A 20-year survivor.Matt Redman was diagnosed with AIDS just as everyone else in the world was first learning of the disease
In the early days of the AIDS epidemic, Matt Redman hung out with one woman and four young gay men who were so close, they considered one another family. One by one they were diagnosed with HIV HIV (Human Immunodeficiency Virus), either of two closely related retroviruses that invade T-helper lymphocytes and are responsible for AIDS. There are two types of HIV: HIV-1 and HIV-2. HIV-1 is responsible for the vast majority of AIDS in the United States. . Today, Redman, who contracted HIV in the late 1970s, is the sole survivor.
But Redman, 51, has more than just fond memories of his buddies.
In 1982, Redman and two members of his group--plus a fourth person--founded AIDS Project Los Angeles AIDS Project Los Angeles (APLA) is a 501(c)3 nonprofit organization dedicated to improving the lives of people affected by HIV disease, reducing the incidence of HIV infection, and advocating for fair and effective HIV-related public policy. , which has grown from a hotline operating out of the Los Angeles Gay and Lesbian Community Services Center to one of the largest social service groups in the nation.
Today, Redman, a Los Angeles interior designer, remains an honorary board member of APLA APLA AIDS Project Los Angeles (California)
APLA Asia Pacific and Latin America
APLA Atlantic Provinces Library Association
APLA Antiphospholipid Antibody (syndrome) . In an interview with The Advocate on the 20th anniversary of AIDS, he reflected on the organization he nurtured, surviving AIDS, and the future of the epidemic.
It must have been terrifying ter·ri·fy
tr.v. ter·ri·fied, ter·ri·fy·ing, ter·ri·fies
1. To fill with terror; make deeply afraid. See Synonyms at frighten.
2. To menace or threaten; intimidate. to be diagnosed when doctors knew so little about the disease.
I was infected in the late '70s. Before they even had a test for HIV, my T-cell level was dangerously low. I wasn't terribly surprised because so ninny nin·ny
n. pl. nin·nies
A fool; a simpleton.
[Perhaps alteration of innocent. of the people I ran with had already become sick. Why would I be different? For some reason I wasn't really scared. It was so early on that no one could predict what would happen. I didn't really get scared until I became ill in 1998. During a prescribed medication break, I came down with my first opportunistic infections Opportunistic infections
Infections that cause a disease only when the host's immune system is impaired. The classic opportunistic infection never leads to disease in the normal host. . I could barely walk because the HIV had blossomed in my spinal fluid. When I got sick I felt I had to drastically alter what my expectations for life could be. My future suddenly seemed very limited. Life became about limitations rather than opportunities for the future. Today, I'm doing fine on my drug regimen, and my optimism is back.
What's the story What's the Story was an American television program broadcast on the now defunct DuMont Television Network from 1951 to 1955. It was a game show originally hosted by Walt Raney. behind APLA?
My friends and I were in New York in 1981, hearing stories among friends coming down with this mysterious disease. We realized that back home in L.A. there was no hotline, no medical care, and no one to turn to for emotional support. We raised $7,000 to found the hotline. From there it grew into APLA, which provided everything from education and prevention to lobbying and advocacy work. I'm very proud that our organization and other ones like it are a model of community response to a problem that the government didn't want to deal with.
Recent studies have shown rising rates of HIV infection. How can we educate succeeding generations of sexually active gay men about HIV prevention?
We have known for some time that we have the makings of a second epidemic on our hands. The younger generation feel AIDS is an old man's disease. They feel invulnerable in·vul·ner·a·ble
1. Immune to attack; impregnable.
2. Impossible to damage, injure, or wound.
[French invulnérable, from Old French, from Latin , partly because they are not hearing about young people with the disease and how much suffering it can still cause. To be honest, I'm not sure we have learned exactly how to reach these men. It's just horrible to think that others will experience what my generation went through.
Some argue that protease inhibitors signaled the end of AIDS.
I don't even want to comment on people who think like that. They are not part of my world. It's no coincidence that as the media has portrayed protease protease /pro·te·ase/ (pro´te-as) endopeptidase.
Any of various enzymes, including the proteinases and peptidases, that catalyze the hydrolytic breakdown of proteins. as a near "cure," some people have grabbed onto this misinformation mis·in·form
tr.v. mis·in·formed, mis·in·form·ing, mis·in·forms
To provide with incorrect information.
mis to lessen their commitment to protected sex. The new drugs have made AIDS survivable sur·viv·a·ble
1. Capable of surviving: survivable organisms in a hostile environment.
2. That can be survived: a survivable, but very serious, illness. , but there is no such thing as a cure. The side effects alone can be awful.
This is the 20th anniversary not only of the epidemic but of your diagnosis as well.
Marking 20 years of an epidemic is sobering. But it's productive because it has brought AIDS back to the attention of the public and policy makers. For the last several years, we as a nation seem to have forgotten about the epidemic. People seem to think it's relegated to Africa. Now maybe we can start talking about prevention again.
I don't know why I'm still alive, to be honest. Some of the factors are good medical care, plenty of sleep, and regular exercise. I have a positive belief in myself and in my future. Most important, I've dedicated much of my life to the HIV community. Having a mission in life has kept me going through all the hard times.