Brittle bones, stout hearts and minds; adults with osteogenesis imperfecta.

9780763760052

Brittle bones, stout hearts and minds; adults with osteogenesis imperfecta.

Ablon, Joan.

Jones & Bartlett

2010

256 pages

$39.95

Paperback

RC931

For individuals with the disease, their families, healthcare providers, and general readers, Ablon (medical anthropology, U. of California, San Francisco) tells the stories of 55 adults with osteogenesis imperfecta living in the US and their experiences in health care, their early life, coping patterns, employment, dating, sexual relationships, marriage, and how they deal with stigma, stereotypes, and identity issues. She presents much of the information through excerpts from extended interviews she conducted in the 1990s. Parts of some of the chapters have been previously published.

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