company's Local Empowerment for Advocacy Development (LEAD) program. To date, the company has awarded more than $150,000 in grants through the LEAD program. LEAD grants support grassroots advocacy efforts by organizations committed to helping people who use plasma-derived and recombinant therapies to manage their health conditions. Grants were awarded to the following organizations in the second round: * Neuropathy Action Foundation * Hemophilia Federation of America * Nebraska Chapter of the National Hemophilia Foundation (NHF NHF Norges Handikapforbund NHF National Headache Foundation NHF National Hemophilia Foundation NHF National Housing Federation (UK) NHF Nordisk Herpetologisk Forening NHF National Hairdressers' Federation (UK) ) * United Virginia Chapter of NHF * Delaware Valley Chapter of NHF The grant awarded to the Neuropathy Action Foundation (NAF NAF National Arbitration Forum NAF National Academy Foundation NAF National Abortion Federation NaF sodium fluoride NAF Naval Air Facility NAF National Ataxia Foundation NAF New America Foundation (think tank) ) will be used for the creation and distribution of a health insurance toolkit within the state of California. This toolkit will help patients with neuropathies and other rare diseases navigate the California state insurance system. While NAF is focusing on insurance issues, the Hemophilia Federation of America is promoting advocacy. NAF has developed a Web-based advocacy toolkit called CapWiz that allows people with hemophilia to learn about legislative issues and contact their elected representatives. "The Hemophilia Federation is delighted to be the recipient of a CSL Behring LEAD grant, which will be used to fund our online advocacy system, CapWiz," said Kimberly Haugstad, Executive Director, Hemophilia Federation of America. "This grant allows us to alert our community, families and friends of federal and state legislation and provides an easy-to-use Web-based tool designed to unify our voice and connect us with our elected officials. With most states facing budget deficits and many in Congress discussing health care system reform, timely advocacy outreach efforts are absolutely critical to our mission. We are very appreciative of CSL (Computerese as a Second Language) Said of people who love to speak high-tech words even though they often use them erroneously. See TLA. 1. CSL - Computer Structure Language. A computer hardware description language, written in BCPL. Behring's interest in supporting these efforts." "As leaders in advocacy, CSL Behring continues to collaborate with patient advocacy organizations on specific initiatives to improve access to care for life-saving plasma derived and recombinant therapies," said Dennis Jackman, Senior Vice President, Public Affairs, CSL Behring. "We are committed to helping organizations expand their advocacy initiatives on both state and federal levels." In addition to toolkits, grants were awarded to three NHF chapters for advocacy initiatives. The Nebraska Chapter will use its funding to launch Nebraska Days, day-long programs designed to teach patients, especially those residing in rural areas, how to engage in the legislative process. Similar to the Nebraska Chapter, the United Virginia Chapter is also establishing an advocacy-based program, which includes developing Webinars on advocacy for their Web site and hosting a state lobbying day in Richmond. Finally, the Delaware Valley Chapter will use their funding to advance and promote the Hemophilia Standards of Care Standards of care are medical or psychological treatment guidelines, and can be general or specific. They specify appropriate treatment protocols based on scientific evidence, and collaboration between medical and/or psychological professionals involved in the treatment of a given Act within the Pennsylvania legislature. LEAD grants are awarded biannually bi·an·nu·al adj. 1. Happening twice each year; semiannual. 2. Occurring every two years; biennial. bi·an . The third round of grants will occur in April 2009. Applications, specific criteria for applying and more information about the LEAD program are available on the CSL Behring Web site at www.cslbehring.com/leadgrants. About CSL Behring CSL Behring is a leader in the plasma protein plasma protein n. Any of the various dissolved proteins of blood plasma, including antibodies and blood-clotting proteins, that act by holding fluid in blood vessels by osmosis. therapeutics industry. Committed to saving lives and improving the quality of life for people with rare and serious diseases, the company manufacturers and markets a range of plasma-derived and recombinant therapies worldwide. CSL Behring therapies are indicated for the treatment of coagulation disorders Coagulation Disorders Definition Coagulation disorders deal with disruption of the body's ability to control blood clotting. The most commonly known coagulation disorder is hemophilia, a condition in which patients bleed for long periods of time before including hemophilia and von Willebrand disease Von Willebrand Disease Definition Von Willebrand disease is caused by a deficiency or an abnormality in a protein called von Willebrand factor and is characterized by prolonged bleeding. , primary immune deficiencies and inherited respiratory disease. The company's products are also used in cardiac surgery, organ transplantation The transfer of organs such as the kidneys, heart, or liver from one body to another. The transplantation of human organs has become a common medical procedure. Typical organs transplanted are the kidneys, heart, liver, pancreas, cornea, skin, bones, and lungs. , burn treatment and to prevent hemolytic he·mo·lyt·ic adj. Destructive to red blood cells; hematolytic. Hemolytic Referring to the destruction of the cell membranes of red blood cells, resulting in the release of hemoglobin from the damaged cell. diseases in newborns. CSL Behring operates one of the world's largest plasma collection networks, ZLB ZLB Zero Length Body ZLB Zero Length Bit Plasma. CSL Behring is a subsidiary of CSL Limited, a biopharmaceutical company headquartered in Melbourne, Australia. For more information, visit www.cslbehring.com. |
|
||||||||||||||
Printer friendly
Cite/link
Email
Feedback
Reader Opinion