AHRQ develops guide for patient registries.
The Agency for Healthcare Research and Quality (AHRQ) is developing
a "how to" reference guide to help healthcare organizations
create patient registries for tracking the outcomes of medical
treatments, including drugs. The guide, to be designed for government
and private-sector entities, will provide criteria for evaluating
registries and the quality of their data, as well as guidance on how
registry data can be used to conduct valid scientific research.
Researchers and others who have successfully developed and used patient
registries will develop the guide. Outcome Science Inc. of Cambridge,
Mass., under a contract with AHRQ, is organizing the project to be
completed by the end of 2006. Duke University will provide additional
scientific advice. For more information on the program, visit