Alpha-1 Foundation and Alpha-1 Association Welcome NPS BioTherapeutics, Inc.MIAMI Miami, cities, United States Miami (mīăm`ē, –ə). 1 City (1990 pop. 358,548), seat of Dade co., SE Fla., on Biscayne Bay at the mouth of the Miami River; inc. 1896. -- The Alpha-1 Foundation and the Alpha-1 Association have followed Bayer AG's proposed divestiture of its plasma products business with great interest. The announcement today that an agreement has been signed with NPS NPS National Park Service NPS Naval Postgraduate School NPS Net Promoter Score (customer management) NPS Non-Point Source pollution NPS Native Plant Society NPS Norfolk Public Schools (Virginia) BioTherapeutics, Inc. presents an opportunity to continue the remarkable partnership, initially forged with Bayer AG, between the community of individuals with Alpha-1 Antitrypsin Deficiency alpha-1 antitrypsin deficiency An inherited condition–frequency, ±1:10,000, characterized by low or absent production of alpha-1 antitrypsin, an enzyme which is critical to tissue remodeling Clinical The PiZZ phenotype is characterized by early-onset (Alpha-1) and the primary supplier of specific therapy for this genetic condition. Bayer HealthCare LLC (Logical Link Control) See "LANs" under data link protocol. LLC - Logical Link Control has been marketing Prolastin(R) in the US for the past 17 years. Prolastin is purified alpha-1 antitrypsin from pooled human plasma. Until 2003 this was the only product available for the treatment of the lung disease lung disease Pulmonary disease Pulmonology Any condition causing or indicating impaired lung function Types of LD Obstructive lung disease–↓ in air flow caused by a narrowing or blockage of airways–eg, asthma, emphysema, chronic bronchitis; associated with Alpha-1. Prolastin is administered intravenously every week to thousands of individuals with emphysema emphysema (ĕmfĭsē`mə), pathological or physiological enlargement or overdistention of the air sacs of the lungs. A major cause of pulmonary insufficiency in chronic cigarette smokers, emphysema is a progressive disease that commonly caused by Alpha-1 and Bayer HealthCare remains the primary supplier of product for treatment of this condition. When product shortages occurred, Bayer HealthCare worked directly with the Alpha-1 community to develop a program, known as Bayer Direct, that delivers product directly to the consumer. It is our understanding that this therapeutic partnership will continue under NPS BioTherapeutics and we look forward to working as closely with this new entity as we have with Bayer HealthCare. "NPS BioTherapeutics is well positioned to continue the progress begun under the Bayer Direct program to deliver comprehensive care with AlphaNet. I have been extremely impressed with the commitment expressed by the leaders of this new company and their focus on bio-therapeutics. This unique investment provides NPS BioTherapeutics the ability to continue its community commitment to research and development of next generation therapeutics," said John W. Walsh, president and CEO (1) (Chief Executive Officer) The highest individual in command of an organization. Typically the president of the company, the CEO reports to the Chairman of the Board. of the Alpha-1 Foundation. Jan Petersen, Esq., chair of the Alpha-1 Association Board of Directors added, "We look forward to working with NPS BioTherapeutics as partners in enhancing service to our community and improving the day-to-day lives of those living with Alpha-1." The Alpha-1 Association and Alpha-1 Foundation will do everything possible to help facilitate a smooth transition to this new ownership. We warmly welcome NPS BioTherapeutics to the Alpha-1 community. About Alpha-1 Antitrypsin Deficiency Alpha-1 Antitrypsin Deficiency (Alpha-1) is one of the most prevalent, potentially lethal hereditary disorders. Discovered in 1963, Alpha-1 can cause life-threatening lung disease and/or liver disease Liver Disease Definition Liver disease is a general term for any damage that reduces the functioning of the liver. Description The liver is a large, solid organ located in the upper right-hand side of the abdomen. . It is a leading genetic killer of adults in the United States and a leading cause of liver transplants in children. It is estimated that 20 million Americans are undetected carriers of the Alpha-1 gene and may be at risk for lung or liver disease; 100,000 individuals are actively lung or liver affected and fewer than ten percent (10,000) have been accurately diagnosed. As many as 3% of individuals diagnosed with chronic obstructive pulmonary disease chronic obstructive pulmonary disease n. Abbr. COPD A chronic lung disease, such as asthma or emphysema, in which breathing becomes slowed or forced. (COPD COPD chronic obstructive pulmonary disease. COPD abbr. chronic obstructive pulmonary disease Chronic obstructive pulmonary disease (COPD) ) may have undiagnosed Alpha-1. About The Alpha-1 Foundation The Alpha-1 Foundation is a not-for-profit organization dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency. The Foundation provides the infrastructure to promote research and the development of new therapies for improving the quality of life of those diagnosed with Alpha-1. The Foundation is committed to close collaborations with medical experts, government agencies, international regulatory authorities, the pharmaceutical industry and other organizations to jointly resolve critical issues in the field of Alpha-1 research and treatment. A Grant Award Program supports a wide range of meritorious research in Alpha-1. About The Alpha-1 Association The Alpha-1 Association is a member-based nonprofit organization Nonprofit Organization An association that is given tax-free status. Donations to a non-profit organization are often tax deductible as well. Notes: Examples of non-profit organizations are charities, hospitals and schools. founded in 1991 to identify those affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy, and research. The Association has over 50 volunteer-led support groups around the US which are supported through annual grass roots grants. The Education program includes an annual National Conference and co-sponsorship of regional Alpha-1 Education Days with the Alpha-1 Foundation. The Advocacy Program focuses on access to care; maintaining and extending Medicare benefits; genetic non-discrimination; increasing public health funding; traveling with supplemental oxygen; organ allocation for lung transplantation Lung Transplantation Definition Lung transplantation involves removal of one or both diseased lungs from a patient and the replacement of the lungs with healthy organs from a donor. and includes working with the Congressional COPD Caucus to further our goals. For more information call 1-800-521-3025, email nsenzee@alpha1.org, or visit http://www.alpha1.org |
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