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A painful separation.


Just after 7.00 A.M. on August 20, 1993, Siamese twins Siamese twins, congenitally united organisms that are complete or nearly complete individuals. They develop from a single fertilized ovum that has divided imperfectly; complete division would produce identical twins, having the same sex and general characteristics.  Angela and Amy Lakeberg were wheeled into an operating room operating room
n. Abbr. OR
A room equipped for performing surgical operations.
 at the Children's Hospital A children's hospital is a hospital which offers its services exclusively to children. The number of children's hospitals proliferated in the 20th century, as pediatric medical and surgical specialties separated from internal medicine and adult surgical specialties.  of Philadephia. Joined together from chest to belly, the seven-week-old twins shared a liver and a single, misshapen mis·shape  
tr.v. mis·shaped, mis·shaped or mis·shap·en , mis·shap·ing, mis·shapes
To shape badly; deform.



mis·shap
 heart.

Seven hours later, the surgery to separate the twins was complete. Angela was whisked to the intensive care unit, and Amy's lifeless body was taken away to be prepared for burial.

News of the remarkable surgery traveled fast, touching off an intense national debate. Why did parents Ken and Reitha Lakeberg ask doctors to perform the operation? Should the surgeons have compiled?

BACKGROUND

Amy's and Angela's story began when a single fertilized fer·til·ize  
v. fer·til·ized, fer·til·iz·ing, fer·til·iz·es

v.tr.
1. To cause the fertilization of (an ovum, for example).

2.
 egg inside their mother's womb started to split apart. If this egg had fully separated into two individual embryos, Amy and Angela would have been identical twins identical twins
pl.n.
Twins derived from the same fertilized ovum that at an early stage of development becomes separated into independently growing cell aggregations, giving rise to two individuals of the same sex, identical genetic makeup, and
. But the egg never fully divided, and the girls were born connected.

Reitha Lakeberg found out that she was carrying Siamese twins during an ultrasound test last December. But the Lakebergs, who also have a five-year old daughter, did not learn the full truth about their twins--that they shared a single liver and heart--until Amy and Angela were born.

The frail heart couldn't possibly support two growing bodies, Dr. Jonathan Muraskas told the Wheatfield, Indiana Wheatfield is a town in Jasper County, Indiana, United States. The population was 772 at the 2000 census. Geography
Wheatfield is located at  (41.191376, -87.052475)GR1.
, couple. It was only a matter of time until the overworked organ would give out, and both girls would die.

A CHOICE

One alternative: Surgically separate the twins. Muraskas, who was caring for the twins, advised strongly against it. The odds for success were just too slim, he said. In the past, when doctors separated twins who shared a heart, the surviving twin has always died within months

Convinced that the situation was hopeless, Muraskas and his fellow doctors begged the Lakebergs to let nature run its course. "We sort of pleaded with them to take the babies off the ventilator," he says.

But the Lakebergs were unable to accept that end. "When I hold them, I fall to pieces," Ken Lakeberg said in early August. "This is a nightmare."

After several weeks of soul-searching, the Lakebergs decided: Despite the slim odds low odds; poor chances; as, there are slim odds he will win any medal s>.
- W. Irving.

See also: Odds
 for success, they asked the doctors to separate the twins.

Muraskas put the Lakebergs in touch with surgeons at Children's Hospital. Doctors there had a fair amount of experience with Siamese twins, having performed 10 previous operations to separate them.

After conducting a battery of tests on the Lakeberg girls, the doctors in Philadephia agreed to perform the separation (see "The surgery," left). Based on their tests, the surgeons decided that Angela has the best chance for survival.

PERSISTENT QUESTIONS

At the time of this writing--close to a month after the operation--Angela is in serious condition, upgraded from critical. And the debate about the operation continues.

Some say the operation was just too costly--totaling upwards of $1 million. They point put that the Lakebergs didn't have health insurance--Ken Lakeberg, a welder, has been out of work for two years--so the taxpayers of Indiana ended up footing much of the bill.

"That's no way to spend scarce resources," says medical ethics medical ethics The moral construct focused on the medical issues of individual Pts and medical practitioners. See Baby Doe, Brouphy, Conran, Jefferson, Kevorkian, Quinlan, Roe v Wade, Webster decision.  expert Arthur Caplan Arthur L. Caplan PhD, is Emanuel and Robert Hart Professor of Bioethics and director of the Center for Bioethics at the University of Pennsylvania. Prior to coming to Penn in 1994, Caplan taught at the University of Minnesota, the University of Pittsburgh, and Columbia University. . "There are kids who need tetanus shots, pregnant women who need professional care, babies who need food."

And people all over the country are troubled by the Lakebergs' admission that they purchased fancy meals, a new car, and some $1,300 worth of cocaine with money that was donated to help pay those bills. Amid the public uproar, the Lakebergs have pledged to pay the money back.

Dr. John Dr. John (also Dr. John Creaux) is the stage name of Malcolm John Rebennack Jr. (born November 21, 1940), a colorful pianist, singer, and songwriter, whose music spans, and often combines, blues, boogie woogie, and rock and roll.  Puma, an expert on medical ethics, believes that the surgery has caused Angela unnecessary suffering. She will die after a few pain-filled months, he predicts. It would have been more humane to have left the twins alone, La Puma argues.

Dr. W. Hardy Hendren, a pioneer in surgery on Siamese twins, disagrees. Rejecting the idea that the twins couldn't possibly have survived with a shared heart, he says life would have been unbearably painful for both girls. "I've seen twins that have been left together. They can't walk. They can't even sit up," Hendren says. "And because they're always stuck face-to-face, they fight constantly."

What do you think?
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Article Details
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Title Annotation:moral aspects of surgery on Siamese twins
Author:Plaut, Josh
Publication:Science World
Date:Nov 5, 1993
Words:701
Previous Article:10 simple steps to writing up your experiment. (Special Issue: Doing Science) (Cover Story)
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