'Occupational Therapy and Duchenne Muscular Dystrophy: Stone Duchenne' - Understand the Support That Occupational Therapists Can Offer to Families Who Are Affected by This Condition.
This is a practical guide for Occupational Therapists and others who provide services to people who have Duchenne muscular dystrophy. The goal of the book is to deepen the reader's understanding of the support that occupational therapists can offer to families who are affected by this condition. Written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student. Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions.
The text begins with a medical summary of Duchenne muscular dystrophy, which is a genetic condition that is characterized by progressive muscle weakness. It affects approximately one out of 3,500 males, regardless of their ethnic or social background. There is no cure for this condition but recent progress in treatment has improved the prognosis of this group. Therefore young men with Duchenne muscular dystrophy have to plan for a future where they may live independently outside their parents home. They also need to consider employment, leisure and further education opportunities. Increasingly occupational therapists are called upon to work with the family and their son in the early stages of the condition and they have ongoing contact with them through the middle and later stages of the illness. The occupational therapist works with the family to enhance their ability to participate in everyday activities by providing practical physical and psychological support.
Each chapter of this book gives a clear and comprehensive description of different aspects of occupational therapy assessments and interventions that can be helpful to the young person with Duchenne Muscular dystrophy. This may range from providing small pieces of assistive equipment that will help the school child to access the curriculum to advising on home or school adaptations that will allow an individual who uses a wheelchair to reach all areas of the building. This practical guide has been written by experienced occupational therapists with a special interest in Duchenne muscular dystrophy. The book will provide information and support to therapists who may be working in isolation, or who rarely work with this client group. It is for the experienced therapist as well as the student.
About the authors:
Joy Blakeney, Dip COT, Senior Practitioner, Paediatric Community Occupational Therapist, formerly of West Lothian Council Social Work Department.
Alex Howarth, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.
Ruth Johnston, BSc (Hons) Occupational Therapy, Senior Occupational Therapist - Child Health, NHS Fife.
Heather McAndrew, BSc (Hons) Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Borders.
Mary McCutcheon, Dip COT, Senior Paediatric Occupational Therapist, formerly of Ashcraig School, Glasgow.
Kate Stone, Dip COT, MSc (MedSci) in Palliative Care, Senior Practitioner, Paediatric Community Occupational Therapist, Inverclyde Council Social Work Services.
Claire Tester, Dip COT, PG Dip, AHP Consultant in Cancer for Scotland, Scottish Executive on secondment from the Children's Hospice Association, Scotland (CHAS).
Nicola Traynor, BSc Occupational Therapy, Senior Paediatric Occupational Therapist, NHS Lothian University Hospitals Division.
1 Duchenne Muscular Dystrophy: A Medical Overview (Alex Howarth).
2 The Occupational Therapy Process (Kate Stone, with Claire Tester and Mary McCutcheon).
3 The Psychosocial and Emotional Impact of Duchenne Muscular Dystrophy: Some Considerations (Claire Tester).
4 From our Point of View: From Young Men with Duchenne Muscular Dystrophy, as Shared with Claire (Claire Tester).
5 Personal Activities of Daily Living (Alex Howarth, Ruth Johnston, Heather McAndrew and Nicola Traynor).
6 Seating (Joy Blakeney and Ruth Johnston).
7 Moving and Handling (Kate Stone and Claire Tester).
8 Occupational Therapy in Education (Alex Howarth, Heather McAndrew, Mary McCutcheon and Nicola Traynor).
9 Learning and Behaviour Diffi culties (Claire Tester).
10 Leisure and Play (Kate Stone).
11 Community Care (Kate Stone).
12 Housing Issues (Kate Stone).
13 Social Needs: An Overview (Claire Tester).
14 Employment (Kate Stone).
15 Transport (Kate Stone).
16 Bereavement and Anticipatory Grief (Claire Tester).
17 The Role of the Hospice (Claire Tester).
18 In Conversation with Occupational Therapists (Claire Tester).
19 The Future (Claire Tester and Dr Alison Wilcox).
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