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AWAKENING TO DISABILITY: NOTHING ABOUT US WITHOUT US.


AWAKENING TO DISABILITY: NOTHING ABOUT US WITHOUT US Nothing About Us Without Us! is a populist slogan used mostly by those on the left-wing of the political spectrum to communicate the idea that no policy should be decided by any representative without the full and direct participation of members the group(s) affected by that  By Karen Karen

Any member of a variety of tribal peoples of southern Myanmar (Burma). Constituting the second largest minority in Myanmar, the Karen are not a unitary group in any ethnic sense, as they differ among themselves linguistically, religiously, and economically.
 G. Stone

In her insightful new book, Karen Stone steers us through the difficult processes of learning to live successfully with a disability and accepting ourselves as whole and worthwhile people. Using her own experiences and a wealth of stories from others, Karen Stone explores many issues, including accessibility, sexuality, employment, and health.

What sets this book apart is how open and honest the author is about the human aspects of the disability experience. We must not only adapt to physical changes but also grieve grieve  
v. grieved, griev·ing, grieves

v.tr.
1. To cause to be sorrowful; distress: It grieves me to see you in such pain.

2.
 our losses as we struggle with our identity and how society now perceives us.

My only criticism of the book is that it contains a chapter on women with disabilities but nothing about men. Primarily, however, this book deals with issues that affect us all, and I wish it had been available when I was first diagnosed.

A must-read must-read
n. Informal
A piece of writing, such as a book or article, that should or must be read: a book that is a must-read for parents of teenagers.
 for anyone affected by MS. Sit back, plan to take lots of notes, and savor this encyclopedia encyclopedia, compendium of knowledge, either general (attempting to cover all fields) or specialized (aiming to be comprehensive in a particular field). Encyclopedias and Other Reference Books
 of wit, wisdom, and knowledge that takes us on a journey from "disability shame" to "disability pride".

Volcano Press, 1997. $14.95. Write: P.O. Box 270, Volcano, CA 95689; or call: 800-879-9636.

Reviewed by Marc Pettibone, an original member of the Society's National Programs Advisory Council.
COPYRIGHT 1999 National Multiple Sclerosis Society
No portion of this article can be reproduced without the express written permission from the copyright holder.
Copyright 1999, Gale Group. All rights reserved. Gale Group is a Thomson Corporation Company.

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Author:Pettibone, Marc
Publication:Inside MS
Article Type:Book Review
Date:Jan 1, 1999
Words:218
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